Do you knoww anyone with spina bifida?

@maximax8 (28247)
United Kingdom
May 4, 2007 8:07am CST
I am preganat and have just found out my baby will have spina bifida. The hospital people gave me some idea of what he may be like. I have never met anyone with spina bifida though.
2 people like this
9 responses
@KissThis (3006)
• United States
4 May 07
I have a child who has a condition that is like spina bifida. Whiel doctors can give you some idea what the condition is like they aren't able to tell you how it will affect your child. When my daughter was a baby the doctors gave me a grave picture as to what her future would be like. They told me that she would never be able to walk or run like a normal child. That she wouldn't be able to live a normal life like all the other children do. None of this is true. My daughter acts as well as looks just like any other child. You would never know that there was anything wrong with her just by looking at her.
@maximax8 (28247)
• United Kingdom
4 May 07
It must be great that your daughter's life is much better than you were told. My consultant gave me such a grave picture. Your comment made me feel happy and have hope for my son.
1 person likes this
• Ireland
4 May 07
They told my aunt that my cousin wouldn't live a week, then a month, year and so on. Eventually they stopped telling her those things. My cousin did pass away when she was 31, but many of her years, especially before she was 20, she was reasonably healthy. I'm just saying, wait and see because there really is a wide range, and even if they tell you something quite frightening, they can be very wrong. Medicine is hardly an exact science, no matter how they pretend it is.
1 person likes this
@KissThis (3006)
• United States
9 May 07
I just had my daughter in for a check-up. Her doctor looked over at me and said " I am trully amazed by all of the advances that we have made in medicine an yet we get a child like Caitlyn that just suprises us each step of the way." Keep your faith. You will know your child better then anyone else.
@mammamuh (582)
• Sweden
6 Feb 09
I know this is late responding to your question - but I will respond any way. I know several people with spina bifida, mainly grown ups now since I don't spend much time with children anymore. My sister has spina bifida and is now over 30 - so I have som experience with it during the years. If you would like to know more -please don't hesitate to contact me. I hoe everything is okay with you and your son!
@maximax8 (28247)
• United Kingdom
6 Feb 09
Thanks for responding to my discussion. My son is now 20 months old. He is meant to wear gaiters on his weak leg at night. However because he has a red mark of it his physiotherapist says to leave it off a night for the time being. He used to combat crawl and his crawling has got more normal now. I would like to find out more about your sister because to hear about older spina bifida people is valuable.
@brendalee (6083)
• United States
4 May 07
One of my friends has a nephew who has it. The doctors said he would never walk but he does. His mom was determined to prove the doctors wrong. I am sorry about your baby but don't let it get you down. I am sure if you look on the internet you will find some support groups where you can talk with people who have experience with this. Here is a website for you in case you want more information.... http://www.nlm.nih.gov/medlineplus/ency/article/001558.htm
@maximax8 (28247)
• United Kingdom
4 May 07
Thanks for the website. I am glad that your friend's nephew walks.
• United States
4 Nov 09
I personally have spina bifida and I am a perfectly functioning adult. I have not have really any problems over the years. I did have two back surgeries as a baby, but I did everything they told me I would never do. Starting with walking, running, cheerleading, gymnastics, and child rearing. I now have two children of my own and have not had a problem at all, besides a few back cramps and a little pain around the scar tissue area. I also have nerve damage in my left leg, but really it does not bother me its just numb from the knee down. So good luck since this was posted a while back I hope you had a very healthy baby...
@JAYMAR777 (840)
• Philippines
17 Apr 08
I'm a physical therapist i know about the problem but I have to be honest I haven't met somebody who has it. anyways there is possibilities that your child can still walk.
@longbangod (1791)
• Philippines
16 Apr 08
Oh I really dont have idea with this one. I hope your baby will just be okay. Good luck on your pregnancy and God bless you till you deliver your baby.
@aladnzane (154)
• Canada
12 May 07
I had a friend with spina bifida. It did not seem to slow her down from enjoying life. She did a lot of traveling and even stopped in France to take a Cordon chef course which she treated us to her culinary creations. I found her to be a pleasant person with a good head on her shoulders. The only differance would be that her neck was shorter than most, other than that she was like any one else.
@mememama (3077)
• United States
9 May 07
My cousins son has spina bifida, they found out during a routine ultrasound. Towards the end of her pregnancy they sent her to a hospital in the city. When she went into labor, they did a cesarean and did surgery on her baby right away. He did have some fluid around his brain so he's mildly retarded. But he's walking around just like any other kid, he was delayed phsyically compared to other children his age but he has caught up.
• United Arab Emirates
4 May 07
i am really sorry for your babby,,,, i dunno what this is but i can surely tell you in india there are large and good hospitals and docs who will be able to assist you easily and help you get all the details and information and medications needed... a few hospitals i will mention there name below they are all located in mumbai - india 1) Lilavati hospital 2) Bridge Canaday Hospital 3) Hinduja Hospital