Can You live a Quality Life with Chronic Pain?

@zandi458 (28102)
Malaysia
May 8, 2009 8:29am CST
Are you living with chronic pain? We all wish to live a quality life but not many people are blessed with good health, they always have health issues and hospitals have been their haunt place or second home. I feel sorry for people who are sick who now need to spend most of their time in doctors consultancy rooms, wasting a lot of time which deprived them of a quality life in doing more worthwhile things. Being sick is unavoidable, especially life threatening sickness. As much as you want to be present with the people you love but your constant aches often interfere with your ability to do just that. Being in that painful situation, the best option maybe is the need to change your life in many dramatic ways, listen to your body. You need to find a comfort zone within your life to save your sanity while you live a quality life with chronic pain. Focusing on the pain will deter you from focusing on what you can do and appreciate your life.
7 people like this
21 responses
• Australia
11 May 09
As one who has been on heavy duty pain killers for a back condition for the past twelve years, I would have to say that no, you can't live a quality life with chronic pain. However, that doesn't mean you can't live an active and productive life despite the pain. It just isn't very enjoyable most of the time. Lash
2 people like this
@zandi458 (28102)
• Malaysia
12 May 09
Being sick is an opportunity to experience ourselves in a new way. I agree with you that having a chronic pain will put a dent in our life which should have been a fulfilled life if we are pain free.
@zandi458 (28102)
• Malaysia
14 May 09
You are able to accommodate and adjust to this major challenge and this require no small degree of sacrifice. Accepting the inevitable has given you the freedom to think constructively and made the right decision to study and complete your PhD program. You have indeed achieved a fulfilled life despite the condition you are in which may only be a dream for most people who are trouble free. You are a very determined and strong willed person and see your pain as no barrier to success in life.
• Australia
12 May 09
"I agree with you that having a chronic pain will put a dent in our life which should have been a fulfilled life if we are pain free." Zandi, I think you misunderstand. I didn't say anything about an unfulfilled life - for instance, I completed a PhD program 2 years ago despite being in constant pain throughout the nine years of study, I just didn't have a lot of fun most of the time because of the pain. And right now I am putting in 2 hours a day of exercise and 2 hours of yard/garden work (at 65 years of age) despite the pain, and I'm quite sure there are many others in pain who manage similar things. Lack of fulfillment in this context comes with giving in to one's pain. Lash
2 people like this
@bestboy19 (5478)
• United States
9 May 09
I think many of these people with chronic pain are that way because they don't take care of themselves. They don't exercise or eat right and suffer the consequences. I also believe that many of these people enjoy poor health. That is how they get attention. If you don't fall into either one of these categories, and you keep going to the doctor and getting no results, stop wasting your money. Instead, ask God to heal you and believe that He will.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
I do believe in prayers for healing. God listen if we ask for mercy and to heal us of our sickness.
@bestboy19 (5478)
• United States
11 May 09
Lash out if you like, Grandpa, but what I said is true. Many people, not all, are in pain because they don't take care of themselves, and many, not all, do use their sickness or pain to get attention. As for you, do what you want. Stay in pain or ask God to heal you. It doesn't matter to me which you do. I don't recommend shooting yourself. You probably wouldn't do it right and end up in worse pain than what you are in now. It's a shame you're such a hateful, bitter old man.
1 person likes this
• Australia
11 May 09
Another frightfully insightful and compassionate post from Bestboy. Perhaps someone should point out to you that chronic back pain, for instance, from a degenerative spinal disease like Ankylosing Spondilitis or Forestier's Disease is unavoidable, and that even when one follows the orders to lose weight and exercise, the pain does not stop even though one is definitely better off from a mobility and longevity viewpoint. In fact, the pain often increases because of the exercise. And I was particularly taken with the psychological profile of sick people as attention-seeking malingerers. But of course, you're so right, I just love being in constant pain, being unable to breathe most of the time because of my lung condition, and being unable to sleep properly because of those conditions and the mechanical problems with my nose and throat that cause chronic sleep apnea, it is the high point of my life being able to dine out on the stories of my poor health, and I really enjoy being irritable and cranky most of the time. Mea culpa, I'll just go and shoot myself shall I? It would be a damn site more effective than relying on belief in some bearded git in the sky. You need a brain transplant. Lash
1 person likes this
@Lakota12 (42600)
• United States
8 May 09
I do know people with pain all the time and they do there best to live with it and do things to get mind off it. No good setting in docs office all the time. and if you can help someone to forget the pain even for awahile that will help them I would think!
