More painful to parents
By Daddy Neil
@neildc (17239)
Lapu-Lapu City, Philippines
August 24, 2009 3:36am CST
We all know that when it comes to our children, we will do everything just to see them in a good condition, with regards to their basic needs, health, school, etc. And it is very painful to some parents to see them bad.
With regards to Zyruz's health condition, the doctors wanted to be sure of his condition, what really caused his loud snoring and if it's really something to do with sleeping apnea.
The doctors recommendation is xray and sleep test. There is one and only hospital here in Cebu that has sleep laboratory. And the amount to big for us, that we cannot afford it right now.
We can't find that money to bring him to that hospital. We can't do anything, so far, as the economy is getting worst. The income I earn is just as enough for our basic needs.
It's so painful to see Zyruz in his condition as he sleeps. The chocking time, the untimely waking-up as he cries, as he cries for help.
For parents like us, just can't do anything, but hope that his condition get better, if help doesn't come.
1 person likes this
9 responses
@mentalward (14691)
• United States
24 Aug 09
Hopefully, neil, help is coming soon. I'm waiting for a phone call back from my congressman's office right now. I called his office this morning instead of writing yet again. I'm hoping that, by talking to someone, my problem will be more real to them and they will be able to hear the desperation in my voice. You already know that this is not just for my sake that I'm doing this.
I think about little Zyruz every single day. I can remember having my own son either at the doctor's office or emergency room at the hospital at least once every two weeks for years before finally finding out that he suffered from 13 allergies and asthma which made him very sick. It took a new health insurance plan to find this out. Before that, I had a horrible plan, or a horrible doctor, or both.
I know what it's like to worry constantly about our children with health conditions. It's horrible when we want to help them but can't. Once I saw that picture of Zyruz with his big smile, I totally fell in love with the little guy. One day, I would really love to visit you to meet your whole family and give little Zyruz a great big hug.
The MOMENT I hear anything, I'll let you know. I want nothing more than to help you with those medical bills, you know that. I've decided to call my congressman's and my senator's office every day until I get some action. I have my own medical bills piling up because of this insane disability case of mine but they take a back seat to your son's health! As soon as I get approved, you will know immediately. That's a promise!
Hang in there. Help is coming. I only wish I could tell you that it's coming now but our stupid government is holding everything up right now. As soon as that is straightened out, I will send you an email.
@neildc (17239)
• Lapu-Lapu City, Philippines
24 Aug 09
it is really painful in our part as parent, to see a child in helpless condition, as he can't help himself and we can only do is to monitor him. but we hope and pray here, that you fight will soon be over, as you said, it's not only for your own sake.
i am not always watching tv as i mostly in the office and or with my phone, doing mylot. but my wife says, she saw some news reports from the US that talks about your social security. she utter a joke saying, "oh, that could be MW's move, maybe she already talked to the government officials, and now they are working on it. maybe it's because of MW."
we are still hanging in here and we know it will come. take care.
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
i know it's not just in the US that that kind of "palakasan" as we call it, having someone in position, and things you are asking for will get immediate approval. This system also works in out place, especially in politics.
i love people who helps other people with their needs. if only i have so much, i will also help the needy. but i have just enough and sometimes less. i wish i can also have much to help others. but what i have right now, only goes for our basic needs.
i thought i can have more earnings, i mean higher salary, when the department gave much work load than i should have, as a regular clerk. but since improvements in the system continues, there were new assignments came, that as an employee, i can't turn down the tasks, and i should just accept them.
so far, they gave me cash collection and the case management. these two tasks should be two different positions or job description. but when the agency adds new tasks, creation of plantilla for the said positions/jobs is always left behind. and with that, incumbents get the work load, added to his current load. and i always get it. i don't know with the agency.
@mentalward (14691)
• United States
25 Aug 09
I understand, and sympathize, with what you are saying, neil. I have had a few jobs like that myself, where the workload was increased without an increase in salary or in job title. At one job I had, one person quit and I was given her workload along with my own, but no increase in salary. Then, another person quit and I was given her workload as well. So, I ended up doing the workload of 3 people with no increase in salary. I had so much work to do that I often had to bring it home with me and work on it without getting additional pay, just to get it all done.
Fortunately, I was able to find another job, a much easier job with better pay, and quit that horrible job. It took awhile to find a new job but when it became available, I grabbed it and never looked back.
I hope that something good will come to you, like a better job title and better pay. I know that it sometimes seems hopeless but you never know what is around the corner. Hopefully, it won't be long before you get a pay increase, at the very least.
As far as that other issue goes, I'm still waiting. I called my congressman's office again and got their voicemail. I will be calling later today, as I am about to fax them another letter, advising them that I will be calling so, hopefully, they will be waiting for my phone call. I am also about to send out my story across the country. That should be done by the end of this week. That should get some action, hopefully in my favor.
