Crohn's disease

@lulu897 (176)
Canada
November 26, 2006 12:26pm CST
Does anyone here suffer from Colitis or Ileitis. I have been suffering with it for 15 years, I have had 4 surgerys. Finally though there is a treatment that I go for every 9 weeks that has helped me a great deal , I hardly ever suffer anymore and can almost lead a normal life. Why not share your stories for others who are going through the same thing.
3 people like this
6 responses
@shirgie (230)
• United States
1 Dec 06
I have Crohn's disease. I was diagnosed during emergency surgery almost exactly 11 years ago (I was pregnant and ended up with an ileostomy which was reversed when my dd was 1 year old). I tried many meds that the drs. prescribed but never could stand taking any of them. I still have lots of problems but am managing better than when I took the meds. I would love to know about the treatment you have recieved. While I am managing better than with the meds I was given, maybe this would be a breakthrough for my health too. Thanks!
@asmurthy (2464)
• India
22 Apr 07
Many people with Crohn's disease have symptoms for years prior to the diagnosis. The usual onset is between 15 and 30 years of age, with no difference between men and women. Because of the patchy nature of the gastrointestinal disease and the depth of tissue involvement, initial symptoms can be more vague than with ulcerative colitis. People with Crohn's disease will go through periods of flare ups and remission.
1 person likes this
• United States
24 Mar 08
Ironically enough, one of the symptoms I had and had no idea that I had was eye ulcers. They say tha Crohn's can cause ulcers throughout your body and it had actually caused ulcers in my eyes which at the time, my eye doctor just wrote off to me wearing contacts and told me not to wear them for a few months. I didn't make the connection until a few months after my diagnosis.
@meeshee1 (188)
• United States
29 Dec 06
My boyfriend has Crohn's disease and his mother has Colitis. Sometimes he is in so much pain he cannot stand it. He was taking Asacol but it's so darn expensive and he doesn't have insurance. It's rough but he also doesn't eat right and he drinks too much. I keep telling him he'll need surgery if he doesn't watch his diet. I have heard of Remicade before. I wonder if he can try to get that through some kind of plan...
@lulu897 (176)
• Canada
29 Dec 06
Here in Canada There is a place called Trillium that was paying for part of my treatment and then Remicare paid the rest , I had to pay a deductible but it wasn't much, now my husbands health plan pays it. I am sure that if you contact remicare they will stear you in the right direction or even get him to talk to his doctor. And your right if he doesn't watch his diet he will end up in the hospital. If he stays away from certain foods he will feel better. Drinking also doesn't help. I hope everything turns out for him, I know what it is like to be in pain from crohns.
1 person likes this
@RhodaK (177)
• United States
22 May 07
So glad to hear that you are responding to the Remicade. My 11 year old daughter was just diagnosed in Feb. of this year. After 3 other meds didn't work, the Dr. gave her her 1st dose of Remicade last week. She is due for her 2nd dose in a week. The 1st dose didn't really make any difference in my opinion. How long before you felt a major change?
23 Feb 07
My husband has Crohn's, he had a bad flare which resulted in them removing his bowel. Since then he's been in remission. He has other health problemms though. I'm glad the remicade is working for you.
@lulu897 (176)
• Canada
25 Feb 07
Flare ups aren't fun, but I am glad he is in remission. Hope is other health problems are resolved. thanks for commenting
@kelly60 (4548)
• United States
23 Feb 07
I have both Crohn's disease and colitis. I was diagnosed about 15 years ago during emergency surgery. I am not having the severe pain now that I once was. I have been in remission for quite a while now. Imodium is my main medication these days since my main problem with it now is the constant diarrhea. The doctors say that will always be a problem for me because I they took away so much of my intestines.