I have a question about seizure triggers. Kinda long sorry.

United States
July 21, 2007 9:09pm CST
My 4 year old has epileipsy along with a few other medical issues. She hasn't had a seizure since April 4th,2007. Well today I bought a refil for my Oust fan(for those of you who don't know what this is,it is an air freshner that blows sent into the air.) not even 45 minutes after putting it into her room(not turned on) she had a seizure. I thought about it and since last year when they started I have had the Oust fan in her room. In April it finally emptied completely and I never refilled it until today. Can sents trigger seizures? Have you ever heard anyone talk about a product like the Oust fan causing a seizure? Should I contact the company? I tested a product from the Oust company last year around the time she started having the seizureas. When I took the survey after testing the product the company called me back about the fact my daughter had a seizure I never thought the product could have caused it but now I'm not so sure. Any help would be great.
2 people like this
5 responses
@jbrooks0127 (2326)
• United States
23 Jul 07
I have been subject to seizers sense 1993. My last was 1970. I would not consider my self an expert on this because there are so many things that can cause it. After a week of tests back in 1993 they could find no reason for mine. Medication controls mine. I believe that most seizers are caused by some sort of injury to the brain. But I am sure there can be other causes. Have you had your daughter tested? From personal experience I can tell you that you may have just been lucky and the cause may not have anything to do with this product. During the 1960's I did not take this thing very serious. As a result I did not take the medication as prescribed. Even with that mine were infrequent and there was nothing to tie them together. I do hope that you have found the cause but do not take the chance. Please have her tested. They may not fine a reason but then again they might. Medication can control it if it proves to be more than the air freshener causing it. The reason it is important is that a number of mine happened while asleep. This could be very dangerous for her if you don't catch it. I do wish you well but please know there is help if needed.
1 person likes this
• United States
23 Jul 07
She has had an eeg and an mri,she has cerebral palsy,something happened at birth which is why she has the seizures she takes trileptal and she was doing good until Saturday. thank you for your sdvice i will continue to try my best to keep her safe and healthy and I wish the best for you also.
• United States
24 Jul 07
Thank you for your response. Small correction to what I said. Clearly I have been subject longer than 1993. I meant to say 1963. Is sounds like you are doing everything right. There is no predicting this and I truly hope that her future will be better. Can't help but be with such a concerned mother. I wish you all the best.
1 person likes this
• United States
26 Jul 07
Thank you and I too hope for everyone who deals with this that they have good lives and find peace somehow. She is doing well at the moment and thankfully she doesn't even remember them at all. have a great day.
@byfaithonly (10716)
• United States
22 Jul 07
Wow, I don't have any experience or knowledge about this but it certainly sounds like the Oust fan may be a problem. I'm thinking not necessarily the scent but the chemical used in the Oust - I'm sure it's not a natural oil or scent but manufactured. You may want to check with your doctor but I would use those fan things anymore just in case.
1 person likes this
• United States
22 Jul 07
I threw them out last night and i will be talking to her doctor on Monday to ask if they have ever heard about this as well,i will contact the company after I talk with the doctor. thank you i just thought other people should know just in case.
@byfaithonly (10716)
• United States
22 Jul 07
Very good idea - and thank you for the information because if something were to happen I never would have thought of connecting it to something like air fresheners.
1 person likes this
• United States
26 Jul 07
Thank you sometimes the only way people find out about stuff like this is from word of mouth. Her doctor didn't really want to discuss the smells in her room(they find me to be annoying) but I did send a note to the company,we'lll see what happens next.
• United States
17 Sep 07
I have been diagnosed with epilepsy since I was three. Honestly, I have many triggers: flashing lights, heat, exhaustion, hunger, stress.. I never knew the human body was so delicate. I have never known scent to cause a seizure, but I do know that rosemary makes me dizzy and creates pre-seizure conditions, so it is highly probable that scent did trigger your daughter's seizures. Sadly, for me, they did not find any medications that would help. All the anti-convulsants ever did for me was make me fat, make my gums swell, and cause a whole myriad of side-effects.. including making the seizures worse. I hope that you find something that works for you. I wish you luck.
• United States
17 Sep 07
I am sorry to hear that,I do hope you are comping as best you can,I removed the scents and so far my daughter hasn't had another seizure,she takes trileptal and is on a higher dose than before so we hope that does the trick.
• United States
12 Aug 07
Hi babyangie. I'm very sorry to hear that she is having seizures again:( To be quite honest, I have never heard of anything like that causing a seizure. As you know my son has pretty bad seizures almost daily and the doctors have given me a list of numerous things that could bring on a seizure but they are mostly like avoid anything with flashing lights and such. I know when they have seizures we try so hard to find the cause because we can't deal with not knowing but her seizure was probably just a breakthrough seizure and she may need her meds adjusted. I would consult her doctor. I'll keep you and your daughter in my prayers. I wish you well my dear friend. have a beautiful day=)
• United States
12 Aug 07
Thank you I am glad to hear from you I was beiging to worry,but yes we upped her meds again liek we always do. If she has another they will change her meds altogether. I do hope your son gets better and I will pray for you both as well. Thanks so much for being there and being so strong.
@wotfpatty (2068)
• United States
12 Aug 07
Hi: I have a 16 year old son who is fine BUT when he was four, one day out of the blue, he had a seizure. He had a few more, then no more for several months. Suddenly they started again but this time, they didn't stop. He had 100's a day. I checked him for allergies and he had none and for lead and there was none but there was NO reason for this. This wasn't epilepsy because they couldn't map it and it wasn't on one side. LONG story short, his life went from normal to a mess. He was on medicines that made him sick and mean. He had all kinds of seizures all day long. Hospital after hospital could not help him. Finally, I took him to Johns Hopkins Hospital and he was put on the Ketogenic Diet. He stopped having seizures in 18 days and stopped all meds in 2 months. He has never had another one and went off the diet in 9 months. They told me ANYTHING can be a trigger to sensitive individuals. Sugar was one thing we stopped for a few years. He had been drinking soda when he had the first seizure and it just stuck in my mind. Both first seizures started in January. Was it my heater? Gas in the house? Something in the air? We will never know. But I do suggest that, if you even suspect something is a trigger, remove it. Lights, scents, sounds, movements all can trigger seizures in certain kids/people. More kids have triggers we can't figure out than adults and it is up to us to pay close attention and see when a seizure happens and what is the same as the last time. I did a journal but my son was having literally hundreds a day for a while and was out of control. Thank God for that diet. I just wanted to say that kids can grow out of this and that anything can trigger them so, if you sense it is that scent thing, don't use it and see what happens. Doctors really know very little about the brain so it is up to us parents to be the investigators. Best of luck!!
1 person likes this
• United States
12 Aug 07
Thank you so much,I am happy to hear your son is ok now,I know how hard it is to see your child go through this. I have removed the oust fan and no longer use it in the house. I still use frebreeze spray but so far that has never had an affect on her. I no longer put stuff like that in her room. I have a log also and since removing the fan she hasn't had another seizure. It is amazing how many people I have met on mylot that deal with the same things I do. I hope you and your family are well and thank you again.
1 person likes this