1 person likes this
@Lakota12 (42600)
• United States
10 May 09
I Hate to go to Doctors and find any excuse not to go. But sometimes like heart attacks ya hve to deal with them!
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
It is unavoidable as sickness comes to us unannounced so the need to visit the doctor often. You are right we need to talk to them so they'll forget they are in pain.
@Loverbear (4918)
• United States
9 May 09
I live with chronic pain, and have for the past 26 years. I find that if I manage to keep myself busy I don't concentrate on the pain as much. So, I have a lot of different crafts that I do, plus I take college courses and manage to find ones that I really need to concentrate on. I am thrilled to say that I am getting one of the areas of constant pain taken care of in June. I FINALLY got a doctor that has stated that I do need a complete knee replacement! I am soooo stoked! I realize that I will have a period of recovery, but still the prospect of being able to walk without as much pain and misery and not have the horrible pain that causes screaming nightmares interrupting my sleep is worth the recovery time.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
You seems to be doing well with your pain management. I am sure you have got used to your pain as you have been suffering for such a long time.
@zandi458 (28102)
• Malaysia
11 May 09
Looks like you have a strong fighting spirit. You are quite active and this helps in your quest to gain control of your pain.
@Loverbear (4918)
• United States
10 May 09
I can't say that the past 26 years have been wonderful for pain control. I have done ferocious battles with doctors that have said that I am a substance abuser, I always come out on top of those battles, with the doctors apologizing for their statements. I am ready to take on the American government next. With the stipulations, regulations and interference in peoples lives, they have decided that we are a nation of idiots. They feel that we need to have THEM regulate our pain medications and tell us that we have been bad and taken too much medication. I take vicodin and recently had to switch to Tylenol 3 (which is like taking an aspirin to knock yourself out for major surgery!!!) so that the doctor wouldn't get in trouble. I realize that the regulation of medication is because parents don't monitor their children and the kids get into the parents pain meds and get high. But why do responsible adults have to pay such a high price for a few idiots? When I found out that I would live with chronic pain for the rest of my life, I cried for several days straight. Then I looked at the situation and realized that "I" was going to have to make the choice. It was a hard choice to make, and there are days that I hurt so bad that I would do anything to get rid of the pain. In fact I just went through 7 weeks of pure hell because of the pain in my neck. I had to have four nerve block shots which dulled the pain but didn't stop it. I swallowed pain pills and Tylenol like a mad person. I even went to class, drove, and slept with ice packs on my neck. About 10 days ago the pain finally subsided. I am still going to see a neurosurgeon to see what can be done. When I finally came out of the funk after finding out about being in never ending pain, I started making teddy bears. I got so engrossed in teaching myself how to make them, that the pain was shoved to the back of my mind. Soon I was designing them and then I was working in different materials. I discovered that if I could find something that required my full attention the pain wasn't so bad. My Mom used to use how active I was as a measure of my pain levels. If it was a really bad pain day, I would find the most difficult thing to do. If the day was low on the pain scale I would be laid back and fun to be with. I have always been a hard headed determined person, and I always looked at life as I could either accept things or choose to change them or find a way to live with what I had to. I was that way as a small child. When I was three I wanted ice cream before dinner. Mom said no, so I got on my tricycle and peddled my way, over a mile, to the corner store. I had to cross a busy street to get to the store, but that is where they found me an hour later. My parents were in awe! That tenacity and stubbornness has kept me going. I guess with chronic pain you have two choices. You can let it rule your life, or you can choose to rule it. The latter is the hard choice, but I found that it gives me a better quality of life. Sorry about getting long winded, but I did want to say that I really haven't totally adjusted to the pain, I just chose to do battle with it and eventually win the war.
