Phosphorous Binders & Dialysis

@freak369 (4952)
United States
July 28, 2018 7:55pm CST
When I was diagnosed with end stage renal failure I didn't want to hear anything about dialysis or ways to make my life with RF more manageable. As much as I hate to admit it, I was ready to give up and let whatever was in the stars for me silently unfold. As you can see ... I am still here and have learned to cope with dialysis but it still takes a chunk of time every week to get dialyzed. Every person handles dialysis (on a physical level) differently and there are more than a few side effects you can experience from it. For me it was extremely itchy skin. It was to the point that I would stop scratching one area and start up with a different part of my body. I am a double below the knee amputee so the phantom pains and phantom sensations were stronger, lasted longer and made wearing prosthetic devices a true challenge. I told my dialysis nurse about it and she got me a prescription for a phosphorous binder. I take one with every meal I eat but if I am going out to eat I will take two for a large meal or if I know we are hitting a buffet. It really makes a huge difference for my skin, dryness and itching. I can still eat high phosphorous foods but with my dose of PhosLo I can have more than a sliver of a serving. Even though tofu is (firm tofu) is high in phosphorous I can still eat it a few times a week thanks to PhosLo. Photo: Me
2 people like this
2 responses
@NJChicaa (42570)
• United States
29 Jul
Diabetes has been effing HELL for you.
1 person likes this
@freak369 (4952)
• United States
29 Jul
I lost both legs, have had vision problems, heart issues and now dialysis. When I say "I have o oe else to blame" I mean it. I never took diabetes seriously when I was first diagnosed. Who knows, maybe if I did I might have been able to avoid these complications. "They" keep trying to kill me but they haven't succeeded yet.
1 person likes this
@NJChicaa (42570)
• United States
29 Jul
@freak369 I know that you did start taking it seriously after your heart attack though. You've done everything right since then and everything has gone wrong for you anyway. It is a crime.
1 person likes this
@freak369 (4952)
• United States
29 Jul
@NJChicaa While it does suck to not have legs etc, I am alive and pushing myself to be as "normal" as possible. When I get back o the trail I want to try to meet up with you and MT when we hit Jersey.
1 person likes this
@JustBhem (39383)
• Davao, Philippines
29 Jul
I'm also into Dialysis for 5 years now and I know the feeling. My Phosporous level is high and I have Renvella for my phosphorous binder. But first I need to work out with my Calcium because once your Calcium is low that means you have a high Phosphorous. I have TUMS for my Calcium by the way.
1 person likes this
@freak369 (4952)
• United States
29 Jul
I was on Ren for a month or so then my insurance company switched it. They do monthly blood tests but as soon as you get on the machine it sends an alert if something is really out of normal range
1 person likes this
@JustBhem (39383)
• Davao, Philippines
29 Jul
@freak369 And how is your Phosphorous now? Is it low?