MRI of my brain...

@koalatbs (2229)
United States
June 10, 2009 1:52pm CST
Here we go again... I have an upcoming appointment for yet another MRI of my brain in about a week and a half. I just recently was able to get health insurance again after almost a year without it. So, now I can finally go back to trying to find out what is wrong with me. The last neurologist I saw last year said he is 50% sure I might have multiple sclerosis. I haven't been getting any treatment since he wasn't 100% sure! It is very frustrating not knowing. I hope this new doctor I've started seeing can figure it out. Anybody else ever had an MRI of your brain before? Anyone else out there have or possibly have MS? Any support is welcome. Jill
10 people like this
27 responses
@dawnald (85130)
• Shingle Springs, California
10 Jun 09
I hope you do find out what it is and get it dealt with ASAP. I don't have MS. I do know a couple of people who have MS, a family member and a Yuwie contact that I could try to put you in touch with.
2 people like this
@sherrir101 (3670)
• Malinta, Ohio
10 Jun 09
I have MS. I was diagnosed in July 1998. Been on a boat load of medicines. My boyfriend also has MS. We met through a Yahoo support group. As long as you lay still and not mind a lot of *banging* noises you'll do fine with the MRI. There are quite a few people on MyLot who have MS. Aty least there used to be. Any questions? Just yell. Sherri
@Polly1 (12645)
• United States
10 Jun 09
Hey Lady, How are you doing? Sorry to hear that you ave MS too, I don't know much about it, hope your case isn't to bad. Take care and God Bless, as always its nice to see you.
2 people like this
• Malinta, Ohio
10 Jun 09
Hi! No, my case isn't too bad. It depends on the day. My main thing is memory and fatigue. I have had other symptoms that were bad, but thank God they went away for the most part. I am not on here a lot, but I do miss everyone.
1 person likes this
• Malinta, Ohio
22 Jun 09
LDN hasn't really*done* anything, BUT I haven't had a relapse in over a year. I had relapses on the other meds. I am going through something that 'might' be MS related, but might not. I do feel better.
@gabs8513 (48686)
• United Kingdom
10 Jun 09
Jill I hope they find out what is wrong and I also hope that the last Doctor is wrong specially as you have gone without treatment all this time please let us know Jill how you get on my thoughts are with you Sweet
1 person likes this
@gabs8513 (48686)
• United Kingdom
10 Jun 09
Jill I know what you mean as I was diagnosed with my Illness 7 years ago I tried to stay optimistic to and I did till I got the Test results but please try not to worry to much till you know Sweet ok but please let me know and if you ever need an ear just shout
1 person likes this
@koalatbs (2229)
• United States
10 Jun 09
Thanks gabs - I will let you know what I find out... if anything. I want to be optimistic but it is kinda hard at this point. Thanks again. Jill
1 person likes this
@Bytemi (1553)
• United States
11 Jun 09
I have MS. I have to say it took over 7 years to get the diagnoses and I was releived when I finally got it. There was something wrong with me and I was not just lazy. I wish you all the luck with the MRI and if you have any questions or problems let me know.
1 person likes this
@Bytemi (1553)
• United States
22 Jun 09
Good luck and let me know how the MRI goes. I will be thinking of you.
@koalatbs (2229)
• United States
22 Jun 09
Hi Bytemi - sorry it took me this long to get back to you. I know what you mean about "I was not just lazy"... I feel that way all of the time. Thanks for thinking of me. My MRI has been changed to Thursday, not today. I'll update you after I find out the results. Jill
1 person likes this
@sunnflr (2767)
• United States
10 Jun 09
I do not have MS, and have never had an MRI of my brain or anywhere else for that matter. I just wanted to offer my support and the hope they do figure out what is wrong and you get the treatment you need. Good luck!
1 person likes this
@koalatbs (2229)
• United States
10 Jun 09
Thanks so much sunnflr. I really appreciate your concern. I haven't been able to work outside of the home for almost 2 years now and it is really taking its toll on me. I just began a home based business in January but still having trouble getting it off the ground because of my fatigue and leg pains.
1 person likes this
@sunnflr (2767)
• United States
10 Jun 09
Hopefully with treatment you will start to feel better and be able to do your home business.
