Chemotherapy has not finished after all.

@Asylum (46838)
Manchester, England
September 12, 2017 6:25am CST
I was originally scheduled for 9 sessions of chemotherapy, broken into 3 sets of 3 days. Last Wednesday I had what I expected to be my last chemotherapy session and yesterday visited the hospital for an X-ray and to discover what the next step would be. When I finally got to see the doctor I was informed that she was very happy with the progress so far, so I genuinely expected to be given a future date for rechecking etcetera. Instead I was told that my next set of 3 chemotherapy treatments would begin in 2 weeks. The fact that I appear to be making some progress was good news, but I certainly did not expect further chemotherapy at this stage. It almost feels as though the clock has been turned back to the beginning.
37 people like this
34 responses
@GardenGerty (90290)
• Marion, Kansas
12 Sep
I am sure that is disappointing. Hang in there. I know, that is easy for me to say. Perhaps it is because you are showing progress that you are going to have more treatment. Either that or the right hand does not know what the left hand is doing and someone was mixed up.
7 people like this
@Asylum (46838)
• Manchester, England
12 Sep
It was a great disappointment, so now I shall be hoping for a better response the next time around.
2 people like this
@JolietJake (39992)
12 Sep
At least progress is being made. I guess they want it to continue or something since I am not sure how the procedure actually goes...
7 people like this
@Asylum (46838)
• Manchester, England
12 Sep
Hopefully I will have a better result after the next set of chemotherapy.
6 people like this
@LadyDuck (118865)
• Switzerland
12 Sep
Well, this is only half good news. It's good because you made good progress, the bad is that you need a next set of 3. Now you have 2 weeks of rest before the next set.
5 people like this
@Asylum (46838)
• Manchester, England
12 Sep
Chemotherapy can have a harsh effect on the body, which is why I was hoping for a reasonable break from it.
5 people like this
@LadyDuck (118865)
• Switzerland
12 Sep
@Asylum I know, I was also hoping it was finished. You are surely very tired and it would have been a big relieve to know you had not to go back. Let's hope that the next set of 3 sessions is the last one.
2 people like this
@Asylum (46838)
• Manchester, England
12 Sep
@LadyDuck That is precisely what I am hoping.
2 people like this
@Kandae11 (25719)
12 Sep
I think they are being thorough. Stay strong.
5 people like this
@Asylum (46838)
• Manchester, England
12 Sep
Yes they are being thorough, but for some reason this further chemotherapy was never even referred to before.
5 people like this
@Kandae11 (25719)
12 Sep
@Asylum Probably didn't want to tell you everything all at once, but in my thinking it seems to be the normal procedure until everything is under control.
4 people like this
@Asylum (46838)
• Manchester, England
12 Sep
@Kandae11 I would have been happier knowing from the start.
4 people like this
@sabtraversa (9818)
• Italy
12 Sep
If she says there's progress, there must be progress, so no clock turning back. Fortunately. Stay strong.
5 people like this
@Asylum (46838)
• Manchester, England
12 Sep
I accept your point, but the treatment is now starting afresh.
2 people like this
@1creekgirl (8381)
• United States
12 Sep
I can understand your disappointment. But hopefully the doctor knows what's best and you'll get through this. Think how wonderful it will be when you are finally finished. I'll keep you in my prayers...God is merciful.
4 people like this
@Asylum (46838)
• Manchester, England
12 Sep
Obviously the doctor knows best, but I would have liked to have known earlier that the chemotherapy had not finished.
2 people like this
• United States
12 Sep
@Asylum Yes, it would have not been such a shock if the doctor had given you a heads up earlier about it.
2 people like this
@Asylum (46838)
• Manchester, England
12 Sep
@1creekgirl Exactly.
2 people like this
@Platespinner (18095)
• Winston Salem, North Carolina
12 Sep
That must have been rather disheartening.
