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I am feeling so gross the last couple days. email this discussion to a friend?

myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis5 months ago

MS is for the most part annoying where I am now.

A couple days ago I was up to the hospital for steroid I.V.

But yesterday and today I just am feeling like crappola. It's like an indigestion that won't seem to go away. And weak and wobbly. This really blows. I don't feel useful at all and as I say, just feel blah...

I hope none of you are doing anything like this. It ain't fun. If I ever felt like this 24/7, I could certainly understand why so many folks with MS or something similar do themselves in. (I'm not contemplaiting this either by the way...)

 
 
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Irishfrndly65 (2790) response was accepted on 6/6/2008.
denotes best response.
tags:  ms, disease, attack, gross, feeling
 
1. myLot reputation of 96/100. Irishfrndly65 (2790)   ranked 23 out of 144 in multiple sclerosis   5 months ago

Saying a prayer for you Mike. I hope that you are feeling a bit better soon. I don't know much about this disease but I know it can be so debilitating. When were you diagnosed? Is there anything diet related that helps it?


myLot reputation of 96/100. Irishfrndly65 (2790)   ranked 23 out of 144 in multiple sclerosis  5 months ago

Ok, I don't know if you are interested in natural remedies and therapies but take a look at this site and see if some of the info peeks your interest.
http://www.curezone.com/diseases/ms/
Remember to sift the 'chaff'.;)


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  5 months ago

MS is debilitating alright.
I was diagnosed in '05 and am considered a 'maturity onset' case and from everything I have found statistically, it's not a happy time. But oh well life blows a bit but you carry on.
As for food cures, there is nothing that can be substantiated to help.
However, they have found that many herbal remedies that strengthen the immune response are actually bad for you.
Things like licorice, green tea, ek-in-a-shia stuff, and things like it make the immune system go faster and harder.

Since MS is a disease of the autoimmune system, the last thing you want to do is make the thing that is making you sicker, stronger.

It is thought among many things, that MS may have a viral connection rather than mere malfunction of the body. But once MS takes off, it attacks it's own nerves causing all manner of 'short curcuits' in the body.

When I was first diagnosed, I was told that nobody dies from MS. I responded back that dying wasn't the issue for me. Living was. The last thing I want is to be a 'pile of meat in a wheel chair'... Didn't win too many friends with that line but they soon knew what I meant by it.

Multiple Sclerosis Information Learn the history of MS, how MS is diagnosed and current MS therapies. www.Copaxone.com
 
2. myLot reputation of 99/100. Fishmomma (3324)   ranked 34 out of 144 in multiple sclerosis   5 months ago

I'm sorry your not feeling well. Its always terrible when medication doesn't make us feel better. I wish there was a cure.


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  5 months ago

I wish there was a cure too.

My problem with this disease, is stress. Wanda and I are trying to buy a house and we are having no fun trying.

Then, I have Jason who is more than I can keep up to these days. And blah blah blah.... You know?

Stress is something I have never been able to deal with. And it's not just pressure. It's the pressure of having to depend on other people for things. I hate having to depend on other people to get something done. I have to have control dammit! I am a control freak. And a bad one too!

Multiple Sclerosis Disability Income Can't work due to MS? You may qualify for disability income. www.allsup.com
 
3. corareedphoto (17)   ranked 68 out of 144 in multiple sclerosis   5 months ago

I know a lot of food cures don't work, but I that when I get really really sour stomach I eat ginger candy and it helps. I also drink sparkling water instead of tap, which seems to take the acid down without having to take antacids, which can also cause kidney stones. (This proved by my dear brother who used to pop them like candy.)


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  5 months ago

That would be a great idea if this was actually the indigestion. But this is one of those things that comes with MS.
Just feeling rotton. I've had this before.Hopefully it will go away. Partial recovery happens frequently with MS. I am hoping for that.

multiple sclerosis immune system destruction Breaking News, Expert Tips, Member Support, Treatment Options & More. www.everydayhealth.com
 
4. Carolehere (1)   ranked 67 out of 144 in multiple sclerosis   5 months ago

Mike, I was diagnosed in '04, so I'm kind of new at this as well. So sorry you're having such a time of it right now. Have you taken any good physical therapy by someone well familiar with MS? I know of 2 different patients who felt a dramatic difference in their symptoms after a few weeks or couple of months of this. It must be someone who understands how to cater to MS patients. Do consider it.
Be well. Hope all this improves soon.
Carole

Medications for Multiple Sclerosis OTN Specialty Services provides medications for Multiple Sclerosis. www.otnservices.com
 
5. myLot reputation of 94/100. Mcbuttero (848)   ranked 33 out of 144 in multiple sclerosis   5 months ago

That's just awful Mike.... so sorry you're feeling down in the dumps and sick. Is it the weather that makes it worse? I'll remember you in my prayers my friend!


myLot reputation of 94/100. Mcbuttero (848)   ranked 33 out of 144 in multiple sclerosis  5 months ago

I just got to thinking about it and this popped into my head. Years ago I was watching a program on TV and it was about MS patients and a new therapy (at the time) they were trying out. This was MS patients that were so bad they were confined to wheelchairs and couldn't stand on their own. They took bees they got from local beekeepers and put the bee on their leg and held it so it stung their legs... they repeated this so many times a day for so many days and after a short time they were able to walk. It had something to do with the venom. They said they went from no feeling at all in their legs to even feel the sting... then after several days or a couple weeks they started feeling sensation in their legs and the bee stings. Isn't that weird?!


