Hydrocephalus/ Water on the brain

United States
October 30, 2006 6:11pm CST
Who knows what this condition is, and if you do, do you know anyone else besides me who has it?
7 responses
@PatriciaL (2081)
• United States
1 Dec 06
You learn something new everyday. I've never heard of this before. It must be hard to deal with. So you have to do that for the rest of your life? Is there any surgery or something that could reverse the problem?
1 person likes this
• United States
13 Apr 07
I've had about 5 or 6 surgeries to get the shunt changed, and the doctors say that I'll have the shunt for the rest of my life, and that there's no chance of me out growing it, or having it removed completely
• United States
31 Oct 06
I've never heard of it. What is it?
1 person likes this
• United States
31 Oct 06
It's a condition where if the baby tries to come out face first through the birth canal, then water builds up arround the brain cavity, and has to be drained out with a tube down into the stomach area. As the baby grows the tube stretches and has to be changed. I've had the tube sence I was 2 months old, and have had several surgeries to get the tube replaces. One thing that could cause the tube to need changed, is it gets clogged with bad fluids, or blood, and that could cause a big problem if it's not changed right away. If you would like to know anymore about the condition, just ask, and I'll tell ya
@stellarjade (1240)
• United States
31 Oct 06
yeah, i am a peds nurse, so I see it occasionally.
1 person likes this
• United States
31 Oct 06
My daughter born with hydrocephalus. We had plan to put shunt in her and bring her home but doctors found more and more and more problems and puting feeding tube made it difficult to put shunt in her. So, when she was 3 days old, they use the needle to take the fluids out from her head. After that, somehow, her hydrocephalus was gone. It start to work right. She had SOD. I know lot of people have it and they are living normal. Doctors told us that some football player have it and I was surprised because it a hard physical sport. http://health.groups.yahoo.com/group/lifewithhydrocephalus/That is the group you can join in yahoo. It made up by people who have or dealing with hydrocephalus.
@maximax8 (27048)
22 Apr 11
When I was at 36 weeks pregnancy with my second baby in an ultrasound I found out the my baby son has spina bifida affecting his back and hydrocephalus affecting his head. He had a back operation the day he was born and a shunt fitted in his head when he was two weeks old. Now he is almost four years old and he is still in the same shunt. I know a little girl that has hydrocephalus and her twin sister doesn't have it. Those twins were born at 29 weeks pregnancy and her hydrocephalus came when she was premature. I am interested to find out some people get hydrocephalus later in life.
• United States
24 May 10
I have Hydrocephalus along with Spina Bifida. Have had both since birth, 24 years. I have had 50 shunt surgeries just in the last 9 years. I have also had 3 *pain in the a$$* shunt infections. I know several, several people with this condition.
@mrawlin3 (29)
• United States
1 Nov 07
I was diagnosed with hydrocephalus at the age of 48. I had a shunt implanted in 2003. I am lucky that I have not had any trouble with the shunt except for some tweaking of the valve setting. I may be able to make it the rest of my life without have to get a new shunt unless it is damaged in an accident or I get an infection. That's because my shunt was implanted long after I finished growing. They can't tell me why I didn't have symptoms until I was an adult. Some people can live with the condition for years and never know it. It has been a pain. I still get bad headaches when the weather is going to change. I developed scar tissue along the distal catheter of the shunt. I have back trouble and when I get muscles spasms from that, it pulls on the catheter all the way along it's length. The worst part of it is the pain in my abdomen. When were you diagnosed and how old were you when your shunt was implanted?