1 person likes this
@sharra1 (6340)
• Australia
12 May 09
Hmmm it depends on what you consider a quality life. I had nothing wrong with me until I was 50 and I would have regarded my life as ok as it was, then I came down with Chronic Fatigue Syndrome. At first I thought it was just a matter of being constantly exhausted but over time it has made my life very difficult. I suffer from chronic low level pain that normal aspirin will not fix and so I am on pain medication from my doctor. When I am lucky I have days where I take very few and the days are not so bad. However there are so many symptoms and the worst of all I find are the memory loss and fuzzy brain. I can live with the pain, especially when it is not too bad but there seems to be nothing I can do about the mental deterioration. My life does not have the quality of good health I had when I was younger but I get as much pleasure out of my life as I can. I have simply changed my expectations to fit my current health level.
1 person likes this
@zandi458 (28102)
• Malaysia
12 May 09
I think now as we age, we are constantly being bombarded with body aches. The screws have gone loose after all these years of wear and tear and we can no longer sustain the body strength that we once had. Be tolerant of pain. It is teaching us something. To take care of our body as we are no longer young and to change our lifestyle to fit the age we are in.
1 person likes this
@sharra1 (6340)
• Australia
13 May 09
I am learning to live with my illness, my pain and my aging body. I believe I have reasonable quality of life. The trick is to deal with the pain, to learn to cope with it and push through it so that you manage to do what you want. To give in to despair would be to give in to misery and then life would not be good. It all lies in our attitude and ability to cope.
@savypat (20216)
• United States
9 May 09
No matter what the pain is always there, some times it's so bad it occupies my entire attention, but most of the time it's only in the background. I use yoga to cope and it helps a great deal.
@zandi458 (28102)
• Malaysia
10 May 09
Yoga and meditation helps in easing pain to certain extent. I think you are doing the right thing by practicing yoga.
@zandi458 (28102)
• Malaysia
11 May 09
Totally dependent on pills doesn't help us lead a normal life. There will be times when the attack come suddenly like time bomb which leaves us groaning in pain. Maybe a change of lifestyle, adopting new hobbies can divert your attention from your pain. Life will have a twist for the better.
• United States
10 May 09
I have had a chronic pain disease for nearly three decades. While it feels intolerable at times, in that length of time I have found things that help even if you are on medication. Ice and heat, pillows to support the painful areas, knowing your limits, gentle exercise, nature, inter-action with caring people, and meditation are some of the things that help me. Yes, I do believe one can build a quality life even when in constant pain. My very best to you in this, Pat : )
@stephcjh (38473)
• United States
10 May 09
I think that would be so hard to do but I know someone who tries their best to live a good life with it. I know it would be very hard for me to do.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Just think positively, you'll be alright.
@pyewacket (43903)
• United States
10 May 09
I have my bouts of pain zandi...a lot of joint pain. Some days are good, some days are hell with me, but I at least am lucky that I do have my computer so I can be productive and do things. I've never been one to sit and sulk if sick or in pain but would rather keep busy. By keeping busy, I can focus my attention off my pain or illness. I only watched a wonderful special on Thursday about the actor of the old comedy show Family Ties, Michael J. Fox. He was diagnosed and has endured Parkinson's Disease that has left him a shell of his former self..he constantly twitches, can't walk completely right and so forth. Despite his malady, he considers himself an optimist and continues to act despite his problem...he has a very supportive wife who he has been married for a long time and three beautiful children. I'm sure there are times he wonders just why he was inflicted with his disease but refuses to let it get to him and continues to live each day to the fullest. Despite some of my own problems, I too like to think of myself as a cockeyed optimist..yes I get mad at myself sometimes, but then when I hear of other peoples medical problems I think to myself..."Hey I really don't have it so bad"
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Joint pains are closely associated with our age. I have not experience yet (touchwood) but my BP is one that I need to be careful about. I see that you are busy with your writings and your pets, this might help in forgetting the pain you are in. You're right, they are worse sufferings out there and we should be thankful for not having to suffer much.
@littleowl (7157)
8 May 09
Hi zandi, 16yrs ago I broke my back, but am fortunate to be able to walk etc and do things as everyone else does..at times the pain does get bad at the moment I am having physiotherapy for it, it helps but not a lot, but althought the pain is there daily I tend not to think about it and a lot of the time am able to get on with things without feeling anything. so as you say it is a good thing not to focus on that pain otherwise it can render you not to do things...hugs LoLo
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Hi littleowl, when in pain it is best to block the mind of our sufferings. Create a positive mind and this should help in the healing.
