Respectful or disrespectful?

@dawnald (85135)
Shingle Springs, California
May 30, 2009 4:15pm CST
I recently found out I have Asperger's syndrome and the husband and i are trying to figure out what that all means and how we think differently and all that. Back in 2004 my mom passed away. She was quite eccentric and secure in what she believed in and what she wanted. She left wishes that there be no funeral or memorial service or anything. Well, we respected her wishes. I mean, my dad and sibs and I all got together and talked and spent time together, but no service or anything. Later in 2004 Richard's dad passed away.He was a very outgoing, social person. They had a huge memorial with flowers and photos and food and all sorts of things. So here it is 5 years later and he's telling me that what we did for my mom was very "Aspergian". We took her wishes literally and did nothing but that it was the wrong thing to do. And I said, whether her wishes were right or wrong, we respected her wishes. He said, "you just don't get it". and I said "no, YOU don't get it." See his family isn't very good with boundaries and if they disagree with the way you are doing something they don't just "respect your wishes", they speak up and try and nudge you in the direction they think you should go. So I don't think this is so much an "Asperger vs. Neurotypical" difference as a matter of respecting boundaries. He feels pretty strongly that we were wrong not to do anything. What do you all think?
7 people like this
10 responses
• Saint Lucia
30 May 09
I think you guys did the right thing by respecting her wishes.I had my sister who passed away in 2006 and she always said that she dont want a eulogy,we respected her wishes and didnt have one.
2 people like this
@dawnald (85135)
• Shingle Springs, California
30 May 09
I think so too. See the response below yours. I think that was a very good point that my husband didn't get what HE needed out of it...
@mommaj (23112)
• United States
31 May 09
My son is classic autistic so I am laughing at your Asperger vs. Neurotypical comparison. I would have to say it's more of an insensitive jerk think of himself vs. a daughter and family making an emotional but loving decision. Things can't always be about "me", sometimes things have to be about others. The world doesn't always center around us. I am also not saying your husband is an insensitive jerk. He is being insensitive though. It was actually very caring of him to wait so long to bring this up. I think maybe he has some issues that he needs to work out with your mother dying. If he feels he needs to celebrate her life can't the two of you just have a quiet time talking about her or does he need the whole community around to do that? Maybe the two of you can visit "her" or her special place and this would help him lay her to rest. I can understand how he feels that it's not a finale to someone's life. I think that each person has the right to choose there service or the lack there of. Good luck to you. You are probably a very artistic person, or maybe very good with numbers and I am sure you are a person who gets things done. I find it very interesting no one has diagnosed you with this until now. It's not always heriditary or genetic. We had the testing done to find out. (I think my husband wanted to blame my family. LOL He just wants a reason and sometimes there are none, at least not scientific)
1 person likes this
@dawnald (85135)
• Shingle Springs, California
31 May 09
I'm pretty sure my dad has it and more severely than I do. And my son has autism... My husband is just figuring things out and sometimes he blurts things out. I figure them out in my head first but he has to articulate them. And sometimes what comes out is very insensitive...
@dawnald (85135)
• Shingle Springs, California
1 Jun 09
Oh well, there went my one liner. Just kidding... Well that is not so strange, I think. From what I've been reading, they are discovering that autism may be a combination of quite a few different genes, so maybe it took a unique combination of genes from both sides for your son to get autism.
@mommaj (23112)
• United States
31 May 09
Since your husband is figuring things out, blurting out what he is thinking doesn't mean he's insensitive. Isn't that a form of autism too? Maybe terrets disease? Autism isn't in our family as far back as we have been able to go. It's a little strange that he has it. We can't find any neurological diseases. Cancer, diabetes,blood pressure and cholestorol run on both sides of the family though. That's why we had the genetics testing done on my son. We were curious as to where this came from. How did it magically appear in our little boy. And before anyone gets cute we are the biological parents. :-)
1 person likes this
• United States
6 Jun 09
Interesting discussion, What has me wondering is the neurotypical. What an interesting concept, I think the wishes of your mother were odd but well meaning. As for you having Asperger's that is something that I could not pick up on in your writings. Sometimes doctors make a diagnosis based on flawed perceptions and then often times they grade the diagnosis in levels of severity, so do you have a mild case of Asperger's? Do you want to explain more about Asperger's?
1 person likes this
@dawnald (85135)
• Shingle Springs, California
7 Jun 09
The Asperger's is self diagnosed although our counselor thinks it's probably a good one. May go out and get a formal diagnosis, may not. Here is a blog I've posted that lists some of the characteristics that apply to me: http://ww2.yuwie.com/blog/entry.asp?id=53662&eid=598350
1 person likes this
@koalatbs (2229)
• United States
1 Jun 09
Hi Dawn - I think you and your other family members did the right thing by your mom. Obviously, your mother made herself very clear about what she did or did not want when it came to her passing. I think it was very respectful that you did as she requested. It doesn't seem like her request was a frivolous one time passing in the night moment. I definitely do not think that you did anything wrong. Jill
@dawnald (85135)
• Shingle Springs, California
1 Jun 09
She felt quite strongly about it, actually.