@ANTIQUELADY (36440)
• United States
10 Jun 09
I am so sorry for your troubles. I hope this mri will determine your problem & u can get treatment for it. I HAVE HAD A MRI ON MY BRAIN. I had an aneurysm. THAT WAS IN 2000.THEY also found an aneurysm behind my right eye. They did surgery for the one on my brain but did nothing about the behind my eye. I HAVE DONE O.K. SINCE THE SURGERY. HAVE HAD OTHER PROBLEMS IN FACT 4years ago today i had a stroke but i'm still kicking. I AM SO GLAD U HAVE INSURANCE NOW. I WISH U THE VERY BEST. Let me know what u find out from the mri. GOOD LUCK.
1 person likes this
@koalatbs (2229)
• United States
11 Jun 09
Oh goodness antiquelady... sorry about all the medical issues you've had too. I'm happy to hear that you are "still kicking"! I will let you know if they discover anything from the MRI. It's scheduled for Monday, I think it's is the 22nd of June, early morning. Maybe I'll sleep through it! Ya right! lol Jill
1 person likes this
@ANTIQUELADY (36440)
• United States
11 Jun 09
THANKS JILL, It's hard to keep a good woman down i tell everybody. . i doubrt that u will sleep through the mri. it's so darn noisy don't believe anybody could but it does not hurt in anyway. I WILL BE GLAD WHEN IT'S OVER FOR U & U AT LEAST KNOW WHAT IS GOING ON. It is ridiculouus u had to wait this long. GOOD LUCK. Let me hear from you.
@Lakota12 (42600)
• United States
11 Jun 09
Well lets hope you dont have it. AS far as I have heard it can be very crippling after awhile. Just hope this doc finds what is wrong with ya hugssss and blessings
1 person likes this
@Grandmaof2 (7579)
• Canada
11 Jun 09
Yes a year ago I had an MRI of my brain. Imagine they checked my brain and didn't find anything. hehehe No seriously I first had a CT scan because I was and still am having such bad headaches and the scan showed something they were not sure of. Turned out it wasn't a brain tumor or MS. I have a problem in my neck and spinal cord.
1 person likes this
@heathcliff (1415)
• United States
11 Jun 09
I see you are getting good responses but I had to chime in too. I'm going through a similar situation. Five years now, partly because of insurance problems. Every doctor I've had has floated MS out there, but noone has been able to lock down the diagnosis. I asked a question on here recently and someone told me it can take years for the first real scarring to appear that they are looking for in the MRI. My neurologist is just about ready to do a Lumbar Puncture, which apparently is the only way to catch the elevated myelin levels associted with MS. I wish you luck and hope you don't have to suffer the not-knowing as long as I have.
@koalatbs (2229)
• United States
22 Jun 09
Sorry to hear you are going through the same thing heathcliff and that it has been 5 years for you now. It has been just over 2 for me. The MRI of my brain has been changed to Thursday morning so I will let you know what, if anything, they find out as soon as I get the results. Take care, Jill
1 person likes this
• Philippines
11 Jun 09
I do not have this but I hope that the new doctor will finally give you answers with this matter that your dealing with.. My prayers are with you, that everything will be clear upon the rtesults.
1 person likes this
@koalatbs (2229)
• United States
12 Jun 09
Thanks for thinking of me angel_of_charm. I will keep everyone updated as to what the results are of the MRI.
@guybrush (4658)
• Australia
12 Jun 09
I really hope your MRI gives you a proper diagnosis for your problem, Koala - at least if you know what you are dealing with, you'll be better equipped to treat it. I've never had an MRI, but I imagine it would be a worrying experience. Good luck with your new doctor - I hope he's better than the last one!
1 person likes this
@koalatbs (2229)
• United States
12 Jun 09
Not knowing is definitely the worst part. As you said, once I get a diagnosis then I'll finally be able to get some sort of treatment. Currently, I am just taking a prescription to treat my symptoms of nerve pain. Not sure how much good it is actually doing. I think it makes me more tired than anything.
1 person likes this
@savypat (20216)
• United States
10 Jun 09
I had one of these about a year ago, I went to what is called an open MRI machine, it wasn't to bad. I kept my eyes closed because I can't stand closed spaces. I hope they find some answers for you. blessings
@koalatbs (2229)
• United States
10 Jun 09
Hi savypat - Thanks for your thoughts. I hope they find out what is going on soon too. I have had several MRIs in the past for this same problem and I only had difficulty during one of them. My symptoms were really bad at that particular time and I had extreme difficulty staying still during the test. I got very anxious and was crying and just wanted to scream. They almost had to call off the test but I was able to finish it luckily because at that time the thought of repeating it was too much to consider. I didn't want to have to go through it all over again. Jill
1 person likes this
@TLChimes (4822)
• United States
10 Jun 09
Just had my MRI yesterday. I go to see a nureopsycologist (sp?) to see if it could be MS. I'm working on year 7, maybe it'll be Lucky number 7 and someone will name what's wrong with me. My mom just got a name for the issues she's been dealing with for 30 plus years. We see the same doc so maybe it'll work out for me faster. I can hope. Let's share what we find out as we go along... maybe the ideas one gets will help the other.... I wish you all the luck!
