Thoughts: My secret life, Hope Lodge and Apperances, etc

By Faye
@FayeHazel (40248)
United States
September 23, 2018 4:30pm CST
Hi My Lot, I have been having a lot of thoughts running around in my head lately and I thought I would just write them all out. You probably remember that my mom is dealing with a possible recurrence of cancer. So this means a lot of trips to the clinic which is about 2 hours away. Lots of poking, prodding, blood draws, pictures, images, etc. So last week, seeing as she had 2 appointments on 2 consecutive days we made use of the Hope Lodge. This is a place for people with cancer and their caregivers to stay, free of charge that is close of the hospital and clinics. Thoughts on Hope Lodge. The people there are sometimes bald from treatment. Sometimes they wear masks to protect themselves. The drugs that they are given destroy their cancer, but also their hair cells, and immune systems. And yet most of them carry on their day. A lot of them with a smile on their faces. A lot of people worry a lot about outward appearance. Me too. But when you see these folks dealing with illness - you are reminded that outward appearance is not the most important thing. These people are heros. My secret life. I have been rather open on other social media about my mom's case of recent because I know she doesn't mind it. What I haven't been open about it my dad's struggle that is going on at the same time, because I'm not sure he would want it. But - guess what ? - A lot of people know my parents in real life on other social media. But not here. Therefor here I am allowed to post about it and vent. So, my dad has bad chronic pain. It's been a struggle for years. Recently his pain dr. dropped him for no reason. Not leaving him with enough pills to get to a new Dr. appt. (I don't think this is ethical.) Recently his pain for some reason is a lot worse and the place he is referred to is dragging their feet. So now , most days - he will rant and rave for hours. Do not get me wrong - I don't blame him for feeling down, I don't blame him for not being cheery sunshine all the time. But when he rants n raves for hours on hours on end , refuses to get professional help because he is paranoid, and picks fights with mom and myself - then I have issues with him. This is going on at the same time as the cancer scare with my mom. So we have him dragging mom and I through torment - all while she is going through this. I really don't know what we are going to do. When it rains it pours. I still try to find something, one thing - to enjoy during the day. I hope my mom is able to do the same. So these are my thoughts, randomly running in my head. I hope life is treating you well MyLot friends. Photo: Pixabay
14 people like this
14 responses
@bluesa (15023)
• Johannesburg, South Africa
24 Sep 18
Sorry you are dealing with so much Faye. I know your Mom needs peace at this time with what she is going through and I know you need peace so you can be strong for her, so it is sad your Dad is unable to keep calm. Yes, pain can cause a person to be aggressive and I think he might be feeling a bit of guilt for how he is behaving at this time which could also lead to aggression. I hope your Dad can find a new pain Dr. very soon. I also hope there will be some peace for your Mom and you. I am glad Hope Lodge is there to help so many going through a terrible battle with Cancer @FayeHazel. I also have a lot on my mind, lots of worries, but I am praying and hoping for the best. I hope that the tests your Mom has been having will reveal that the mass is not cancerous. Wishing you only the best with everything.
2 people like this
@bluesa (15023)
• Johannesburg, South Africa
27 Sep 18
@FayeHazel you have a lot on your mind and your Mom is your focus at this time. I hope your Dad will get some treatment soon too, so that he can hopefully calm a bit. Thank you, Faye I am glad your Mom gets a big kick out of myLot and I hope it lifts her spirit. My Mom also appreciates all the well wishes from myLot. Tell your Mom we say to her "Sterkte" (all the best)
1 person likes this
@FayeHazel (40248)
• United States
28 Sep 18
@bluesa Thanks for the kind thoughts. So true. Yknow, my dad has been claiming that he is "blackballed" from Dr's. Normally I think this is just his paranoia.... but with the lack of luck he's been having... maybe there is something to it.... Oh all the best from me to your mom from the frozen tundra, I mean, ah, Minnesota..... Oooo new South African word! Cool! Mom will be delighted
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Thanks dear. I didn't look at it that way. It's easy to be cross with him, but he might be feeling a lot of different levels at the time. I hope he gets some treatment soon... I will include you in prayer too. I hope those worries resolve themselves. We appreciate the thoughts and prayers here too. Mom gets a big kick out of My Lot sending her wishes all the way from South Africa even. :-)
1 person likes this
@Kandae11 (53679)
23 Sep 18
I am sorry to hear about all that you are going through - and I can understand how helpless you feel about the whole situation. Your father needs the right medication for his pain and your mother needs peace and quiet at this time.