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  5 months ago

Bee sting therapy it was called. And unfortunatly, they don't really understand what was happening there. But the buggest problem was for the bee. It was the honey bee's last act on this planet.

What makes it worse? Hard to say. The weather and stress does for sure. But this is so unpredictable, that you never know what it's going for next.

Conquer Multiple Sclerosis Discover how you could overcome the symptoms of multiple sclerosis. www.nomorems.com
 
6. myLot reputation of 84/100. cathyt1557 (140)   ranked 17 out of 144 in multiple sclerosis   5 months ago

The IV steroid makes me feel terrible. The first time I had I was told I would feel like a million bucks instead I get excruciating headaches,my vision is blurred, my appetite is gone and all I want to do is sleep. Needless to say, I don't get it often and try my hardest not to get it. I can't take the oral steroid either. The second it hits my stomach, it comes right back up and gives me intense stomach pains. I was told it wasn't supposed to do that. Well, whst it's supposed to do and what it does do are two entirely animals. Hope you feel better!


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  5 months ago

I figured out that my reaction to the steroids was actually good. I just had a nasty attack that took place at the same time as when I went in for the steroids. I'm guessing the weakness in the legs was only a symptom of things to come.
And as a result, I wonder what it would have been like without steroids or Copaxoneshocked


myLot reputation of 84/100. cathyt1557 (140)   ranked 17 out of 144 in multiple sclerosis  5 months ago

Glad to hear you are feeling better. It always sucks when you have MS symptoms flare up, that's for sure.

Multiple Sclerosis Introducing amazing secrets that you need to know. Step-by-step guide to MS symptom relief. First-hand experience. Live the life you deserve. www.heal-multiple-sclerosis.com
 
7. myLot reputation of 97/100. mugzy528 (641)   ranked 4 out of 144 in multiple sclerosis   4 months ago

What Kind of Treatment are you on? I was Diagnosed in 2005 and have tried just about everything out there untill the Doctor told me he wanted me to try Tysabri. I was kinda scared at first but figured hell Im tired of feeling like crap so i have been on it for 11 months now and feel much better. You get one infusion a month and about a week before I get my next one I start feeling bad. I have also had 17 knee surgeries so that dont help me walk to good but you should ask your Doctor about Tysabri. I Hope you feel better soon Im all in it with ya.
Have a Great Day/Night.


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  4 months ago

I spoke with my nurse specialist, and she figures it's another relapse hitting some things that are making me feel this way.
All I really feel like doing is sitting on the couch and sleeping. I sure don't feel like doing anything right now.


myLot reputation of 97/100. mugzy528 (641)   ranked 4 out of 144 in multiple sclerosis  4 months ago

SAME HERE ALL I FEEL LIKE DOING EVERYDAY IS SLEEPING AROUND 2 OR 3PM IN THE AFTERNOON..LOL
Hope you feel betterhappy

Creatine Answers for Multiple Sclerosis Creatine and multiple sclerosis - Dr. Myers answers your questions. store.yahoo.com
 
8. myLot reputation of 81/100. TheSpy (3383)   ranked 106 out of 144 in multiple sclerosis   4 months ago

Hi Mike:

I hope you are feeling better soon. Thoes steroid IV's are hard to take.

Please don't don't try to kill your self it would only hurt the ones who love you.

Try and think about something possitive that will happen when the steroids kick in.

Ivor


myLot reputation of 74/100. BCMike (1816)   ranked 3 out of 144 in multiple sclerosis  4 months ago

The steroids aren't bad for me. This time it's the MS acting up and affecting different spots.


myLot reputation of 81/100. TheSpy (3383)   ranked 106 out of 144 in multiple sclerosis  4 months ago

I understand about the MS.

Oral Laquinimod for MS Learn more about MS clinical trials sponsored by Teva Neuroscience. www.TevaClinicalTrials.com
 
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OTN Specialty Services provides medications for Multiple Sclerosis.
www.otnservices.com

Conquer Multiple Sclerosis
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www.nomorems.com

Multiple Sclerosis
Introducing amazing secrets that you need to know. Step-by-step guide to MS symptom relief. First-hand experience. Live the life you deserve.
www.heal-multiple-sclerosis.com

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