1 person likes this
@koalatbs (2229)
• United States
10 Jun 09
Oh my goodness TLChimes - I just passed the 2 year mark and I'm about going out of my mind not knowing. I definitely feel for you and I do hope year 7 is the charm for you. What are your symptoms? Mine started just over two years ago when I awoke and my right foot was slightly numb (like I slept on it wrong). I didn't think much of it and continued with my day. However, it never went away and the next morning the numbness had moved up my leg. It kept progressing and eventually also developed in my other leg too. Weakness, pain, etc etc. I could go on and on but that would take forever. I have also had mild numbness & weakness that comes & goes in my left hand & forearm and some tingling sensations on my lips & left side of my face. When is your appt with the neuropsychologist? Keep me updated as to how you are doing & I will do the same. Maybe we can commiserate together! Jill
• Philippines
11 Jun 09
Hi, Jill! I only had that CT scan once in 1994 and a week after that my MS was confirmed through a lumbar tap. I can do with all those mild symptoms, the weakening and numbing of legs and arms but I pray i won't suffer the paralysis again. I just had my glasses changed last Monday, my first step in trying to eliminate the possible causes of my mild headaches for a straight ten days. I didn't have one today so i decided not to see a neurologist yet. I hope i won't ever need to consult one for a long time. I'm still okay, the virus is sleeping and i hope it will stay asleep and will not bother me for the rest of my life. I am glad to hear of your progress with the health insurance and i hope somebody out there will finally discover the cure for MS.
1 person likes this
@koalatbs (2229)
• United States
24 Jun 09
Thanks for thinking of me alexandra777. I am glad to hear that your MS is "sleeping" for now. I have my MRI tomorrow morning, bright and early. I will let you know what I find out. I am sure I won't hear any results from my doctor until next week. I hate having to wait over the weekend for test results. :(
• United States
11 Jun 09
i did a long time ago..i was having severe migraines,and they wanted to make sure i didn't have a tumor or something(it was negative). they gave me a radioactive dye though that made me horrendously ill.i'd make sure you're not allergic to it before you have the MRI if they intend to use it with you.
1 person likes this
@coffeebreak (17798)
• United States
11 Jun 09
I've had one a year for the last 5 years... originally had a brain tumor that was surgically removed and the subsequent MRI's were to follow if it is growing back after radiation treatments. I hate them,,, have to be sedated to stay in that tunnel for an hour, but at least the crummy thing hasn't started growing again. HOpefully it won't, but I have to have an MRI every year to to make sure. Hope you are okay.
1 person likes this
@mjmlagat (3170)
• Philippines
11 Jun 09
hello there! i have never undergone any of the stuffs you mentioned, thanks God. but i'm sure the anxiety level of someone about to undergo the same is quite high, good luck friend. just be positive about things and everything will be fine, call God's help always, this is one great assurance. i wish you well.
1 person likes this
@Shar19 (8231)
• United States
11 Jun 09
You sound like you have the same doctor that my friend has. She has been told that she might have MS too. They said she has all the signs of having it. They have being doing all sorts of tests for about 2 years now. She also had a spinal tap done. Still no one can say for sure if it's MS. I don't understand why the doctor's can't detect it better.
1 person likes this
@angel2009 (210)
• India
11 Jun 09
Multiple Sclerosis is an autoimmune disease...It leads to paralysis..Though the treatments are a bit difficult but they are curable if taken proper medicines and under the guidance of a good doctor..There is nothing to worry about MRI..It is almost like the ultrasonography which allows the doctors to get a glimpse of the inside of your brain with the help of magnetic resonance... So just be brave and go for the treatments..You will be allright..All the very best to you!!
1 person likes this
@anniefannie (1737)
• United States
11 Jun 09
i haven't had a MRI i hope the Dr can find out what is the matter with you so you can be treated.and if is MS maybe it will go in to remision.Good luck and i will say a pray for you
1 person likes this