3 Year Old Boy With Rare Sleep Condition, Which Keeps Him Awake Around The Clock

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I was roaming on Yahoo today, when I came across this heartbreaking story of a 3 year old boy with a rare sleep condition in which his brain is squeezed in the Spinal cavity, which then effects his sleep, as well as some other major functions, causing him not to be able to fall asleep for almost twenty four hours a day. So, because of his lack of sleep, this young boy has developed severe behavioral problems because he is moody and exhausted during the daytime, causing his parents much stress and frustration. Right now, it seems as thouugh surgeons are trying to fix the problem through various surgeries but this little boy is so adorable and it's heartbreaking to hear of such a thing as this in one so young. I know how I feel when I have a bout with Insomnia and it's not at all pleasant. It's in fact emotionally and physically draining as well as very scary when it happens. I can't imagine how it must feel to someone who can't fully understand what's going on, as well as the toll it must take on this little boy's parents. It's really a very sad story and so, I wanted to share it with you and get everyone's opinion on it. Here's the link to the video, I hope it works... http://cosmos.bcst.yahoo.com/up/player/popup/?cl=7780397 Please, tell me what your views are on this family's situation and how you think you would feel and handle it, if you were in such a situation yourself...