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myLot reputation of 99/100. lamb101 (1248) 5 years ago

i am wondering if there is any natural / herbal medicines i can get for my daughter grace 2.2yrs oldshe now on epilium & not doing so well @ present
she was in hospital @ xmas as she had several fits along with severe asthma
since comming home grace has had more severe fits they have changed by way of she was just having fits where she would hit her head & spacing out
now thou she is having fits where she just falls to the ground & also where she is also biting thru her skin quite deep to the point of it looks as thou she has been bitten by a dog
however we have got an urgent appt. with the paediatrics team here to disscuss this as to wheather to put her on another med as well as the epilium & what to do next with her
grace has had an E.E.G. MRI scans & several other tests they are @ the point where they are thinking of doing a C.T. scan to see if there maybe some thing they have misssed
they can't up her epilium dose as she is alredy on the max dose for a 2yr old she is the height & weight of abt a 4-5yr old she is only 2.2yrs old
many thanks
lamb101 xxooxx






 

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pammid (1648) response was accepted on 4/26/2008.
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tags:  biting, epilepsy, epilepsy siezures, epilim, natural medicines
 
1. myLot reputation of 83/100. albert2412 (1499)   5 years ago

You might consider going to curezone.com This is a natural cures listing. A lot of interesting stuff is there. Albert

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2. myLot reputation of 89/100. pammid (1648)   5 years ago

Hi Lamb
My son too has epilepsy (JME ) he is 17 & was diagnosed 2 years ago,he too had all the scans you mentioned,one of the scans showed epileptic activity & he has a cyst on the left side of his brain,which the doctors say is not connected to the epilepsy & will not effect him now or in the future,he takes 500mg 2 times a day of epilim chrono,we are lucky thats the only ones hes ever had to take,no seizures since April 2007.
I know exactly what your going through with your daughter,the biting of the tounge etc,we feel so helpless & just want it be us instead of them !!Sometimes people have to try different meds before they find one that will work,not sure how that works with a 2 yr old tho.
Anyway i dont know anything about herbal medicines,i wish i did !!
Are your a member of any epilepsy forums?
Heres one that myself & my son are in,its great!!
someone hopefully will be able to help you in it.
http://www.epilepsyforum.org.uk/
If you have any questions or just need to chat well you know where i am ok.
Hugs Pammid

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3. iansmom24 (31)   5 years ago

I know it gets expensive but if you can find a naturopath in your area or if you are fortunate enough to have insurance that will pay it would well be worth it to have your daughter checked out. I don't know enough to say what could possibly be wrong but at least have her checked out for heavy metal toxicity and possible food allergies. They can do hair analysis to see if she is reacting to something. They obviously don't have a diagnosis such as a particular syndrome. Also, why is she so large/heavy? The drugs wouldn't cause abnormal growth so is it possible this has to do with hormonal imbalances? An undiagnosed tumor? I know she has had the usual scans etc. Have you taken her to a pediatric hospital? You have a very difficult situation to deal with and so much heartache and worry and my prayers are with you. Good luck!

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4. NIGHTWOLF420 (12)   4 years ago

Hi I hope all is well at your end so far , I'm a 41 year old male & I was diagnosed with EPILEPSY at the age of 14 months. I wasn't told about my siezures & of the effects due to the age . Not until I was 15 did I finally findout what was wrong with me. The Dr told me MY MOM asked for Me not to know until a later age about it for I wouldn't understand back then. Well i'm now moved out from My moms place in ILLINOIS & living with my fiancee in KENTUCKY . We'Ve been together 4 years 3 months as of FEB 19Th 04 - We met online on Yahoo & Still together Thank God for He was the one who brought us together all on pure faith inbetween my fiancee & I. I've only had Grandmal siezures once in my lifetime & that was back in NOV 2000 4 of them back to back. I was hospitalised & in there for a week or so , then released. Other than that i've had both Pitete mals & Medium ones. I'm not sure what all your daughter is on , but i'm on 4 Anti-Siezure meds for mine but not all of them I take same number or dose of at sametime. All are taken differently 3 Times daily 8AM 2PM & 7PM . Hope to hear from you soon . :0)


myLot reputation of 99/100. lamb101 (1248)  4 years ago

hi there
grace was on epilim 6mls & tegratol 4mls until about 2 month ago as we are trying to ultimately get her on just tegratol so we have been trying to slowly get rid of the epilim when we got her down to 5mls she was ok so we proceeded down to 4mls she started to have very different fits unfortunately where she was biting really hard into the skin it looked like she had been attacked by a dog all over her arms she stil has the scars to prove it on her fingers as it left some nasty gaugers & so we decided to put her back on 5mls again & leave her to see how much longer to be able to do another decrese in her epilim just about 5 weeks ago we decreased it again down to 4 mls again it OMG... it worked so but she ended up in hospital last week with an asthma attack & we thought she was going to go backwards again but she hasn't thank heavens & so this week i did another decrease which she seems to be coping with @ present so hopefully next week we can take it down to 2mls & in another 2 weeks i can get her down to 1ml etc.. & hopefully right off the epilim before she sees her paeditrician john clarkson on the 23rd june 08 other wise we'll probebly have to increase the tegratol up another ml as we decrease the epilim again so fingers crossed we don't have to up it but if we do then so be it i spose
grace hasn't had many big seizures since the dog-like attack she had thank god for that & all the prayers that have been said for her while we have been doing the decreases have helped alot i think to.
latas lamb101
xoxoxoxoxoxoxoxo

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