Could someone please explain Fibromyalgia

@Ravenladyj (22937)
United States
March 8, 2007 8:17am CST
I have a very dear friend who was telling me about it when we were discussing my physical issues recently and when I was telling her certian things that go on with me she suggested I may have Fibromyalgia....so I've done a little research since then but i'd like to know from some of you who have to deal with it what your situation is/was/has been like....For example, what were some of the symptoms? did you have a hard time getting your doctor or finding a doctor who would look into it?(I know some docs still dont believe it exists) do you find that it "acts up" (for lack of a better term) more at certain times than other (cold weather, doing certain activities maybe etc etc)? thanks in advance for any help/comments/suggestions and so on +++ for everyone
4 people like this
12 responses
• United States
8 Mar 07
I've had fibro for 7 years chronic pain is the most noted symptom u just hurt but there r so many others and it varies with each person. it's very hard to treat cause the symptoms r so differnet. there is a good web sight fibrohugs.com that has all kinds of info on it Good luck!!! oh it's hard finding a doc most tell u u r nuts been my expereince anyways
3 people like this
@Ravenladyj (22937)
• United States
8 Mar 07
LOL luckily for me my doc already knows i'm nuts so she wont get away with throwing that excuse at me ;-) The chronic pain is one of the key reasons that one of my friends thinks I should look into it....its consistant but dependign on what I've been doing and the weather etc the severity varies...PLUS i have a disgustingly high tolerance for pain which doesnt help me any...what maybe brutally painful for someone else is just highly annoying for me if htat makes sense so when a doc asks "does that hurt" my honest answer may be preventing him or her from digging deeper ya know...Which oddly enough JUST occured to me..... thanks for replying :-D ++++ for you and everyone else who is helpful actually
1 person likes this
• United States
8 Mar 07
My mother has fibromyalgia and it's a chronic condition that causes widespread pain throughout the body. People describe the pain as deep muscular aching, throbbing, shooting, and stabbing. My mom's pain is worse in the mornings with stiffness. Some other symptoms are fatigue or sleep disorder. My mom deals with sleep apnea, which is another symptom of fibromyalgia. She deals with IBS on a regular basis now after having been diagnosed with fibromyalgia for 7 years. It took over a year for a doctor to recognize her symptoms as fibromyalgia. Now she attends sleep therapy sessions, which helps with her daily pain. She takes a couple of medications for the pain, but some knock her out, so she deals with the pain most days. To answer your question about it acting up - she has more pain after exercising because a particular muscle group has been used for a while. She feels worse in cold weather and in the mornings. If your doctor doesn't take this serious, I would recommend getting another opinion.
2 people like this
@Ravenladyj (22937)
• United States
8 Mar 07
Thanks so much for responding.....yea I definately hurt more in the morning and defintely in the cold weather too but I've also had arthritis for yrs now in various areas of my body so I've always chalked it up to that...Ive not mentioned it to my doc yet but I think I will my next visit and then if its not that, thats one more thing I can cross off my list of maybes....thanks again :-D
1 person likes this
• United States
8 Mar 07
It's often misdiagnosed as "arthritis" by many doctors because of this too. Chronic Fatigue Syndrome is also often what a doctor will dx you with, ignoring the other facts. Get tested for sure.
1 person likes this
@bam001 (941)
• United States
8 Mar 07
I can tell you what it is like for me... I am literally tired all the time. If I do too much one day, I will probably not get out of bed the next day. It is very discouraging to be this way. I also deal with the a;;-over body pains. I don't like to be touched when I am in a flare because it hurts too much. I had to go in for an MRI earlier this week. When it came time to inject the dye (for the contrast films), the pressure the tech applied to find a vein for the injection hurt horribly. I was almost in tears before she found a good vein for the injection. The injection itself...I couldn't feel, I was still aching from the pressure of finding the perfect spot. Recapping symptoms for me: extreme fatigue, all over pain that interferes with my daily activities, plus...migraines, frequent sinus infections, night sweats, nausea. I do find that my fibro is worse when it is cold outside or raining. Today it is around 60 and dry and I have energy and feel pretty good...but if I try to do all of the stuff I have been putting off, I will probably be in bed all day tomorrow paying for it. Last, it has been incredibly frustrating dealing with doctors and nurses about this disease/syndrome...there is no standard test for it, so how can it exist (typed with sarcasm)? My response to that is: I am the one hurting and feeling horrible...it does exist!
2 people like this
@Ravenladyj (22937)
• United States
26 Mar 07
"When it came time to inject the dye (for the contrast films), the pressure the tech applied to find a vein for the injection hurt horribly. I was almost in tears before she found a good vein for the injection. The injection itself...I couldn't feel, I was still aching from the pressure of finding the perfect spot" I went for Xrays a few weeks back and ended up (particularly the next day) in pain in all the points where the tech touched me to manipulate my body for the Xrays...it was bad the day of, like that evening but the next day it was really bad...