2 people like this
@FayeHazel (40248)
• United States
26 Sep 18
So true, and I hope they both get what they need. It feels weird but both are things I can't do for them unfortunate
@popciclecold (35078)
• United States
26 Sep 18
Oh my, I am really sorry to hear about all you are going through, the only thing I can think of is prayer for you and your parents.
1 person likes this
• United States
29 Sep 18
@FayeHazel Take care.
1 person likes this
@FayeHazel (40248)
• United States
27 Sep 18
Thanks so much dear, prayers are much appreciated
1 person likes this
@FayeHazel (40248)
• United States
3 Oct 18
@popciclecold Thanks! You too
1 person likes this
@TheHorse (205554)
• Walnut Creek, California
23 Sep 18
I hope your dad finds a new pain doctor quickly. Do you have any idea why his old doctor did what he did? It seems unfair.
1 person likes this
@TheHorse (205554)
• Walnut Creek, California
26 Sep 18
@FayeHazel Perhaps you could file a complaint. Everyone has to answer to someone.
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Thanks! I hope so too. The referral place called - and accused him of being an addict. I can vouch for him, he isn't. He has the pain and injuries that the pills make life livable for him. Not sure with that Dr. Actually something didn't seem right there all along. The nurse did most of the talking and was argumentative. On the first visit the Dr. accused him of not taking the prescription. That was true - he didn't, because he hadn't received the prescription from him yet - so couldn't take any prescription he didn't have. Also accused him of drinking to excess - I can vouch there too. He rare to never drinks.... A lot of reviews state similar things, argumentative drs - false accusations.... Hope they get reviewed by whatever board looks into them....
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
@TheHorse There's a thought - Now to find the right agency.....
1 person likes this
@Courtlynn (66921)
• United States
25 Sep 18
I'm so sorry for all you and your parents are going through. Has any of you called the dr he has been referred to to tell them how bad he is and that you really need him to be seen?
1 person likes this
@Courtlynn (66921)
• United States
26 Sep 18
@FayeHazel that is disgusting! so sorry.
1 person likes this
@FayeHazel (40248)
• United States
27 Sep 18
@Courtlynn Thanks - there is something really wrong with our medical system
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Thanks dear :-) Actually the place he was referred to finally did call. They accused him of being an addict. I don't understand where they think these things since he has images and proof of injuries....
1 person likes this
@Starmaiden (9311)
• Canada
23 Sep 18
When there are no words...
2 people like this
@FayeHazel (40248)
• United States
26 Sep 18
Thank you dear
@AmbiePam (85417)
• United States
24 Sep 18
Does your dad know he's cause for your mom's misery, for your misery? From what you have said before it seems he wouldn't care even if he knew. Don't you just wish one day someone would say, "Hey, you are not the only one suffering, and you are making everything worse. How about you start thinking of others? And how about you get over yourself and get professional help so everyone's lives will improve?" it doesn't sound sympathetic, and despite my last few sentences I understand how bad chronic pain is. Which is why it I were him I'd get professional help as soon as possible.
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
That's just it, I don't think he actually knows that him - ranting for hours, depressive talk and misery, - makes anyone upset or miserable. Even if it gets mentioned , when he is in certain moods, he will just say that everyone "has problems too". But - on the other hand - when hes in another mood he can be caring. It goes back and forth Oh no, I know that you are nothing but kind hearted - but I also know you've had to deal with someone similar in your family too.
