Disabled people

@maximax8 (27049)
January 7, 2009 10:24am CST
My son has spina bifida and it was not a condition I was aware of before I found out at 36 weeks pregnancy. He has a shunt in his head, needs catheter care and has one weak leg, one strong leg. He is a happy little toddler. Do you know about any disabilities? I know about Down Syndrome but not many others.
4 people like this
10 responses
• United States
7 Jan 09
The company that I, along with a fellow social worker started, is called Aging & Disability Advocates. I have worked in the field of disabilities for close to 43 years. I enjoy surrounding myself with people who have taken their life circumstances and survived and thrived. I learn a lot from those individuals. It has enhanced and enriched my life and helped me stablize and improve my own outlook and thus success. Thank you for sharing your son's wonderful attributes and challenges. I am certain with your support and his beautiful attitude he will go far in life. I am aware of Prader Willi syndrome, autism, severe, moderate and mild mental retardation, Kleinfelters syndrome, Fragile X syndrome, cerebral palsy, aspergers syndrome, epilepsy, severe and persistent mental illnesses, spina bifida, tuberous sclerosis, quadraplegic and paraplegic paralysis, traumatic brain injuries, etc and etc. I have found that if we focus on the disability we miss the person behind it, so I believe in the use of people first language and person centered planning. If I can provide any level of support with your son, please feel free to pm me. Good question, thanks for posting it.
@nannacroc (4049)
7 Jan 09
I know very little about disabilities in spite of being a qualified nursery nurse. The training included a very small amount about types of disability but not much about how to deal with children who had them. I did work with two autistic children and found out quite a bit about their disability. I'm glad your son is happy and I'm sure you get a lot of pleasure from having him.
1 person likes this
@sudalunts (5527)
• United States
7 Jan 09
My nephew was born with born with Down Syndrome. He was hospitalized for the first five months of his life. He had to have an oxygen tank in his room, and after he turned one year old, he had heart surgery. He is now four years old, and is doing very well. He goes to school, and is having speech therapy, other than his speech you would not know anything is wrong. He too, is a happy little boy.
1 person likes this
@bamakelly (5194)
• United States
7 Jan 09
I have heard of disabilities in children. Autism is something that has become quite prevalent in society. It is a sad disorder and hard for parents to deal with because autistic children have a hard time interacting with the rest of society. Down Syndrome is also something that happens but there are so many good parents out there that deal with it everyday. You are a special woman and have a special son. Sounds like you are going to have your struggles but I am glad you carried your pregnancy to term. Children like your son need extra attention and love and he is going to be so worth it. I have a young son with no health problems and he can be hard to handle sometimes just because he is five and is very energetic and curious. I think that God gives us what we can handle. That is if you believe in God. You are a strong person and good luck to you and your son.
@writersedge (22579)
• United States
17 Jan 09
I have a friend who also has spina bifida. She writes for a publication for the SBA. She's a really, really cool person. Do you get any materials or belong to any organizations. Disabilities, I'm a double certified teacher who grew up in a house with relatives that all have different disabilities. If you're aren't disabled in my family, there's something wrong with you. The list would be way too long to go on here. But a few you might want to check out are: Learning Disabilities Tourette's Syndrome 60 IQ and below, the determination for Mental Retardation 70-89 IQ Dull designation Parapelegia (spelling?-legs paralized) Hearing impairment Blindness That's just a few of the ones in my family.
@sweetyethot (1738)
• China
9 Jan 09
I dont know clearly about any disabilities. I see a lot of old people have gibbuses.Thats a kind of disability when you grow old I think.
@marketing07 (6266)
• South Korea
8 Jan 09
hello maxima,it was sad to know about your son situation..i think spina bifida has no treatment...hope and pray for you and your son..have a nice day
@sacmom (14338)
• United States
8 Jan 09
Bless his little heart. My oldest son is autistic. My husband and I didn't know anything about it, but after we started reading articles about it we suspected that our son had it, though we didn't actually get him tested until he was almost 7 years old. I can't think of any disabilities right now, but then again it is almost 3 in the morning. If you don't mind my asking how do you manage to travel with your son? Doesn't it get difficult at times?
@mipen2006 (5528)
• Australia
7 Jan 09
I don't know much about spina bifida, but know your son will get all the love and care from you, We usuakky learn about these disabilities only when they affect us or someone we know, All the best max.
@bombshell (11268)
• Germany
7 Jan 09
sorry to hear about your son maxi.but never heared or encounter that kind of disabilities.