4 people like this
@Asylum (46838)
• Manchester, England
12 Sep
It certainly was, but I will have to accept it.
3 people like this
• Winston Salem, North Carolina
12 Sep
@Asylum Hope this round goes smoothly and you'll be able to put this behind you.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
@Platespinner I am just hoping that it is the last 3 sessions.
1 person likes this
• United States
12 Sep
Did they even explain why this was going to happen? I hope that you question them about it. I have been wondering how you have been doing. I send a big hug your way.
4 people like this
@Asylum (46838)
• Manchester, England
12 Sep
She said that 4 such sessions was standard, but this was never mentioned previously.
4 people like this
• United States
12 Sep
@Asylum try to remain positive. The fact that you are making progress is a good sign.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
@ElusiveButterfly This is true.
1 person likes this
@singhisback (2258)
• Jalandhar, India
12 Sep
I'm glad that it's going well. Have a very quick recovery.
4 people like this
@Asylum (46838)
• Manchester, England
12 Sep
It is going very well so far, so maybe this next 3 day session will be the last for a while.
3 people like this
• Jalandhar, India
12 Sep
@Asylum Wishing you all the best
2 people like this
@Lizirazo (2517)
• United States
12 Sep
Glad there's progress. Pray and hope all works out fine
4 people like this
@Asylum (46838)
• Manchester, England
12 Sep
It does look as though I am winning to some degree.
3 people like this
@Lizirazo (2517)
• United States
12 Sep
@Asylum you will definitely win my friend.
2 people like this
@andriaperry (31275)
• Anniston, Alabama
12 Sep
I am so sorry. They did this with Tony as well, when he thought he was finished and everything was gone they added more. 25 radiation treatments turned into 33, and 4 very strong bi weekly chemos turned into 6. Then scans and next surgery to get rid of the liver tumor, that made his a stage 4 lung cancer. Then 8 weeks after surgery he is getting ocdivo and yesterday, while Irma was hitting Alabama he was hooked up getting 5 of 6 treatments. BUT the last scan showed no active cancer and he will have another in October. After the one scan the computer was down so it was 3 more weeks before he seen the doctor and Tony had me to ask the questions, one was " is the cancer still eating him up?" and that is when he finally found out he was in remission and the ocdivo will be the watch dog in his body and kill off cancer cells from making. BUT the ocdivo makes him so tired for the first week. All of Tony`s treatments began in January but he did have a couple months here and there to recover and go at it again. Just hang in there, make sure to keep up your weight, eat whatever you can stand or not, just eat. Make sure you ask questions about things you want to know, write them down at home and take them with you. I know how hard this is but you can do it.
3 people like this
@Asylum (46838)
• Manchester, England
12 Sep
For me this will make 12 chemotherapy treatments instead of the expected 9. I would not be surprised to have radiotherapy afterwards, but did not expect further chemotherapy treatments so soon.
3 people like this
@andriaperry (31275)
• Anniston, Alabama
12 Sep
@Asylum I do understand hat is why I say, talk and talk with the doctor, ask all those "what if`s" Radiation is nothing compared to chemo, 99.99% you will not even feel it, maybe have a red spot on the skin where it goes in and that`s about it.
3 people like this
@Asylum (46838)
• Manchester, England
12 Sep
@andriaperry I am sure that radiotherapy would be easier to cope with than chemotherapy.
@BelleStarr (31290)
• Portland, Connecticut
12 Sep
Great news that she was happy with your progress and I imagine she wants to keep it going to get further progress. I am sure it was disappointing to have more but if the end result is good, it will all be worth it. I know you are not a hugger but II am virtually hugging you anyway!! This too shall pass.
3 people like this
@BelleStarr (31290)
• Portland, Connecticut
13 Sep
@Asylum I can only imagine how horrible it is. But if it gives you a longer life, it is worth it, n'est pas? You have so much life left to enjoy after this part is done.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
@BelleStarr Life loses value if it becomes necessary to endure constant unpleasant treatment and discomfort.
