Child,Fits,suffer,fearful,sad.

@Gollywog (1092)
July 11, 2008 8:19am CST
Hi mylotters,I have not been on line for awhile My friend has had one of her children ill. They are my adopted grandchildren the little girl is 8yrs old today she has been having Fits constantly since Tuesday thats 4 days and the hospital are just starting tests today! How slow are they, the fits are constant every 8 to 12min and lasting between 15 to 25min. She is having them around the clock no break? Her parents are taking it in turns to watch her through the night? The hospital sent her home after seing her for twenty min?????? She is going back today as there is no change her parents where told to vidio the fits so they could see what was happening.I think this is a long time to wait before doing test? What do you think? I will keep you updated on her development.Has anyone been in this position or know why this is happening? She is a healthy child Plays for the local football team, does loads of sports and has not been ill?
8 people like this
22 responses
@DonnaLawson (4032)
• United States
12 Jul 08
Could she have Epilepsy?? She didn't need to be sent home and video taped, she needed to be checked into the hospital and taken care of.. What kind of doctors would send a child home in this condition.. I am so sorry for this child, I do hope she starts doing better and the doctors find out what is wrong with her.. Take care and do let us know what they find out..
3 people like this
@Gollywog (1092)
12 Jul 08
You wonder wether they believe you? Sending her home was a bad move but her parents where told to video her constantly. She had fits while she was there in the hospital and the staff seen them? I will keep you informed as I hear from them.
1 person likes this
@Gollywog (1092)
17 Jul 08
The results are epilepsy and they have started her meds, they will increase weekly untill the fits are under control. She is still having they so its a long way to go.
• Bahamas
11 Jul 08
I'm so sorry to hear about her illness. I hope they find out whats causing these fits, and soon. You said that she plays football, do you think she may have suffered a concussion that nobody knows about. In any event i'll be praying for a good outcome to this situation.
3 people like this
@Gollywog (1092)
12 Jul 08
Thank you, she has had no falls or any accidents it is baffling? Thank you for your prayers we just want to see her back to her old self again.
1 person likes this
@carolbee (16230)
• United States
12 Jul 08
Could your friend's little girl be having epileptic seizures? Has she been seen by a specialist? This problem sounds so dangerous and scarey. Hospitals are so anxious to get people out of the hospital. Sick or not, people are sent home everyday. It's my understanding the insurance companies are behind all this and I do not agree with their decisions. Am so sorry to hear this is happening. I will say a little prayer and hope doctors find out what is the problem and are able to get her back to a normal lifestyle. Poor little girl.
2 people like this
@carolbee (16230)
• United States
12 Jul 08
I really did say prayers. Hope it helped. The drs. can do a CT scan and should be able to see what's going on in her brain. I have seen a seizure once and it was awful.
1 person likes this
@Gollywog (1092)
17 Jul 08
The results are epilepsy so meds have started it will be a while befor they take effect.So things are looking ok.
@Gollywog (1092)
12 Jul 08
The doctors have only just started the tests today they didnt believe the mother saying the fits were so frequent and just carrying on and on? She now has to video the child all the time? Maybe they will find out how to treat her very soon? She was fitting when they saw her! I would have thought they could have diagnosed then if it was epileptic seizures, NHS rubbish. Thanks for your prayers.
1 person likes this
@mummymo (23706)
12 Jul 08
I don't think I would have stayed at home - I would have kicked up a fuss and made sure that any necessary tests were done there and then Pat but that is easy for me to say when I am not right in the middle of the situation! There are a lot of causes for children having fits but this does not fit with febrile convulsions which are the most common thing. A child having continuos fits like that sounds serious and I will be praying for your adopted grandaughter that she will come through this soon, and healthy! Hugs and prayers sweetheart! xxx
2 people like this
@mummymo (23706)
14 Jul 08
I would have been in a prison cell by now if they treated my child that way Pat! Maybe some kids will pretend to be ill - we all know that is a fact but no child could feign fits that often or for so long! My son was in hospital for 5 days about 6 years ago , he was being sick constantly and had the most terrible headaches, the doctors gave up and referred him to a child psychologist whose first question was did I have migraine, to which the answer was yes! She had diagnosed him based on a family health history and his symptoms within quarter of an hour. He was suffering from a condition called cvs which was related to migraine , he got medication which helped immenssely! Please do let me know how things go when you find out sweety - I am still keeping her in my prayers! Hugs xxx
1 person likes this
@mummymo (23706)
17 Jul 08
Oh Pat sweety at least now they know what it is and have a good idea how to treat it! I hope the treatment is effective and starts to help her soon. I still cannot believe the way her and her parents were treated by the hospital - I would definitely put in an official complaint! Hugs xxxx
@Gollywog (1092)
17 Jul 08
all tests show epilepsy affecting the left side of the brain, so she fits to the right and you can catch her now you know which way she will fall. Her meds have started but no change yet they will increase the amount weekly so I hope Its not to long befor it works. All the prayers from every one helped her through all the tests. Thank you Pat xxxx
2 people like this
@faith210 (11224)
• Philippines
11 Jul 08
Hi Gollywog! I am so sorry to hear that. Oh that is so sad and I hope that things will get better soon. I hope the doctor will soon see what is making her have fits. I really feel sad when I hear about children suffering. I hope and pray that whatever her condition is will be treated soon. Hang on and keep up your faith my friend. I really have no idea what may cause her fits. Take care and God Bless!