@littleowl (7157)
10 May 09
Hi zandi, I am a great beleiver of positive thinking and do do that do it does help the pain a lot, and as you say 'blocks' it out...LoLo
1 person likes this
@Annmac (949)
8 May 09
My Mum had a lifetime of chronic pain yet she was the most positive and happy person you could ever meet. She spent long periods confined to bed and even when she was bed-ridden for her last three years, she found things to do.(She would have loved the Internet and sites like this) She taught me a valuable lesson, it's not being in pain that stops you living, it's using it as an excuse not to. Like her I've never been blessed with good health and the hospital is my second home but even when I'm waiting at the hospital for yet another appointment, I don't sit doing nothing. I take my sketch book and draw or I take some cross stitch and sew. Sometimes I get so involved that being called in to the Doctor is an unwelcome interuption. lol. I'm lucky in that I also have a job that is flexible and as I've always been a carer for others (disabled and elderly) I am reminded constantly that quality of life is a state of mind, and to be thankful for what I have.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
I think you have adjusted your life accordingly despite the pain you are in. I am sure you managed to reduce the pain by diverting your mind to doing something.
• Trinidad And Tobago
8 May 09
Sad to know about the situation at home,, I d like to add ur name,, ,,Verrry meaningful comments I must Mention
1 person likes this
@ANTIQUELADY (36440)
• United States
8 May 09
as usual zandi, great discussion. i do live w/pain every day but it is not going to get me down. there is nothing that gets on my nerves worse than someone grunting all the time. u have to learn to live w/alot of things u don't want to. pain is one of them. u can try to control it instead of it controlling you. have a great weekend.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Best way of managing pain, let us control the pain rather then the pain controlling us. With this we can still lead a normal life despite having illness.
1 person likes this
@ANTIQUELADY (36440)
• United States
11 May 09
my sentiments exactly. thanks, zandi.
1 person likes this
@modstar (9605)
• Philippines
10 May 09
I don't think i can live a quality life if i am suffering from chronic pain or illness. That would really be hard because most of the time, it will lead to depression and it's the least state of mind that we need in times like that. It's pretty hard to be upbeat about life in a situation like that. Depression is eating us and i don't think there's a way for us to enjoy. Maybe just for a little bit like smile but not really like to party out. I guess the thought of dying always come to mind that we find it unnecessary to the point of being hopeless.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
It is indeed hard to bear the pains and needing to lead a normal life. But maybe like most of the responders here admit to diverting their attention to the real pain and keeping themselves busy while on medications should play down the pain.
• Philippines
12 May 09
Hi zhandie. I have read a book and it's really touching what the authirs says. Just wanted it to share with you..he says " the truth is, no circumstances can undermine God's potential for ur lives. God's choice of ministry for us will fit in with even the difficult events in out past lives. I did not realize it at the time, but God would one day redeem my family circumstances or griefs for His glory." why i am sharing this because no one knows what will happen for tomorrow. If you're suffering for pain right now physically or spiritually, God will redeem you body into a shining glory. He will took off all the pains and griefs that most people suffering right now. We must believe on Him that He works things for good. Keep on the Word of the Lord and surrender evrything before Him. His yoke is eay and His burden is light, cast your burned on Him!
1 person likes this
@zandi458 (28102)
• Malaysia
12 May 09
Thank you for sharing what you have read. Those words are indeed an inspiration. What a joy it is to know that you will but put your self under the healing power of God now, that God's power will flow through you, healing every fibre, every muscle, every drop of blood! God is a Great Physician.
@wgh423 (65)
• China
11 May 09
i'm not living with chronic pain,but i have a surgical operation four years ago, the doctor told me that my disease maybe recur within 5 years, the percentage is 30% of this kind illness. So at the short time after opertion, i always worry about the recurrence,which makes me nervous.But after several months, i can adjust my temper and appreciate the life. So i think if we can adjust ourselves and don't always focus on the chronic pain, we can still live a quality life...
1 person likes this
@zandi458 (28102)
• Malaysia
12 May 09
You have overcome your chronic pain and the thing that has become the barrier in living a normal life is the thought of the relapse of the disease. You should not occupy your thoughts on the recurrence of the disease as it will only jeopardize your daily happiness. Don't look at the illness, see the lesson instead.