1 person likes this
@Orson_Kart (6095)
• United Kingdom
23 Sep 18
Chronic pain will be depressing. And the trouble with pain is, it can't be measured or felt by the doctor, only described. I hope he can get some relief and then maybe he will be more pleasant to you and your mum. In the meantime, just make sure you give yourself some "me time" otherwise it will drag you down too. Tough times for you right now.
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
You're right, too bad there is no test of pain. And Im actually all for the laws to prevent people from abusing the pills and so on, but people who have the pain shouldn't be cut off from their meds. Thanks, I'm trying for some more me time, my mom gets it , anyway. Thanks... *sigh* there is no way around things, just through
@amadeo (111948)
• United States
23 Sep 18
well that is rough there.the only thing you can do at this time is bite the bullet.
1 person likes this
@amadeo (111948)
• United States
26 Sep 18
@FayeHazel yes that is true there.you do what you have to do
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
So true. Sometimes there are no ways around things. Just through
@1creekgirl (40489)
• United States
24 Sep 18
I'm so sorry to hear you're dealing with your dad's problems along with your mom's. Has he seen a psychiatrist? Sounds like he needs some help. I pray your mom will get good reports. We need her to get us going with the Vicki Club, you know.
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
I so wish he would go see a psychiatrist - but his PTSD and other mental issues came with a side helping of Paranoia unfortunately. When he has gone in the past, he doesn't trust them or thinks they are "out to get him". :/ It's too bad he can't see what life could be like. Thanks! She gets a big kick out of the Vicki club
@JudyEv (325584)
• Rockingham, Australia
24 Sep 18
I forgot to say you have a typo in your title. I think it should be 'appearances'. Hope you don't mind me saying. And aren't places like Hope Lodge a godsend? Two hours each way is a long journey especially if you're not feeling well.
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Oh thanks, and I don't mind. Oh yes, so true, while its not where anyone wants to stay, it is still a real blessing if you need it
1 person likes this
@JudyEv (325584)
• Rockingham, Australia
24 Sep 18
That would be so hard to deal with. I do hope your father can find some relief for his pain. I guess he has tried some other methods? Acupuncture maybe?
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Thanks! I hope he gets help too, it's hard for people with pain issues here now. He has tried a lot of stuff. Maybe the acupuncture would be something though
1 person likes this
@dgobucks226 (34343)
25 Sep 18
So sorry you and your parents are going through such troubled times. "Sometimes life hits you in the head with a brick. Don't lose faith." -Steve Jobs
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Thanks DB. Sure hope life will get done with the "bricking" soon lol
1 person likes this
@porwest (78761)
• United States
26 Sep 18
Hard to hit the "like" button, but I "liked" the post for reasons other than I like your situation. Life is a struggle. It is never easy. It is equally never easy to see the people we love having to endure less than ideal times in their lives. But in the end it is what it is. All we can do is do the best we can to cherish what time we have, try to make that time as memorable and as enjoyable as possible, try to comfort THEM as best we can, and I think also use the experiences to serve as reminders to ourselves how little time we have, how precious the time is, and how somewhere down the line WE may not have the health or the ambition to LIVE. I don't mean your parents want to die. But very quickly our lives turn and we often look back and think about all the little stuff that did not matter, all the wants we did not fulfill, all of the opportunities we missed, thinking "just one day I might," only to arrive to a time when we can't. I don;t know what advice to offer you. But I certainly feel for your situation. All you can do is try to make the best of it, and try to find some positive somewhere within it. It's there. It's hard to find sometimes. But its there.
1 person likes this
@FayeHazel (40248)
• United States
26 Sep 18
Thanks for the sentiment. I know the feeling. It's easier sometimes to think of "like" as "show support". A better word for it, I think. Also true. I think there is no way around some things, just through. And that's what this is. A very good point. My dad is very much that way in the meaning that he always wants things to be perfect until he's happy and he's rarely happy. In fact it seems life is made up of the small things, the unplanned, events and relationships. Not having the biggest, or the best of whatever. You're right there has to be something good in here somewhere. Thanks for the wisdom