• India
31 May 09
u shouldnt be so thughtfull.u might staring ur nerves in the brain.keep it low and cool
@MsTickle (25180)
• Australia
6 Jun 09
@dawnald (85135)
• Shingle Springs, California
31 May 09
sure, OK...
@krajibg (11923)
• Guwahati, India
31 May 09
Hi, Following your last discussion I read on autism and Asperger's and thought about you and you earlier post and poems etc. And I was puzzled sort of that how could be a so normal person like you be a patient of Asperger's. Now this story of your husband feeling that you have not done what you should have just by going by her wishes there is total normalcy I guess. I personally respect a dying person's wish though I am not so much sort of religious minded. Now to settle the the issue you could follow what he wants to do and there should not be any problem. Would not it be better to go for some ceremony and thereby obliging your husband's wish. And what I feel you should stop feeling that you do have that Asperger's symptoms. You know many a time we create some disease or abnormality out of ourself.
1 person likes this
@dawnald (85135)
• Shingle Springs, California
31 May 09
Women with Asperger's pick up on social things more easily than men, so they say. But it doesn't help that, as he reads a book about Asperger's, he keeps saying "aha,that's you" and so on... We respected my mother's wishes at the time and it was only later that my husband got vocal about it. But as far as doing what my husband wants, well it's been 5 years since my mom has been gone. We don't live in Los Angeles any more, so it's not as if we can just invite people over. But we do commemorate in certain ways. One year we went to a figure skating show, one year it was a concert. I write blogs memorializing her, etc. I figure it's enough...
@krajibg (11923)
• Guwahati, India
31 May 09
Hi, That is fine I suppose. Now as you are no longer in Los Angeles it should not mean that you have to in the same place to remember the departed soul. In my view you just do the things as your husband wants and prove to him and to yourself too that you have no problem such as Aspenger's Symptoms. Wish you the best.
1 person likes this
@polachicago (18716)
• United States
31 May 09
My mother passed away last year. I did respect her wishes. I think you had to do what your mother wanted to respect her wishes. It was the right thing to do.... You don't have Asperger's syndrome....
1 person likes this
@dawnald (85135)
• Shingle Springs, California
31 May 09
I'm pretty sure I do have it, but it's kind of beside the point...
@patms1 (521)
• United States
31 May 09
My grandsons has Aspergers. He is now 13 years old. I want to start this off by saying you did nothing wrong concerning your mother. You and your family honored her wishes and that's what you should have done. People with Asperger's tend to think out side the box. I was told the Bill Gates and many of the most successful people have it. I would like to know whats wrong with your husband saying a thing like that. Know what? He's the one that doesn't get it. Why did it take him five years to decided you were wrong and what does he base his thinking on? My grandson is a very interesting person. Your not always sure what he's going to say but it's always interesting. Tell your husband for me that he is married to a woman that will always make his life interesting if he's man enough to take it. I am surprised that you are just finding out that you have Asperger's. Did you have problems in school? My son and daughter in law refused to give him pills. Thank God he never needed them and is much healthier for not taking them. So do me a favor and tell your husband i said to sit back and enjoy the ride of having a person with Asperger's in his life.
1 person likes this
@dawnald (85135)
• Shingle Springs, California
31 May 09
It has bothered him for a while, but he is just now speaking up about it. Intellectually he can agree with me but emotionally he can't. And no, I didn't have academic problems in school, not at all. I did have social problems, especially starting late in elementary school. I guess I just adapt better than some Aspies have been able to...
@sanuanu (11235)
• India
31 May 09
I have a total respect to your mom and her wishes. Whatever you did was right as it was just following her wishes. After all you must have fulfiled her wishes when she was alive, haven't you? Thus there is nothing wrong in doing whatever you did after she passed away but... I loved the way you had an arguement with your partner: He said, "you just don't get it". and I said "no, YOU don't get it." i know this is senseless but even in this serious topic, you brought me a smile on my face by having this inocent argument!
1 person likes this
@dawnald (85135)
• Shingle Springs, California
31 May 09
And now you have made me laugh! We talked about it and we understand each other. For him, it would have been more satisfying to have a gathering and for me, respecting my mother's wishes was the most important thing.
@katsalot1 (1618)
30 May 09
I think that it would have been disrespectful to go against your mother's wishes, so you did the right thing. Surely respecting someone's wishes is the best way of honouring them!
1 person likes this
@dawnald (85135)
• Shingle Springs, California
30 May 09
That's what I think but I guess he feels like it's equivalent to not remembering her at all.