1 person likes this
@fishtiger58 (30304)
• Momence, Illinois
12 Sep
Did she say why more chemo, seems strange when she said you were doing well.
3 people like this
@Asylum (46838)
• Manchester, England
12 Sep
She claims that this is standard procedure.
3 people like this
@fishtiger58 (30304)
• Momence, Illinois
12 Sep
@Asylum Hmmm why were you not told this sooner I wonder.
3 people like this
@Asylum (46838)
• Manchester, England
12 Sep
@fishtiger58 Exactly what I wondered.
3 people like this
@m_audrey6788 (11004)
• Germany
12 Sep
I think that they only want to make sure that everything went well and there will be no more problems can occur. Just relax and everything will turn out good. Wish you a nice day!
3 people like this
@Asylum (46838)
• Manchester, England
12 Sep
It would not have been as disappointing if I had known about this before.
2 people like this
• United States
12 Sep
@Asylum I'm sorry to hear that but glad that it seems to be working. When my dad was going through it they only told him the first set initially because they wanted to see if it was having an affect. He too was disappointed when he was told they were continuing it. The key is that they have seen progress which is positive and indicates you have a greater hope of success! I'm praying for you.
2 people like this
@Asylum (46838)
• Manchester, England
12 Sep
I do appreciate that, but was really looking forward to a rest from the effects of chemotherapy.
2 people like this
• United States
12 Sep
@Asylum I know. You need rest from the effects. I hope they are not as bad this time around.
2 people like this
@Asylum (46838)
• Manchester, England
12 Sep
@Berniezeitler I am learning to deal with them, but they are not easy.
2 people like this
• United States
17 Sep
That sounds disappointing. I hope the extra session will be the last one.
1 person likes this
@Asylum (46838)
• Manchester, England
18 Sep
It comprises of 3 days of chemotherapy.
1 person likes this
• United States
19 Sep
@Asylum That sounds like it would be really hard on the body.
1 person likes this
@Asylum (46838)
• Manchester, England
19 Sep
@Jeanniemaries It certainly is.
@just4him (89435)
• Green Bay, Wisconsin
20 Sep
I'm glad you're making progress. Sorry the next round starts in two weeks.
1 person likes this
@Asylum (46838)
• Manchester, England
20 Sep
It will start on Monday, whereas I was hoping for a break from it.
1 person likes this
@just4him (89435)
• Green Bay, Wisconsin
20 Sep
@Asylum I'm sorry you didn't get any kind of break and hope this round is successful.
1 person likes this
@Asylum (46838)
• Manchester, England
21 Sep
@just4him I am hoping that it is the last for a while.
1 person likes this
• United States
13 Sep
If you are making progress you have to look at more treatments as a good thing. You are fighting a hard fight, keep it up.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
It seems to become harder every treatment.
1 person likes this
• United States
13 Sep
@Asylum Let's hope/pray these next three is the end of chemo.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
@Srbageldog (4936)
• United States
13 Sep
I imagine that must have been discouraging to hear. I hope your next set of chemo treatments go smoothly with no complications.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
I would have preferred a period of rest instead.
1 person likes this
• United States
13 Sep
@Asylum I can only imagine. I hope that this will be the last round of chemo and that you'll be in remission afterward and can finally rest.
1 person likes this
@Asylum (46838)
• Manchester, England
13 Sep
@Srbageldog I am hoping exactly the same.
1 person likes this
@CoralLevang (39888)
• United States
14 Sep
I understand how disappointing this is. All I can do is say that I'm sending out some big hugs and know that I'm there to make you laugh and keep you going forward!
1 person likes this
@Asylum (46838)
• Manchester, England
14 Sep
Thank you.
1 person likes this
@CoralLevang (39888)
• United States
14 Sep
@Asylum I mean that, Barry.
1 person likes this