~Update On Josiah's Appointment~
By Jennifer
@LovingMyBabies (85127)
Valdosta, Georgia
June 26, 2017 6:57pm CST
Hey everyone. I think that was the longest appointment any of my children have ever had. So...here is the update.
Josiah does not need surgery at this time. The fluid is on the outside of his brain-not inside of it so it's not causing any pressure on his brain. His head is growing rapidly though and they don't know what the cause of that is. They are going to do another scan in August to see if they are missing the cause of the growth somehow.
Now, the shape of his head they are concerned with too. He is going to go to therapy so they can teach him to lay on the other side of his head and they do want him to wear a helmet to correct it as well. He has favored the one side of his head since he was in the womb which is why his head isn't shaped correctly.
So...we still don't know what is causing the growth of his head-hopefully it's nothing too serious though. Thanks for praying everyone!
I took the picture of Josiah and I at his appointment.
33 people like this
35 responses
@TiarasOceanView (70035)
• United States
27 Jun 17
When you said they don't know the cause I had to investigate..that is just how I am. it could be many or none of these things on this page I found..what surgery were they going to possibly do? To release fluid?
That is a nice photo of you both.
Prayers up.
Toggle navigation Definition Macrocephaly is a condition in which the head is larger than normal. Description Also called macrocephalia and megalocephaly, macrocephaly is diagnosed when the circumference of the head is more than two standard deviations abo
5 people like this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@Tiarasoceanview The neurosurgeon did say he believes Josiah has the benign macrocephaly but they wanted to make sure by testing again in August to make sure that's the only reason for his head growing so fast.
Yes they were thinking he might need surgery to release some fluid.
Thank you!
3 people like this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@TiarasOceanView Yeah I couldn't remember the fancy words he used until you posted that, then I realized that's what he mentioned.
Hopefully the next scan will give conclusive answers either way.
2 people like this
@TiarasOceanView (70035)
• United States
27 Jun 17
@LovingMyBabies Oh okay then..it was just that I did not see a mention of that condition in your discussion so just wanted to see if that might be it. Yes Joshiah will have a scan in August thats good.
I figured it was to drain fluid..
Good it is benign praise God!!
Welcome and thanks
3 people like this
@NJChicaa (115959)
• United States
27 Jun 17
I've been waiting for this update all day! You'd think that fluid outside of the brain would still cause pressure on it anyway as it is still inside the skull. Glad to hear that he doesn't need surgery right now. That is good news at least.
I wonder what is causing his head to grow so quickly though. That is kind of scary that the neurosurgeon didn't have any ideas on it.
5 people like this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@NJChicaa I thought so too but I don't know. Thanks, I'm glad he doesn't need the surgery now too.
That is where the concern comes in...if it's not the fluid causing it-what is it? Yes it is alarming to me that he didn't know what's wrong.
4 people like this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@NJChicaa I would have thought that too. No they didn't say anything about genetic testing.
They acted like I was more concerned than I should be but it's my baby! And I don't have conclusive answers.
2 people like this
@NJChicaa (115959)
• United States
27 Jun 17
@LovingMyBabies You'd think they'd at least want to drain the fluid? Did they talk about doing genetic testing?
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@KrauseHome (36448)
• United States
27 Jun 17
Continued Prayers for healing for your son so that things can continue to improve. I hope the things they can suggest and want to try will be of his best interest.
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@KrauseHome Thank you for praying for him. =) I hope so too!
@Tina30219 (81540)
• Onaway, Michigan
27 Jun 17
That is good news he don't need surgery I hope they find the reason of the growth and get it taken care of right away. When will the helmet come into it all? Nice picture of you and Josiah.
1 person likes this
@Tina30219 (81540)
• Onaway, Michigan
27 Jun 17
@LovingMyBabies I hope they do whatever they need to do and soon and figure this all out. You all will be in my prayers.
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@Tina30219 Thank you. Yeah I hope we get answers on that the next time we go. The neurosurgeon didn't say when he's getting the helmet.
Thank you. =)
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@DWDAVIS Your right in both, Lol. I was concerned and Josiah was bored I think.
Thank you for your prayers! =)
2 people like this
@Courtlynn (66921)
• United States
27 Jun 17
Hey I've seen that photo and shirt before 
I'm so glad he doesn't need surgery!!! And hope its nothing serious with the growth.. and that it's something that can be helped...
Thank you for updating me earlier 
I'm so glad he doesn't need surgery!!! And hope its nothing serious with the growth.. and that it's something that can be helped...
Thank you for updating me earlier 3 people like this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@Courtlynn Lol yeah you have!
Me too, thank you. I just hope they figure out why his head is growing so rapidly.
Your welcome. =)
2 people like this
@Courtlynn (66921)
• United States
27 Jun 17
@LovingMyBabies yed, it seems very odd that it is and especially that they dont know why
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@GardenGerty (157546)
• United States
26 Jun 17
It sounds like they at least talk to you and explain things as well as they can.
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@Gardengerty Yes they explained as much as they could since the growth is still a mystery to them as well.
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@jstory07 Thank you, he is a good baby. =)
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@marlina Thank you. =) Thanks, I'm hoping for the same.
2 people like this
@JamesHxstatic (29242)
• Eugene, Oregon
27 Jun 17
I am hoping that they find the cause of that growth pattern and can correct it. That is a great photo of you both.
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@JamesHxstatic Thank you I hope so too. Thank you! =)
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@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@paigea Thank you! It's on the side and back of his head. =(
Me too, thanks.
2 people like this
@andriaperry (116860)
• Anniston, Alabama
27 Jun 17
YAY! that is awesome news.
Tony`s great nephew had a big head but sooner than later he grew into it.
Have you heard anything about Laurel?
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@andriaperry Yeah I'm glad he doesn't need surgery.
Laurel is having surgery tomorrow at 12 or 1 in the afternoon.
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@thislittlepennyearns (58119)
• Defuniak Springs, Florida
27 Jun 17
I am glad he doesn't need the surgery right now, and we will be praying that whatever therapy they do with him works.
Give him a hug for me!
1 person likes this
@LovingMyBabies (85127)
• Valdosta, Georgia
27 Jun 17
@thislittlepennyearns Thank you. Thank you for praying as well. =) I will!
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@Happy2BeMe (99399)
• Canada
27 Jun 17
Beautiful picture. I hope they figured it all out. It is hard not to be worried when you didn't really get any real answers.
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@Freelanzer (10745)
• Canada
27 Jun 17
What a beautiful photo and he is such a cutie. I hope they can find out the cause so it can be treated. Sending prayers your way.
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@shivamani10 (11038)
• Hyderabad, India
27 Jun 17
I think this is not a serious one. As the days go by everything becomes quite normal.
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@atoz1to10 (6781)
• Australia
28 Jun 17
I'm happy for you that your Josiah doesn't need surgery. And just hope that every thing will be OK with him too. All the best. 
