Let Me Explain

@amadeo (111948)
United States
September 20, 2016 4:29pm CST
Some are still a bit confused on my medical issues.Myelodysplastic syndrome (MDS) is a disease that is associated with decreased production of blood cells. Blood cells are produced in the bone marrow, and the blood cells of people with MDS do not mature normally. There are three major types of blood cells—red blood cells, white blood cells and platelets. Patients with MDS can have decreased production of one, two, or all three types of blood cells. My bone marrow is diseased. The shot that I get every two weeks is call el crit.This is a shot of home made blood.With out this.I would have to get a blood transfusion. This is what keeps me alive.If it get any worse.Then it developed into Leukemia.I am lucky that this have this for me. Things can change as I get older.The shot is not working any more then maybe chemo is the next step. For now I am doing pretty good.The blood count is still very low but hanging in there.Not sure how long that this will last. My sister died from this.At that time they did not have the injection. So I am glad to be alive and function. Thank you for some that they were concern and a bit confused. the photo is mine.Another look at our walk from last week.
20 people like this
15 responses
much2say
@much2say (53945)
• Los Angeles, California
20 Sep 16
You are a guy so full of life . . . I hope things continue to go on well for you! Hang in there!
4 people like this
much2say
@much2say (53945)
• Los Angeles, California
20 Sep 16
Alfredo Rossi
@amadeo (111948)
• United States
20 Sep 16
@much2say thank you and will do my best there.That is why I have to keep moving
3 people like this
Marlina
@marlina (154166)
• Canada
20 Sep 16
Dear Alfredo, Thank you so much for explaining what is "Myelodysplastic syndrome". And sorry that your sister passed away because of it. You are doing exceptionally well, still playing tennis and walking and totally enjoying life. Keep it going! I also have a blood problem : anti antibody phospholipid, my sister also passed away because of this and Lupus.
2 people like this
Alfredo Rossi
@amadeo (111948)
• United States
20 Sep 16
@marlina thank you.sorry about your sister there.Not sure how this will last.But will keep pushing
3 people like this
Marlina
@marlina (154166)
• Canada
20 Sep 16
@amadeo That's the spirit and that is what I do too.
2 people like this
Silvermist
@silvermist (19702)
• India
21 Sep 16
@amadeo Thank you for explaining the condition in detail.While I am sad at the situation,I am happy to see you playing Tennis,going for walks and enjoying life in general.
1 person likes this
Juliaacv
@Juliaacv (48272)
• Canada
20 Sep 16
You are a perfect example of "living" with a serious health ailment. You have such a positive good way about you, that must keep you healthy to some extent.
2 people like this
Alfredo Rossi
@amadeo (111948)
• United States
20 Sep 16
@Juliaacv yesI believe this is helping me.I have to keep moving.
3 people like this
Gary Marsh
@garymarsh6 (23393)
• United Kingdom
24 Sep 16
It is good you keep yourself active and living a good healthy life. Keep positive and stay happy!
1 person likes this
Kristen Howe
@KristenH (33351)
• Cuyahoga Falls, Ohio
20 Sep 16
Thanks Alfredo for letting us know. I have Leukopenia and have been taking multi-vitamins for one full year now as my treatment.
1 person likes this
Alfredo Rossi
@amadeo (111948)
• United States
20 Sep 16
@KristenH What is Leukopenia?
1 person likes this
Go Crossbones
@crossbones27 (48405)
• Mojave, California
20 Sep 16
Hang in there, maybe they will come up with something else before to long.
Alfredo Rossi
@amadeo (111948)
• United States
20 Sep 16
@crossbones27 by that time my man.I will be out of here.LOL
1 person likes this
Judy Story
@jstory07 (134302)
• Roseburg, Oregon
22 Sep 16
I hope you will be alright you are a very nice guy and I like your discussions. Take care of yourself.
Jabo
@jaboUK (64362)
• United Kingdom
20 Sep 16
Thanks for explaining - you are lucky to have the shots available to you, I hope they continue to work.
Marie
@Tampa_girl7 (48890)
• United States
21 Sep 16
You are so blessed that they have the injection.
MARILYN
@Marilynda1225 (79592)
• United States
20 Sep 16
I'm glad that the injections are working for you & hope you continue enjoying life
James Higgins
@JamesHxstatic (29242)
• Eugene, Oregon
21 Sep 16
I am glad to hear that these methods keep you alive. A good friend of mine had a bone marrow transplant about three years ago and has done very well. My red cell count is a bit low but stable.
1 person likes this
DianneN
@DianneN (246334)
• United States
21 Sep 16
Thank you for explaining this so well. Can you explain homemade blood? I'm so sorry for your sister, and wish you the best of health.
ARM
@responsiveme (22926)
• India
21 Sep 16
Keep going...your positive attitude and active life is an inspiration
julito
@antonbunot (11091)
• Calgary, Alberta
20 Sep 16
I hope and pray medical science will be able soon to find a cure for MDS, my friend.