Another Day, Another Disorder
By Susan
@HazySue (39269)
Gouverneur, New York
July 26, 2017 1:15pm CST
My daughter just got back home after a week of testing at the Mayo Clinic. She was sent there to find out what in the world is going on with her body.
She had several artery dissections and they really needed to know why. They thought it was due to some kind of connective tissue disorder.
It turns out that she has fibro-muscular dysplasia. I am not yet sure exactly what this is but you can bet I will find out.
What I do know so far is, it is a genetic disorder. She was told to tell us, myself and her sisters, so we could inform our doctors. It looks like we might end up being tested soon.
I am beginning to wonder if this year is every going to end. Things keep happening, we keep getting unhappy news.
I am so concerned about my daughter. I hope she will be ok.
18 people like this
18 responses
@andriaperry (116876)
• Anniston, Alabama
26 Jul 17
Prayers to you and her. At least you know what is going on now, so how do they treat this condition?
4 people like this
@Blondie2222 (28613)
• United States
28 Jul 17
I know that feeling of not knowing what is going on and what causes it. I hope you can find out what type of disease this is and how it's going to effect her life and yours if you all have it. Glad she was able to get some answers though and hope they can help her with medicine or something.
2 people like this
@celticeagle (157593)
• Boise, Idaho
27 Jul 17
With it being diagnosed now she has half the battle over in my estimation. I think knowing what you have is a wonderful thing. Then with treatments and/or meds I hopt she will be much better now.
2 people like this
@celticeagle (157593)
• Boise, Idaho
28 Jul 17
@HazySue ......It would probably really help her in the long run.
2 people like this
@LadyDuck (455007)
• Switzerland
27 Jul 17
I am sorry for your daughter, I know what fibromuscular dysplasia is. It is a condition that causes narrowing or enlargement of the medium-sized arteries in the body. This can cause a certain number of problems, I think this is the reason why you should be checked by your doctor. My husband has enlarged arteries, but it's not too bad.
2 people like this
@KrauseHome (36449)
• United States
29 Jul 17
I know all about will this yr ever end ... Hoping things will start getting better
2 people like this
@prashu228 (37524)
• India
27 Jul 17
I am so sorry your daughter has to go all through this. Hope you get good news from now on
2 people like this
@FourWalls (61328)
• United States
26 Jul 17
It's a mixed blessing. There's all the testing and treatment, but there's the "comfort" of knowing what it is. In my case with my gallbladder, NOT knowing was as bad as the pain!
Prayers for your daughter and you.
2 people like this
@Courtlynn (67002)
• United States
26 Jul 17
Im sorry you keep getting bad news. I hope things turn around soon
2 people like this
@Happy2BeMe (99420)
• Canada
26 Jul 17
I do hope that she will be okay and that now of the rest of you have it. This has been a bad year health wise for so many people.
2 people like this
@LovingMyBabies (85130)
• Valdosta, Georgia
26 Jul 17
I am so sorry to hear this. =( I hope things start improving for your family really soon.
2 people like this
@Tampa_girl7 (48855)
• United States
28 Jul 17
I know you must be worried. I've never heard of this before.
1 person likes this
@Tampa_girl7 (48855)
• United States
28 Jul 17
@HazySue hopefully you can get some good information about it.
1 person likes this
@HazySue (39269)
• Gouverneur, New York
29 Jul 17
@Tampa_girl7 I am going to get all the information I can.
@kobesbuddy (73894)
• East Tawas, Michigan
27 Jul 17
Prayer is the answer, 'Mother!' And I will pray for her, this very minute:)
1 person likes this
@kobesbuddy (73894)
• East Tawas, Michigan
28 Jul 17
@HazySue God is always our best source of help, in all situations
1 person likes this
@kobesbuddy (73894)
• East Tawas, Michigan
29 Jul 17
@kobesbuddy Hopefully, your daughter is doing much better and the doctors are finding the best option, to help her get better!
1 person likes this
@FayeHazel (40250)
• United States
26 Jul 17
Things will work out in the end. I am sorry to hear of the new diagnosis, but at least there is answer.... that's something anyway....
2 people like this