Anyone else have babinski reflex with their MS?

@koalatbs (2231)
United States
September 23, 2008 4:12pm CST
I may or may not have MS... as my neurologist has told me. He is only 50% sure. One of the symptoms I have had before and it just started again the past few days is something like a babinski reflex. My big toe shoots up involuntarily and my foot flexes. It mostly happens when I lay down at night. Does this happen to anyone else? What else could possibly cause this besides MS? Any replies are welcome as I need help. Thanks in advance.
2 people like this
8 responses
24 Sep 08
Hi Koalatbs, Oh I really hope its not MS, my niece has MS and its not good, she has had it for six years now and she gets her good days and bad days, when she get her bad days she cannot walk, she has her wheel chair and when she manage to walk she has crutches, but it was her hands that went firstm poor love, so I pray that your is not MS please!!! Tamara
3 people like this
@koalatbs (2231)
• United States
24 Sep 08
Thanks for replying tamarafireheart. I'm sorry about your niece. Last summer I almost needed a cane but with rest I did get to the point where I could walk again unassisted. Luckily, it is not even close to that point currently, but my symptoms in my legs have been getting worse this last week. I just hope they do not continue to deteriorate to the point of being as bad or possibly worse than they were last summertime. For a few weeks I couldn't even get my foot up onto a curb in a parking lot or get into the car by myself because I couldn't lift my leg without guiding it with my hand. My husband had to help me shower too. I was afraid of falling because I was so unsteady on my feet back then. Wish me luck. Thanks again. I hope your niece is doing better lately. I'm sure it has been very hard on her physically as well as emotionally. Even though I do not have a diagnosis yet, it has really taken a toll on me. Thx again.
2 people like this
@Shaun72 (15968)
• Palatka, Florida
24 Sep 08
Hi I have had ms. I also get spacisty which means my muscles shake on un controled . I have never heard of babinski reflex before. Of course I haven't had that problem yet. Mine is mostly my legs and arms and my lips. Best of luck to you getting diagnosed.My name is Shaunee
2 people like this
@koalatbs (2231)
• United States
24 Sep 08
Hi Shaunee. My name is Jill. I mostly have my symptoms in my legs too... numbness was my first symptom. I also have pain & a lot of stiffness too. The stiffness comes and goes and gets worse when I do more physical activity... like cleaning house, walking the dog, grocery shopping, doing laundry... basic stuff. I really wish I could find out what it is so I can deal with it and get treatment, if possible. It is so very very frustrating not knowing. I am on Gabapentin (neurontin) for nerve pain & have been since the spring of 2007. I saw a rheumatologist earlier this past spring and he thinks I might have fibromyalgia too, but says he definitely thinks I also have something else going on besides fibro. How long ago were you diagnosed? Can you describe your symptoms in more detail for me please? Lately in my legs I get a really bad internal pain (so hard to describe). If I press on my leg in a certain area it feels really freaky & extremely sensitive. Kind of like it is hypersensitive to touch and certain water temps too. I do occasionally get some numbness in my lips, mainly left-sided and very faintly on the left side of my cheeks & chin. This hasn't been too much of a problem with me though... thank goodness. My legs & feet and occasionally my fingers have jerky movements usually when I am sitting down is when I notice it more. I do not think it is very noticable to my family or other people yet though. It is pretty mild currently. I'd love to hear more about your symptoms Shaunee. Hope all is well with you and that you are having a good day today. Take care ~ Jill
1 person likes this
@Shaun72 (15968)
• Palatka, Florida
25 Sep 08
Hi Jill I got diagnosed with ms 6 years ago or on 1/03/2002. I had had proberlems years before but I just didn't know what was going on. I get pain a lot in my arms and legs espically after I have done to much. I have had numbness plenty of times espically before I was diagnosed. I also take Gabapentin for pain. I am on the ms shot treatmenat rebif. So far it has helped as far as my ms getting any worser then what it is now. I also have had problems with my vision. My eyes have gone blurry and also I have had double vision which is pretty scary and also had Optic neritius which really scared me because I lost vision in one eye luckily it came back and my eyes are not double right now. Of course I had surgery for my double vision because it went permently. Now it is fine. I also have bladder probelms. I take pills to control this but it doesn't always work. Ms Effects about anything that deals with the nervous system Everyone is different though so don't let me scare you or anything. I am just telling you what has happened to me so far. Shaunee
2 people like this
@koalatbs (2231)
• United States
25 Sep 08
Hi Shaunee - Thanks for the info about your symptoms that you have experienced. Luckily, I have not had any eye problems and I hope I never do. Sometimes, however, my eyes do feel weird (hard to describe) so I went to see an opthamologist a few months ago for an exam. She said my eyes were fine. Having the double vision must have been very scary for you. I am glad that your eyes are doing better now. I have thyroid disease which also affects the eyes. About 12 years ago, when my thyroid was really out of control, my eyes bulged slightly. I was devastated and hated the way I looked. I saw a plastic surgeon who specializes in thyroid eye disease and he performed eyelid surgery on me. He lowered my upper lids a bit to help camoflauge the bulginess. It did help a lot. My eyes do not look exactly like they did before, but they are much better. Thank goodness for that. I don't know if I told you in one of my prior posts but I constantly have foot & leg numbness. It has never gone away. It does lessen with the more rest I give them but never goes away completely. I think I also have sciatica which doesn't help my legs any and just contributes to the pain. SOOO much fun, isn't it?! It is really hard sometimes to deal with. I know you, and everyone else who has MS or is suffering from something similar, understands what I am saying. I don't always deal with it very well. On positive thing that has happened since this whole problem began is that I forced myself to commit to losing some weight! When I first began having symptoms I weighed about 225 lbs. Now, I am down to about 185. I figured that if I am going to be having some many problems with walking I better lose some weight or it will just make it that much harder to get around and take care of myself. I am currently at a plateau with my weight but I am hoping to get back on track again soon and hopefully lose some more. Wish me luck! Thanks again Shaunee. I really appreciate all of your help. Keep in touch and take care. ~ Jill
1 person likes this
@GardenGerty (93717)
• Marion, Kansas
24 Sep 08
http://www.nlm.nih.gov/medlineplus/ency/article/003294.htm This website lists sixteen different syndromes or diseases that can be indicated by babinski's reflex. I was not sure what it was, until I read about it. Looking back, my husband, who had ALS, had this for a long time. No one ever said anything about it being a symptom or indicator. The general statement is that Babinski's reflex is indicative of damage to the upper motor neurons. Sometimes it is only temporary.
