July 14, 2007 8:43am CST
I have a son with Prader-willi syndrome .Has anyone else even heard of this ?Just curious I have been taking care of my son for 19 years now I am very secluded from life due to taking care of him and friends one by one dropping off the radar.If it wern't for the internet i would only have contact with doctors and customer services "laughing"how bout you do you have a similar situation ?
• United States
14 Jul 07
I have never heard of that before. What affects does it have? I read an article recently about a family who have a daughter with a rare disorder that no one had ever heard of. It finally came about that a situation had arisen in the city they lived and the person involved had the same disorder as this girl. Now, everyone was asking questions and treating her differently. You shouldn't feel alone. You are doing what you feel is best for your child and know that there are others having to do the same thing.:)