Very bad news during pregnancy: Spina Bifida
April 26, 2007 10:23am CST
I am 36 weeks pregnant. Today I went to my local hospital for a scan of my baby. They told me my baby has Spina Bifida. I am surprised becuse they didn't pick this information up at my 20 week scan. I have taken Folic Acid all the way through my pregnancy. Tomorrow I have to go to a further away hospital to have a more detailed scan and hear how bad the Spina Bifida will be. I feel very upset indeed. This news has really shocked me.
3 people like this
27 Apr 07
I am sorry to hear you are dealing with this and preeclampsia all at once. My cousin was born with spinal bifida, and had a (SP?) mylocele at the base of her spine. I was always told certain nerves that were meant to be inside her spinal area had formed outside in a mushroom like sack. Her life wasn't easy, but she was one tough cookie and lived it to the full. Sadly, we lost her when she was 31. I had a boss who had spinal bifida, and for the most part I don't think it effected him in any tangible way. Symptoms can be quite mild, as well. I am hoping you get the best possible news. Take care of yourself. I just looked it up at Wiki and you know what I found? It can be quite mild indeed! I had no idea John Mellencamp (John Cougar) had it! Look at some of these people who had/have spinal bifida: Jean Driscoll, Olympian and eight-time Boston Marathon winner Tanni Grey-Thompson, Welsh Paralympian Lawrence Gwozdz, U.S. saxophonist Blaine Harrison, of the British band Mystery Jets Rene Kirby, U.S. actor, starred in Shallow Hal, 2001 John Mellencamp, U.S. rock and roll musician Bobby Steele, U.S. punk rock guitarist and songwriter Jeffrey Tate, British conductor Hank Williams, U.S. country music singer Justin Yoder, American soap box racer Mighty Mike McGee, American 2006 World Slam Poetry Champion James Connelly, U.S. Paralympian, 2006 Bronze Medal Winner; Sled Hockey Wishing you and your baby luck!
• United Kingdom
1 May 07
Thanks for your response. I am sorry about your cousin. It helped me to see all the names of people with spina bifida. I will keep hoping that after surgery it will be mild. But the hospital paint a very nasty picture of it. I like to hear from people like you that know about it.
3 May 07
My cousin Jen was a real fighter, and so was her mother, which I think was her greatest strength. She had maybe the worst case scenario, and things weren't easy for her. She also had water on the brain when she was born and the doctors were constantly painting a grim picture. First she wouldn't live to be such age, then another age would be thrown out. When she hit 20 they quit saying it. Life wasn't easy, but she went to mainstream schools, graduated, got a car that was modified so it had hand controls, and had a mad cryuch on Rick Springfield. She loved horses, went riding throug a special program, swam and really lived. We were close in age and we were als friends, not just cousins. My boss, you wouldn't even know. Wherever your little one ends up in that spectrum, I wish you all the very best.
• United States
26 Apr 07
I'm not going to say I know what your going through because I do not. But I can try and imagine. I just want you to know that my prayers are with you and your family. Nothing is impossible for God. Everything may seem impossible to us but not is impossible with God. After all He is the creator of us all. He can fix what he created. I pray in the name of Jesus the this spine is completely healed and that this baby will be in total and complete health all the days of his or her life. You say to speak your word Lord and your word says you want us to proper in health and finances. So right now I speak this into maximax8 and her families life. Thank you and praise you Lord. In jesus name, Amen.
29 Apr 07
Hello Maximax8. I am sorry to hear about your baby having spina bifida. My daughter just found out the same news this week. She is 4 1/2 months pregnant, so I am not sure which is worse knowing sooner or later. She felt she did everything right also so god only knows how he chooses who he has brave such uncertainty. My daughter is going to partipate in the MOMs trial and possibly have intrauterine surgery to lessen the complications from the spina bifida. Unfortunately this study can only be done on women before 25 weeks gestation. She has a 50/50 chance of being chosen for the surgery before the baby is born vs. after he is born since it is a randomized trial. How did your further testing go? My daughter had to go another city and doctor also due to the specialist availability. If she is chosen for the study she will need to go to another state! This is going to be a life altering event for the both of you but it will be worth it to have the precious life. Good luck to you and keep us updated.
• United Kingdom
1 May 07
Thanks for your response. Good luck to your daughter and her baby. Finding out at 4 and a half months was helpful to her. I am so pleased that she can be part of the trial for intrauterine surgery. I don't think women in the UK have a chance of this. I guess that you are from the USA. Medical care there is very good. I wish I had found out at my 5 month scan. My further testing was uncomfortable but I am glad the pain has stopped now. Take care. I will keep you all updated with any news.
5 May 07
Oh dear I'm so sorry for you. I do hope you and your baby will be alright after the delivery. Look on the brighter side, at least you knew about the Spina Bifida even before you give birth, while some women only knew after they delivered their baby. Take Care and Good Luck.