@ElicBxn (60443)
• United States
24 Sep 08
wow, this sounds like what what happens to the roomie - think she might have something like that
1 person likes this
@koalatbs (2231)
• United States
24 Sep 08
Hi ElicBxn - Does your roomie have Multiple Sclerosis or just has this type of thing happen with her feet too?
2 people like this
@ElicBxn (60443)
• United States
24 Sep 08
no, she just gets these weird cramps in her feet/legs She says its because of her feet getting cold - but I don't know - she can be in denial about things happening to her. but she definately does NOT have MS.
1 person likes this
@koalatbs (2231)
• United States
24 Sep 08
Thank goodness that your roomie does not have MS. I wouldn't wish that on anybody. Thanks again ElicBxn.
2 people like this
@1grnthmb (2063)
• United States
23 Sep 08
I hope your doctor does a brain scan to confirm the MS rather then just leaving you in the air about it. I do not have the reflex problem, infact mine is somewhat the oposite in not having much reflex at all. That is all part of the neuropathy.
1 person likes this
@koalatbs (2231)
• United States
24 Sep 08
I have had a brain scan done within the past year. It was normal from what I interpreted from my neurologist. I have had many MRIs also since this whole thing began over a year ago. It is extremely frustrating not knowing what is wrong with me. My prior neurologist (don't have one currently) told me that he did see "spots" on my MRIs that indicate possible MS. I don't know what he really means by spots. He showed me the images of my MRIs in his office but I could have been looking at a cow's scan and wouldn't have known the difference! LoL! So, you said you don't have much of a reflex at all. Mine varies from time to time. The more activity I do, the worse my symptoms, especially in my legs. Numbness, stiffness, pain, twitches... I could go on and on. Do you have a MS diagnosis? If so, how long ago were you diagnosed and what are your main symptoms? Thanks for replying. Every little bit of information helps. Take care.
1 person likes this
@1grnthmb (2063)
• United States
27 Sep 08
No, My Neurologist ruled out MS. They thought I had ALS and I was sent to UCSF Medical Center and there it took them almost six months to rule that out. I have no Idea what I actually have. They say I do have Neuropathy but that is not all I have wioth my symptoms. I have had four different Neurologist and all of them can not figure out what is causing my problems. It would be nice if they could find out what I actually have.
1 person likes this
@bellis716 (4807)
• United States
25 Sep 08
I have MS, but I have never had the symptom you described. I have not had optic neuritis, either, and that is probably the most common symptom of MS. At a seminar a few years ago, I heard a neurologist state that he knew of 86 different possible symptoms of MS. Before my doctor would give me a definite diagnosis of MS, I had to have 2 MRIs and a spinal tap. You need to contact the National MS Society.
1 person likes this
@koalatbs (2231)
• United States
25 Sep 08
Hi bellis716 - Thanks for replying. I think it really helps me to be able to talk with other people who have MS so that I can compare symptoms since I do not have a diagnosis as of yet. I have not had any optic neuritis either. Thank goodness. I have had more than 2 MRIs and a spinal tap as well. I have also had a spinal angiogram. The angiogram was normal. However, the neurologist who ordered the MRIs stated that he did see what he called "spots" on my MRI but I guess they were not enough to be able to give me a definite diagnosis of MS. At this point, he said we just have to wait and see if any other new symptoms emerge. He also said the longer I go without any new symptoms, the less likely it is that I might have MS, which is good. But, then again, what is it?! It is very frustrating for me as I am sure you know. How long after you began showing symptoms did it take for a doctor to diagnosis you? I've heard that it can takes years in some cases. Thanks again & I hope you have a good day today. ~ koalatbs
• China
24 Sep 08
good
1 person likes this
@koalatbs (2231)
• United States
24 Sep 08
Huh??!
1 person likes this
@stephcjh (32385)
• United States
24 Sep 08
I sure hope that you do not have MS. I will say a prayer for you not to have it. I do not know alot about MS to help you out with the answer to this either. I wish you better health.
1 person likes this
@koalatbs (2231)
• United States
24 Sep 08
Thank you very much stephcjh. I really appreciate your thoughts & concern about my physical problem. Take care and I hope you are having a great day!
1 person likes this