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MS and warm... email this discussion to a friend?

myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms1 year ago

I don't know how many MS sufferers there are on here, but I'll tell you, I am not having a good time with warm weather.

I am not able to walk properly. I feel like I'm drunk without the booze buzz.

When i was told that warm weather wasn't really good for persons with MS I figured oh well, whatever...

Surprise! It's tough. Shaun, I will never know how you can do Florida. This is crazy...

Anyone else with neurological disorders that have problems in heat?

 
 
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mugzy528 (641) response was accepted on 6/6/2007.
denotes best response.
tags:  multiple sclerosis, ms, heat, problems, disorders
 
1. myLot reputation of 96/100. moonshadow68 (429)   ranked 3 out of 33 in ms   1 year ago

Absolutely!
Here in Southern Illinois the temps are reaching the mid-90s and my MS is going crazy. My foot didn't bother me most of the winter and now climbing the five steps to my house is difficult, not to mention taking the laundry down to the basement.
I can't imagine how Shaun does it either...I'm looking to move north (though not as north as you).
Air conditioning helps, except that then when you go outside its like an immediate sapping of your strength and energy.


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

I think I need some time a some Stalag. Into ze kooler!


myLot reputation of 95/100. Shaun72 (11293)   ranked 1 out of 33 in ms  1 year ago

Both of you have this right. I do get week in the sun. It's rainy today so it's not to bad right now at least.

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2. myLot reputation of 73/100. lauriefnp (4242)   ranked 9 out of 33 in ms   1 year ago

I'm sorry that you have to suffer like this, especially when the summertime is what most of us in the temperate climates live for! My sister-in-law has MS, and they had to sell their Jacuzzi tub because the heat of the water made her so weak and wobbly that she couldn't function. She also has trouble on really hot days, but it doesn't sound like her symptoms are as bad as yours. Is there any adjustment of your medication that could be made to help you out?


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

Unfortunately, there is no medication that can reverse symptoms. The only medications available only reduce the strength of the attacks. They still happen, but they say they are not reduced in number of attacks.

Maybe someday though.

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3. myLot reputation of 95/100. Shaun72 (11293)   ranked 1 out of 33 in ms   1 year ago

I have to stay in doors during the day with my air on and I also do get shaky but I have to take pills for it. Like baclofen and activan and i also have to drink alot of gatorade and water. I already found out earlier this year my electrolites are messed up beside shaking from ms. I hope your body doesn't shake like mine does sometimes it gets scary.


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

Right now I'm only vibratey and weak. I pretty much live with slight numbness and tingling in the limbs. Balance is pretty much hooped all the time.

I have joked that a Bumble Bee could whack me off balance. I'm not THAT bad, but it feels like it sometimes.

It's funny, the sun never was my friend.


myLot reputation of 95/100. Shaun72 (11293)   ranked 1 out of 33 in ms  1 year ago

When I was younger I liked it some but not anymore.

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4. myLot reputation of 95/100. crickethear (1137)   ranked 11 out of 33 in ms   1 year ago

Hey Freebc, Oh it is so nice to talk to someone who suffers the same thing. I too have MS, and I do not handle heat well at all. The hear we are having right now, is taking its toll on me. It also affects me, like I am drunk. I stumble, and my coordination gets off. I also get this feeling like a fish out of water. I much prefer the cooler weather. Every time summer comes around I gringe the hot days, because it has such an effect on me.

related resource:
water cooler


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

My lower right arm is twitching like crazy the last few days? Maybe a week. Is that what they call spastic?


myLot reputation of 95/100. crickethear (1137)   ranked 11 out of 33 in ms  1 year ago

Yes, I get body jerks, and they call that Clonis. I take Lorazpam for that. It helps some. I that that twitching, and jerkiness. I also get shakey.

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5. myLot reputation of 98/100. liranlgo (2874)   ranked 13 out of 33 in ms   1 year ago

Well i do not have an health problem..tfu tfu tfu
But i can tell you that the very hot weather in this country during the summer does cause me to have those effects.
Weakness, headaches, and other things.
i do not think that hot weather is really healthy for anyone.


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

Well, there is a good thing with you hottropical climate.

MS is either nonexistant or at most very rare in tropical climates. That's one of the reasons they think it is viral more than genetic. But since they cannot see what virus might be the trigger, they cannot know for sure.

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6. myLot reputation of 97/100. mugzy528 (641)   ranked 6 out of 33 in ms   1 year ago

I Also have MS and the heat is the worst thing for me anymore I live with my Father and he says he understands about ms but will not turn the AC on untill its like 85 in the house andwhen it gets above 80 I start to feel it, Now yesterday I told him I need the AC and he said it was ok but if he keeps this up I will have to go live with someone else. He takes good care of me Except for this.
Have a Great Day/Night.


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

Sounds like your body is wracked pretty good. I don't have the AC option here because we don't generally need it except for a few days each year.

Someone described it as something like 9 months of winter and 3 months of bad sledding...

This warmth shall pass too. Only two more months to go. They can be toughies now because June is usually pretty wet, and September starts to get wet and cool again. By the end of the first week of September, we normally have had a good frost which gets leaves changing colours pretty fast.

By about mid-October the trees are in the very best golden yellow and as soon as the October winds have come by, the trees are bare waiting for winter to march on in.

Halloween is often walked by kids in snowsuits to keep them warm.

Then before you know it, we have some snow to announce the winter season's re-arrival.

Anyway, I wish you well. I'm hoping that the disabling aspect of the MS will give you a break for a while. Nice to talk to you.
Mike

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7. myLot reputation of 95/100. slickcut (5113)   ranked 32 out of 33 in ms   1 year ago

No I not been told of this at all,I did know a lady that had MS,i did her hair in my shop but she never related to me about the heat.I am sorry you are having a bad time,i wasn't aware that the heat had any bearing on MS,i suppose we learn something new everyday.Just be careful not to fall ...I don't have neurlogical disorder but my husband has menieres disease which makes him dizzy and he cannot take heat well either,I do try to make him stay inside during the hot weather though.I suppose we all have our demons to fight.I have crohns disease and it makes it tough for me to be anyplace that does not offer a bathroom,and i have been in many tight spots before.Well take care,and stay close to you a/c...


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

We get so little 'hot' weather here, the only air conditioner most people own is in the car.

It's cooled off again now thanfully.

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8. myLot reputation of 100/100. sherrir101 (2911)   ranked 7 out of 33 in ms   1 year ago

I suffer in the heat and humity. I was diagnosed 9 years ago with R/R MS. I know now why I was always weak in the summertime. The heat absolutly wipes me out. I would say that is my biggest gripe with my MS. I lived in Houston, Texas for 3 years and my MS explains alot of things. My falling and 'drunk' walking is always worse in the summertime. This year, the heat seems to bother me worse. I live in my air conditioning in the warm weather.


myLot reputation of 68/100. freebc (1501)   ranked 2 out of 33 in ms  1 year ago

I don't what they call what's whacking me, but it seems to be something progressive more than R/R.

I guess this is the bonus for maturity onset. I was 48 when I got the diagnosis. Likely 47 at first strike.

According to the stuff I've seen, this is not good, but you gotta play the cards as they are dealt.

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