Spouse has fibromyalgia how do you help them?

I too suffer from chronic fibromyalgia, and I too take Lyrica. My husband and I went to a supprt group for Fibromyalgia, and we went to counseling. We are also both a part of online supprt groups, he has his and I have mine.

There are many support groups online, they have them for spouses of people that have and suffer from Fibromyalgia, and then ones for the people that have Fibromyalgia.

By talking to your husband and making him aware that you support him, and even though you can only imagine what physical pain he goes through each day, you are still sensative to his needs and suffering. But in return he needs to be supportive of you and what you go through.

I would suggest that you join one of the online spouses support groups and one of the support groups of people that have fibromyalgia, and then he needs to join a different online support group for fibromyalgia, and a different one for sposes of people with fibrimyalgia.

Why would the two of you need to join both these types of groups and different ones, well first of all by joining both types of groups you will both get the help and support you need and you will both be able to undersatnd what each one of you are going through. He will see what other people have to say they go through or put up with spouses point of views and you will see what people of fibromyalgia deal with on a daily basis that he may not tell you.

Now they need to be different sites because you should be able to vent, or express yourelf privately if you want too and he should be able to talk about his stresses or worries privately too, until you teo are ready to talk to each other about.

These support groups will give you great advice and insight on how to approach situtations and talk to each other about them.

My husband is a Psychologist, but he still joined these online groups to help him, me, and out marriage just as I did for him. Hearing some of the stories from other spouses of people the suffer from fibromyalgia really gave me great insight as to what my husband went through and is growing through by dealing with me, and he gained a lot of insight from listening to others that suffers with fibromyalgia, and it had really helped us. We know we are not alone in this battle, and I have some great online friends from both groups. It also gives us a place to talk freely.

I really hope this helps you out. Please add me as a friend if you would like more info, adivce, or just someone to listen to your troubles and stresses.

Good Luck, and Happy Mylotting!!

Find a caregivers' support group (try googling for it). FM sufferers develop a personality that can be difficult to live with; just remember it is worse for them. They tend to 'dive in' to anything that may help & get 'snappy' when they feel lousy.

FM is a Myofascial condition, so a Myofascial Therapist is at present the best place to be. There will be months of treatment & months of despair. You're both stuck with this horrendous condition.

Hi there,
I also have fibro. Am retiring early (53yrs old) because of it. It is such a frustrating, debilitating condition!!!
I can see your story from his point of view. OMG...this is soooo bad. honestly,
some days I "assume the position" which means that I am on the sofa. So tired and in pain that I have a tough time walking to the bathroom.

Now, you see, I was not a lazy slouch before fibro. When I was married, I held a full time job, kept a 4 brm house spotless(w/3 boys mind you), helped my ex run his business (did the books, and running around).
When we divorced, I took up hiking, snow shoeing, xcountry skiing, bought a house w/ an acre of land and dug up trees (by hand) and planted 8 fairly large flower beds. No more of that! So you see, this is very traumatic from the patient's point of view.

I do understand your frustration though. Patience when he is hurting is a start. He can not help it (believe me, if I could walk away from this s__t! I would in a heartbeat. ) I have learned to lower my standards of house cleaning tremendously!
If you have family nearby, ask them to take the kids so you can get some "you" time. WEEKLY! even if it is just for an hr. Trust me...it will make you feel better!

There is a website that I think would benefit you BOTH tremendously.
it is www.mdjunction.com there is a fibromyalgia forum . you form a profile, ask any questions you want. No judgements whatsoever. Just reading the comments posted
can help both w/ finding ways to deal w/ your husband and give him some insights for different pain management angles.

I am purpleiris777 on the site....hope to see you there.
Big Hugs,
YOU CAN DO THIS!
Linda

As a footnote...I had tons of tests for nearly 2 yrs before being diagnosed.
Everything was always fine....very frustrating. But, one thing my doc told me was that at sometime in my life...I also had mono. (never even knew it!)