@KrauseHome (36448)
• United States
10 May 09
Some excellent comments here. Ones that many people could learn from. I know myself with being Insulin Diabetic and having RA, and survived Chronic wounds etc. there are days when my life is harder than others, but I do truly believe that you can learn to live with Chronic pain. You just need to learn to focus on things that are Good, and will help you and go from there. When you keep busy and do things you enjoy, your life will go so much better for sure.
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Yes, Krausehome, after reading through all the responses I come out better equipped in handling some of life miseries and when pains come rushing to me before reaching for medical care.
@riyasam (16556)
• India
8 May 09
You may not be able to totally rid your body of pain, but you can improve your quality of life through effective pain management. To be as effective as possible at reducing the impact of pain, you have to make pain management a part of every aspect of your life. The more you know about what causes and reduces pain, the more likely you are to minimize your pain while still staying active. In fact, you can keep notes on which activities are the best and worst for your pain. It takes dedication and determination, but pain management can work for you if you are willing to do the work.
@zandi458 (28102)
• Malaysia
10 May 09
Thanks riya, I learn something new from you. I think that is one way of keeping pain at bay, keeping notes of our activities and as you suggest pain management. This is something I need to remember.
@derek_a (10874)
9 May 09
Yes, I think you can. I have had chronic pain that gets intense at times for around 20 years now. I once injured my shoulder and neck that has given me problems ever since. I used meditation to quit fighting what is inevitable and quite often I am not even thinking the pain is there.. I usually do deliberately focus the pain without resistance and it fades away into the background. At first, it seems to get worse, but then eases. - Derek
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Glad you found meditation a relieve to your pains. I am also into meditation and it is a great help in my long history of high BP.
@Rollo1 (16679)
• Boston, Massachusetts
8 May 09
Yes, you can absolutely have quality of life when you have chronic pain. Not all conditions that are chronic are terminal, and the pain will not always increase but rather usually be at an expected level. It's what you do with your life that matters. There may be many things that you can't do, things you used to enjoy but now are beyond your limitations, but that doesn't mean you can't find new and interesting things to engage your mind and give you purpose. I can speak about this because I have a chronic condition, one that is not going to get better, and may get worse. Over time, you learn to live through the pain and the physical limitations. By living through, I mean really just breaking through that wall and putting it in the background rather than having it staring you in the face all the time. It's still there, but you are looking forward and so it's not the first thing you see in your life.
1 person likes this
@zandi458 (28102)
• Malaysia
9 May 09
A good approach to numb your pain. Focusing on your existing sickness does not help to get rid of it rather pretend it does not exist might help to go on with life as normal as possible. Thanks Rollo for sharing your experiences which might be of help to some people in the same situation. Life is full of challenges and we need to battle all the barriers that might be a hindrance to living life to the fullest.
• India
26 May 09
Hello my friend zandi458 Ji, Even today, I am suffering with RA/DM2/HTN/UTI. But mu hubby made me to live like a normal life. There was a time, when pain in all my joints was o much that I could not get up before 9 AM in the morning. But my hubby made me carry on, during that time only we undertook long Flt of almost 22 hrs to US. I remember, my hubby councelled me to live with pain. I would never get on to any vehicle without any support. I could never sit directly on floor, what a life, but mu hubby made me to live. Now after correct proper treatment, I am able to walk. So even with pain, if one does not give any importance, one can always live and lead quality life. There should be will to live. May God bless You and have a great time.[em]thumbup
@kawalnarang (1095)
• Trinidad And Tobago
8 May 09
I wish there was a magic solution for all types of illnesses,I have been in pain for weeks,, I have seen patients, suffering,particularly wounded soldiers after war,,others in clinics etc,, I can't forget those scenes,,also I wish there was a magic touch( somebody who had time to rub the painful areas)of the people who are generally around,,Dear The need to find That comfort zone is/was always there,,Only the lucky ones receive it,, And I love to mention that the lucky ones are probably those who are who live the Right kind of Lives,,Personally I believe I pay for my deeds,,
1 person likes this
@zandi458 (28102)
• Malaysia
10 May 09
Why do you pay for your deeds? karma? I am sorry to hear that you have been in pain for weeks. This doesn't sound good but hopefully you are recovering by now. Go for body massage, it is quite effective.