2 people like this
@faith210 (11224)
• Philippines
13 Jul 08
Hi Gollywog! Thank you very much my friend and I would really appreciate the updates on her condition. I will be praying for her and hope there is really nothing serious to be worried about. Take care and God Bless!
1 person likes this
@Gollywog (1092)
12 Jul 08
We hope things are not to bad and pray they find out soon how to treat her? I have not heard from the family yet so they have no news? I will keep you informed so maybe tomorrow they will have some answers.
2 people like this
@Gollywog (1092)
17 Jul 08
She has epilepsy and it affects the left side of her brain, they have started medication that is nine days from when it started but no change yet. They will keep incresing meds untill they have it under control. So things are looking up!
1 person likes this
@gemini_rose (16264)
11 Jul 08
I am sorry to hear about your adopted grandchild it must be a really worrying time for you. To me all children should be seen to immediately because they can take ill so fast, but I knew of someone who went through something similar and the hospital took their time dealing with that child too. Not because they were not interested, but simply because it is not unknown for children to go through stages of fitting at certain ages. Also illnesses and temperatures can cause fitting. If the parents have video of it happening and how long and how often this will help them more to determine what is causing it. I hope that it is sorted out for you all soon xx
3 people like this
@Gollywog (1092)
11 Jul 08
It sure is a worry! That is it, children can be sick then fine the next min and vice versa? I know very little about fits! she is not a sickly child so she will fight this! Thank you.
1 person likes this
• United States
16 Jul 08
I could not imagine being put in that situation with my kids. I do believe the hospital should not be so slow in trying to find out what is going on with this child. They should be working as fast as possible to figure it out so they can cure her.
2 people like this
@Gollywog (1092)
17 Jul 08
When children are concerned you move fast! The results are through she has epilepsy so meds have started. We hope things will soon get better.
1 person likes this
@Lakota12 (42600)
• United States
12 Jul 08
so sorry prayers going up for her. yes this does seem like a long time before they act should have never sent her home! hugs
2 people like this
@Lakota12 (42600)
• United States
14 Jul 08
sure hope so and your welcome . let us know ok?
@Gollywog (1092)
13 Jul 08
Thank you for your prayers we should know some answers soon.
1 person likes this
@lucy02 (5016)
• United States
17 Jul 08
I'm starting to completely lose confidence in the medical profession. It does seem stupid that they would send her home and tell her mom to watch her 24 hrs a day. What good is that going to do and how do they expect her to do that? She has to sleep sometimes. I feel sorry for the little girl too. I'm sure it must be a scary thing for someone her age to go through.
2 people like this
@Gollywog (1092)
17 Jul 08
well they have now started her on medication for epilepsy, she is happier knowing they are going to stop the fits, but this will take a while.
1 person likes this
@Debs_place (10520)
• United States
14 Jul 08
DO you mean Grand Mal seizure - if they are lasting 15 to 20 minutes and she is turning blue she is not getting oxygen!n This can lead to brain damage. SHe should be put in the hospital and given IV Valium or a similar med to stop the seizures. Is she losing consciousness then regaining...give us more info. And get her back to a doctor.
2 people like this
@Gollywog (1092)
16 Jul 08
She tends to have one then another strait after each other lasting 10 to 15min. Since I posted they have diagnosed Epilepsy and started medication it has been 10 hours since she started taking meds but no change.
1 person likes this
• United States
11 Jul 08
What do you mean when you say fits? Do you mean seizures? I am not sure if you mean a temper fit, I do not know what causes a girl start doing something like that. If it is a seizure then the girl needs to be looked at before now. I wonder what is going on with the girl. If she is in sports she may have hit her head. Good luck to all involved
• United States
12 Jul 08
You are right. It sure is terrible that these parents have to go through all this worry with their little girl. I am so sorry for them. I am wondering if she got hit in the head doing some of her sports. Good luck to them
1 person likes this
@Gollywog (1092)
12 Jul 08
I mean siezures! It was sudden and she is fit and well? It is a complete mystery. I would have thought the hospital could have moved faster with the tests?
2 people like this
• Australia
16 Jul 08
I really hope they get some answers from the tests. Slackers for not starting them sooner. She could be having these seizures for many reasons. She could be stressed, have an infection in the brain or has developed epilepsy or another seizure prone condition. Keep us updated,and I hope that the little girl can get back to a normal life very quickly.
2 people like this
• Australia
9 Aug 08
Lets hope then the medications are working. It can still take a while for them to find the right ones and the right dose, but as long as she is ok and happy in herself, she will be just fine.
