A Fibromyalgia Question

@LaJenna (167)
United States
March 10, 2017 12:05pm CST
I have been suffering from Fibromyalgia for years but for the last 2 years it has been disabling. Therapy helps but have to do it more often to help. The doctors have tried everything but shots and I will not take it. I heard they hurt like crazy. Do I have a chance of getting disability?
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2 responses
• United States
10 Mar 17
That's really something that you're going to have to talk to your doctor about. A lot are hesitant to support disability for fibromyalgia because it's so difficult to prove and there isn't a whole lot of diagnostic evidence for the condition available. But it's definitely possible to qualify based on the fibromyalgia alone. My neighbor qualified based on hers. You're probably going to have a huge fight ahead of you, though. I've never done the trigger point injections. I have done sacroiliac joint injections, though, and I can't imagine that the trigger point injections would hurt as much as the SI joint injections do. It's a jab, then a pinching/burning/expanding sensation... and yes, it hurts like hell when it's done if you opt to do it unsedated like I do. Afterwards, it usually just aches. Sometimes it's worse than others and my entire left leg feels like it's on fire for the evening, kind of like sciatica. I think it'd be a bit better if they didn't tell me to avoid baths for 24 hours after the injections. My neighbor did the trigger point injections a few months ago and said they were the most amazing things she's ever had done for her fibromyalgia. I've done really well with lifestyle changes and a prescription from my pain specialists. Lately we've been wondering if there's something environmental affecting me, too... it seems like every time we get away for a few days I end up feeling way better than normal. I'm getting way too wordy, but what I'd really suggest is to start a symptom journal. That'll serve two purposes: to help you identify patterns in the fibromyalgia and to show specific evidence that it's disabling for you. You might need to find a disability lawyer familiar with the condition who can help you deal with navigating the application process. I've heard that some may do it on a contingency basis, where they don't get paid unless you win your case. Keep pursuing other options, too, like mindfulness exercises, dietary supplements (@patgalca has posted about a specific one that has helped her in the past, and I've seen some benefit from vitamin D and something called MigreLief), etc. A fitness tracker that monitors sleep might help a bit, since getting a good night's sleep can make such a huge difference to us. @patgalca and @gardengerty, can you think of anything I might have missed that would help @LaJenna out?
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@patgalca (18181)
• Orangeville, Ontario
11 Mar 17
@owlandbutterfly and @LaJenna I can't really give advice about disability because you are in the States and I am in Canada. When I applied 20 years ago it was an uphill battle. With the government I failed because one bad doctor's note out of ten accidentally got into the Board's hands. The woman who was seeing the Board after me had fibromyalgia and did get her Disability Pension "because she looked a lot older than she was". For insurance companies of employers, again, I don't know how they work down there. The doctors in Canada are a lot more knowledgeable on fibromyalgia than in the U.S. from what I have heard from fibromites on the internet. But 20 years ago, I still had trouble with that. Didn't get long term disability but got a settlement... which didn't last long. But that was 20 years ago. Things have changed since then. Physically, I think we've said everything.
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@Mike197602 (15487)
• United Kingdom
10 Mar 17
I know someone who may be able to help in some ways although she hasn't been around much lately so you may have to wait a while for any response. She's from the US too but just looking she hasn't been around for a while...anyway @yukimori ...if you're around have a look at this
1 person likes this