@LetranKnight25 (33121)
• Philippines
24 Aug 09
That is so sad. Wait? what happened to that user that promised you financial aid? did that user offered financial Support. i feel bad for this since there's nothing i can do either. except to pray if GOD willing, he will trun things around for your child zyrus
@neildc (17239)
• Lapu-Lapu City, Philippines
24 Aug 09
actually, i wasn't going post this here, it's actually for my blog. i don't know what happened to me and i posted this here. as i was writing this in the notepad, slowly, as the writing goes, i thought that it's also fine for me to post this here, as i see no violations. and the fact that i can't think of something to share here, so that's it. 
my friend from the west, never promised it actually, though i was told that i have no way to say no. my friend also has problem with health and so as with disability issues. but never did my friend says, no, but help will come. i mean, we all just to wait and it will come.
have you heard some news about disability, the health issues and social security issues in the US? i pray it will get resolved for i know, my friend will really help once it gets resolved.
my friend from the west, never promised it actually, though i was told that i have no way to say no. my friend also has problem with health and so as with disability issues. but never did my friend says, no, but help will come. i mean, we all just to wait and it will come.
have you heard some news about disability, the health issues and social security issues in the US? i pray it will get resolved for i know, my friend will really help once it gets resolved.@LetranKnight25 (33121)
• Philippines
24 Aug 09
I am more concerned with your kid. that's more of a problem there. the ones in the US is a general problem for every one@neildc (17239)
• Lapu-Lapu City, Philippines
24 Aug 09
thanks buddy. but why i mentioned that US problem is because it has something to do with my friend's social security disability which already 7 years now, and not yet been approved. if my friend is approved, then that's the time, help will reach here.
@ranjanjec (43)
• India
25 Aug 09
Each and every parents are in confusion towards their child. They are always worried about their child's future.
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
but for the mean time, what we are worried for is the health condition. the future, their future will follow in the later years.
@shimanaja (493)
• Indonesia
25 Aug 09
Hi dear friend,
i really understand your condition worried bout your kid. Its very sad situation. Does anyone in your big family could help your kid? pls dont give up..i believe you could do the best for your kid's health.
Just look for help anywhere, to anybody you know. God will help you and your kid.
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
it's not that easy to ask relatives for help, just like that. we are a big family of poor people too, though we are richer than the poorest ones. we are still hanging on here as we are still hopeful that help will come soon.
@janebeth (2032)
• Philippines
25 Aug 09
hi neil,
my mother used to make stories to us every night and shares with us her experience in life and the way she takes cares of us when we were siblings.. she says this "i always love to go home early from whole day works even if i am tired just to see my kids kissing me when i arrived", it's so sweet to know that we do that thing to her.. but you know as years pass by, we unfortunately forgot to do it again to her and i think she is mad or upset of us.. maybe we should try it doing to her that thing again and we want to see her eyes happy and contented.. same on your situation, kids are the most important thing on parents life, not even money can buy your happiness if you talk about the kids, and knowing them that they have illness can make your heart so aching and finding out that you can't afford to bring him on the said hospital, i am so sorry neil.. but still don't loose hope for GOD loves you and you family, have faith in HIM and he will be there all the time..!!
janebeth.
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
i think it's not too late, to start the way you gave your parents happiness, again. the way you welcome them at home after the tiring day at the office. you can start all over again. that's how i also feel, as parent. i feel the happiness when i come home and kids run to me and give me hugs and kisses.
@janebeth (2032)
• Philippines
25 Aug 09
Hi neil, i am so sorry about zyruz. With his age like that experiencing that illness, maybe God has it's purpose. I have seen your blog, and he is dancing there. He was so active and happy not knowing that both of you, your wife is struggling on how to handle his illness specially financial problems.. Just pray neil, and i know God will listen to you.. It's just a test of your faith to Him.. I will also pray for you and specially zyruz.. GOD bless you always..
@tamarafireheart (15384)
•
24 Aug 09
Hi Neil,
I am so sorry to hear that your little boy is still suffering, hope that he will get his treatment very soon, somehow, keep thinking positive and I will pray for him and all of you.
Taamra
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
thanks tamara. we are still hoping that it will come. it's just painful for us to see him suffers but hopefully, help will come soon.
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
yes xchyler, that's true. we cannot do but to worry if the kids are in bad condition and we have nothing to spend. thanks for the prayers, my dear xchyler.
@polo_princess (803)
•
24 Aug 09
Im sorry to hear that you cannot afford to have these investigations done into your sons problem. What kind of healthcare system do you have where you are?
Whatever happens i do hope you can get some answers and then treat the problem so he is not in any pain.
@neildc (17239)
• Lapu-Lapu City, Philippines
25 Aug 09
it's okay, and thank you for responding. the fees to do the test is too big for us. but in so far as today, we are hoping that help will soon come.