@Gollywog (1092)
17 Jul 08
Well its 9 days since her first fit, they have done all tests and she has epilepsy so medication has started. We just hope it will control it soon.
2 people like this
@Hatley (163781)
• Garden Grove, California
12 Jul 08
hi gollywog glad that tjhey are taping the episodes so that the doctors can see just what is going on. children do go through this attimes when they are ill with some infection, and also if she is active in sports theres always the danger of spinal menigitis so they should really be watching her very carefully the doctors should be running tests for menigitis and other such things, as some types of menigitis are severe on normally healthy kids. good luck and God bless you and your friends
2 people like this
@Gollywog (1092)
12 Jul 08
I had thought it might be meningitis but she does not have those symptoms for meningitis! It could be some virus attaking the brain im realy not sure what to think? Thank you
1 person likes this
@sunnflr (2767)
• United States
12 Jul 08
I would have definitely taken her to another hospital or clinic for a different opinion and check up! Doctor's make me so mad sometimes! I hope they have figured out what is wrong and she is doing alot better by now. Sorry I didn't see the message yesterday but I've been out of town.
@Gollywog (1092)
13 Jul 08
We only have One Hospital that is to cover a lot of areas they live two towns away from the hospital so its the only one! they couldnt go to another they will not see you unless you are in the catchment area it is bad there has been no change in her situation.
1 person likes this
@sunnflr (2767)
• United States
14 Jul 08
I am so sorry to hear this. I was hoping things would be better for her by now. That's appalling that they won't let someone go to a different hospital. Are there any clinics in the area?
1 person likes this
@GardenGerty (157552)
• United States
11 Jul 08
I am not a doctor, or even a nurse. They will be testing her, I am pretty sure, for epilepsy, and they will check her blood to see if the minerals are out of balance, or the sugars. If it was one of those two things, the minerals (electrolytes) or sugars, it might have resolved itself in the few days. If her heart rate etc. are okay, then she is not in danger, and hurrying the tests would not help.I know it is hard on the parents, but videos will help the doctors to determine which tests will do the most good. It could also be an injury, caused by some sports accident. It could even be from an insect bite. I hope you keep in touch with us, and let us know what is determined. My husband had what looked like a seizure in the middle of May, he had some tests, and still is waiting to see a neurologist. By the time he finally gets his appointment, it will have been ten weeks. I know, we all want answers now.
@Gollywog (1092)
11 Jul 08
That is a long wait for you, every thing will be fine Im sure! Children get very upset when they are sick but they dont seam to worry like us adults they seem to take it in there stide? I always want answers Yesterday? lol Thank you.
1 person likes this
@Pose123 (21635)
• Canada
11 Jul 08
Hi Gollywog, That does seem like a very long time to have to wait, especially for a child. Has your medical care system been been going downhill recently? We had a terrific system in Canada, but I'm hearing of some problems recently. I hope it can be resolved soon. I don't think the present government want to put the money into it that is required to fix the problems. Please keep us informed as to how this little girl is doing? Blessings.
2 people like this
@Gollywog (1092)
11 Jul 08
Thank you Pose for your Blessings, The NHS here in the UK has always been in trouble no money, short staffed, long waiting lists for surgery and so on! Children should always be priority they should never have to suffer? When I have news I will post thank you
1 person likes this
@GreenMoo (11834)
11 Jul 08
Goodness! Yes, four days does sound like a long time to be waiting to do further investigations. I do hope she's OK. Her parents must be quite frantic.
2 people like this
@Gollywog (1092)
12 Jul 08
They have been by her side together, day and night, the older children help out around the house. I hope I can bring some good news tomorrow thank you
1 person likes this
• India
11 Jul 08
Hello gollywog, sad to hear, that such a young girl is suffering from epilepsy Very sad, may be its hereditary.
2 people like this
@Gollywog (1092)
12 Jul 08
She has two older brothers and an older sister they are ok and no one in the family either side have suffered from epilepsy. So I do not know what is causing the fits.
1 person likes this
@metschica25 (5399)
• United States
11 Jul 08
Dear Gollywog, I have no idea what could be wrong with her , and I hope everything works out . Hospitals can be so careless sometimes. I hope they find out soon so she can be helped . so sad Try not to worry , because she will be okay in time .
@Gollywog (1092)
12 Jul 08
She has suffered so long, Hospitals take there time! when children are involved they should make there investigations with great speed?
1 person likes this
11 Jul 08
Hello Gollwog, That is so awful, poor thing, what kind of hospital you got there its disgusting, they should have kept her in to monitor her not the parents? the fit could trigger of if she is very stress about someting, because I have a friend who does that when she is stressed out, it something to do with her brain cells. I hope she will be o.k. Tamarafireheart.
2 people like this
@Gollywog (1092)
11 Jul 08
Well not a very good one? Her GP was no better when he saw her tuesday he told her mother just to watch her for twenty four hrs? I told her mum to take her back or to Hospital as she was having the fits so much in one day. They took her to hospital but were sent home to monitor her and go back for tests? They are doing test today! I hope to hear later tonight.Thank you
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