@nuffsed (1274)
8 Mar 07
Hiya..Raver.. :) I do know that some consider this a psycho sematic disorder. Those dreaded words that cause people to scoff... "Oh it's all in the mind!!" Well, what on earth could be worse? Much of the worst pain in our lives will be simply as a result of what is going on upstairs. So you have my deepest sympathy, because whatever happens, it isn't something that can be cut out. You might have seen the links I'm offering, but what else can I offer lol http://www.arc.org.uk/about_arth/booklets/6013/6013.htm http://en.wikipedia.org/wiki/Fibromyalgia Big Hugs xx
@CatNPK (461)
• United States
8 Mar 07
Widespread pain as a symptom of fibromyalgia can also be caused by a wide variety of other conditions, so only a doctor can diagnose it for you. The range of symptoms vary from person to person, as with any other chronic disease. Typically you will experience on and off digestive issues, even if not so bad as to be considered Irritable Bowel Syndrome. Dietary adjustments help, but are sometimes not enough. People suffering from fibromyalgia almost always feel worse in the morning - but just because you are stiff and sore, doesn't mean you have it. Age, lack of exersice or over-exersicing, arthritis, even just a bad mattress or bad sleeping position can do this, many more things. So-called "fibro fog" is the cognitive impairment that often comes with fibromyalgia, basically meaning a person with the disorder can appear forgetful, spaced out, or ditsy. I've never met a doctor who does not believe fibromyalgia exists, but some feel it's overdiagnosed or incorrectly diagnosed due to the similarities with other chronic pain disorders. The good news is, this is a very managable syndrome if you are willing to work with your body. Massages, hot yoga (bikram yoga) or saunas, and stretching exersices are very helpful - although with fibromyalgia you never know when something will flare up.
@marciascott (25554)
• United States
8 Mar 07
I think I have it. you get pain in your body all over. Iron pills works good for this. I have been taking iron pills and it helps. go to www.webmd.com The website can tell you more about it. have a nice day!
2 people like this
• United States
8 Mar 07
I have a very close friend that has Fibromyalgia and from what I can tell of it, her symptoms are so very, very much like my MS symptoms. The biggest difference is that I believe there are tests that can verify Fibro vs. no tests to confirm MS. I may be wrong about that though. Also, check out the Fibro website for a ton of info. http://www.fmnetnews.com/ This is loaded with patient info. Like MS, it IS very difficult to get a diagnosis and then find a doctor that has a clue. Use the site to look up doctors and get more info. I have a doctor that instantly UNdiagnosed my MS for me. Great eh? LOL All these years all I needed was HIM to be cured... or so HE thinks!
@Ravenladyj (22937)
• United States
26 Mar 07
jeez...I have such little faith in the medical field the past few yrs..I really do...Thanks for that link I'll have to check it out...
@mobyfriend (1019)
• Netherlands
17 Mar 07
It's an inflammation of the tissue between the bones and that can be in every part of the body. The problem is that parts that are not imflammated can be become painful to because they compensate the painful. An inflamed left hip causes a patient to depend on the right hip which in turn becomes painful because it has to work too hard. I am volunteer with a yogatherapist who works with fibromyalgiapatients. What you need is fysiotherapy, medication and relaxationmethods like yoga. Have a look at this site http://www.fmnetnews.com/ This is their definition: Fibromyalgia means pain in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. And I hope you can find out for sure what is wrong with you.
@Bee1955 (3886)
• United States
11 Mar 07
Here's a website that helped me understand fibromyalgia when my best friend was diagnosed. http://www.fibroandfatigue.com
• Canada
11 Mar 07
Fibromyalgia is a parasite and it goes into hiding when it feels threatened and stays there until it feels secure. Thus the highs and lows of fibromyalgia, very hard to get rid of and the doctors do not believe in parasites and can not treat you. There is a treatment for fibro is slow but possible If you know how to get in touch with me I will enlighten you more. Sincerely Boyd J. Bruce
@rukku9 (16)
• India
9 Mar 07
If you believe in alternative therapy have a look at the various sites on Kombucha Tea.I have personally benefitted from drinking this tea. I have no personal knowledge of benefits or cure relating to Fibromyalgia.DR.Guenther's sites and a site called Kombucha America may help. being alternative medicine,this cannot be taken as medical advice. I am impressed with its curative properties.Hence i recommend this tea.whether and how it will benefit you cannot be predicted.
@wisedragon (2330)
• Philippines
9 Mar 07
Fibromyalgia is usually caused by stress. You feel aching in the upper back area. There will be "trigger points" which are exceptionally tender. My experience was so severe that when someone lightly places her thumb on my upper back, I would feel severe pain. You will be relieved by massage to the upper back area but the most important treatment is to resolve or eliminate whatever is stressing you out.