Am I really crazy?

She goes to U Of M here which is supposed to be the BEST hospital in Michigan,they have all of her history and her one insurance only pays for them and no one else. But I am thinking of making some calls if I can find any since really my mind is a mess as of late.
I agree the meds are suppose to control not cause and this trailer sat here for 3 years before we ever bought it. And the first day we were here there was major water leakage from under the trailer due to the park not even hooking up the pipes and fixing the busted ones.

I'd get an opinion from three or four different doctors. Personal experience tells me that when most doctors in Michigan have little or no experience with a particular ailment, instead of trying to get to the root of it, they'll just send ya home with a boot in your arse.

I'll tell you a little story about formaldehyde. One of the main components in it, is a chemical that many many people have a variety of allergies/chemical reactions to. Methyl. Methane by-prods are just bad bad news. All that talk about kids getting this and that from eating red dye? Same main ingredient. I cannot tell you how many every day items (and some that you wouldnt even imagine) contain methyl products. As for mold... mOLD really speaks for itself.

Thanks Irish and no we really have no where to go. Heck I still owe almost $13 thou on this place and I am trying to find any way I can to get out. I donno something just doesn't feel right.
I had a friend of a friend who lived here for 2 months not this trailer but this park itself her son had 2 seizures without explanation and after they moved eh has never had another issue.

Hhmmm, sugar....well...there ya go. I don't believe in cowinkydinks....just sayin...........

I'd start some online searching to see what environmental situations can cause seizures. Yip..I would and I wouldn't pooh-pooh you AT all. Mom's know. If more Dr's would recognize that, they'd have a better following...........

I feel like the doctors are just brushing me off. Since has always went to this hospital and heck i even think they are the reason for her C.P. but I would think they would go above and beyond to help her maybe I am wrong about that part.

How frustrating!!! I too second going with your gut. I'm a mom too and I'd rather do what*I* feel I need to do even if I'm wrong. Of course I expect other people to PROVE me wrong in more than one way with actual factual reasonable evidence before I believe them. There's no just saying 'you're wrong' because I'll laugh in your face.

My next payment is for $10 so I will have to find a way to come up with the rest which right now is pretty hard since my husband tools also got stolen so his work has been slow due to it.
I always try to go with my gut but her seizures have made my mind go wacko.

That's what makes me second guess myself,since she has had seizures outside of the home in our car and on the school bus.
I am not sure if my paranoia and anxiety is making me think stuff up or what.

Sometimes we can over think things when we have a lot of anxiety. Believe me, I've had my share of over thinking too. I still think you should test every possibility though. You just may be on to something.

I cut a hole in her first original room,I had since moved her to the smaller one thinking maybe the bigness of the other room was causing them. But what I could see in the small hole was nothing at all.

well i just went probing in my medical books from my previous terms and this is what i found: as i mentioned already there are factors that do increase the rate of seizures in epilepsy...some of the associated factors are: stress, late night and lack of sleep, flickering light, loud noises, alcohol, hormonal imbalances, and infections/fever....im sure there are more..but that's all i have learned=]

So far I make sure she gets the right amount of sleep,she is in a growth spurt so that could explain it. No infections or anything like that. But I am glad you have a book to look threw.

Thank you for the prayers Lynn. She watches TV before bed and only the seizures outside of the home didn't have that common thing.
But I always make sure the TV isn't showing anything flashing or anything like that. Plus during all her EEG she has never shown the strobe light or things like that to be a trigger.
I have a daily log of all her activities and I read it after every seizure and I cna find nothing that links them. I am at my wits end.

Just a thought, but I wonder if there is something in her brain that IS triggered by the television, but as a delayed reaction. Just because she isn't looking at flashing lights on the television doesn't mean that something in her brain hasn't been triggered the way a strobe would effect others. There are many times when I watch television right before bed and when I close my eyes, there seems to be these flashes of light in my eyes. I can't explain it other than that, but I also know that my kids experience it too. This happens to us up to an hour after we go to bed and have turned the television off. I don't think that something like that could actually be detected in any test, but she may be able to tell you if it is happening. For that matter, she may be able to explain to you in some way what and how exactly she feels right before each seizure.
This may be something you ahve already thought of yourself, but when I read your response, it immediately popped into my head and I had to write this.

It could be but I wonder why now? After 3 years of no activity what so ever for them to start? And the night it started back up again she hadn't watched TV for several hours before the seizure happened. I will look into it though and see what I can find thanks.

I will be praying for Bryan and please keep me updated on him.
I have tried searching the health department online and Michigan really has nothing about mold on there. No rule regulations and such.
I do keep a detailed diary and have spent hours rereading and so far I have come up with no links what so ever.

Thanks so much, I will keep you updated. I just did a search and there is an article I want you to check out. Read the whole thing. Let me know what you think. It may be another way to look at.

http://www.ktvu.com/news/1849083/detail.html

Holy cow rob that's an excellent article. I just learned a whole bunch that I didn't know about food...

I read that last night and plan on looking at it again today. But somehting caught my eye about the article. It talked about mold growing spores or something in a person's nose. Since we have moved in here my daughter always has a really stuffy nose. During the winter I have to run a humidifier which has since broke and I have no funds to buy a new one. But it does make me wonder.
I emailed a person with the EPA and I am praying that they will at least think about my theory and maybe help us. I need to track down an email for my local health department since I do better with emails then speaking on the phone,especially now with my anxiety at an all time HIGH.

My mind is a mess olydove and I don't even know who to call or what to say. I am feeling like I am a complete idiot or somehting and afraid they might think that too. I feel like her doctors are just brushing me off about this whole thing.
A friend of mine said she spoke with someone and they suggested maybe a breathing machine at night kind of like what someone with sleep apnea wears to see if that might help. I just don't know what to do anymore. I have to watch her every second. She is right next to me right now just so I can keep a close eye on her,I puled her from school today because I don't even know if she is safe there.

I can understand keeping her home today, after all that was quite a scary experience. The fact that you had to give her CPR scares me too. It's a good thing you know what you're doing though,.. you're a good momma and don't you doubt that for a minute!

I don't know how much difference a breathing machine would make as it's the mold that's in the house and air other than it would give her filtered air to breath. In which case maybe we can somehow find you a good quality air filter to use.

Now when you say you don't know who to call or what to say, do you mean about selling the trailer or about finding someone to come out and check the EMF levels?
Let me know what you need help with sweets you know I'm pretty good at researching so I will help as much as I can that way. In the mean time right now what you need to do is just try to relax. You can't think clearly when your anxiety is up high I know from experience so if there is anything that you have there at home that helps you relax like a good book, a movie, something you need to find it and put it to good use. Is hubby home? Can he help keep an eye on her while you rest a bit?

Listen you've got to take care of you too because if you don't you won't be around long enough to take care of her. If she is ok and breathing fine right now and isn't showing any signs of having a seizure then you can relax a bit.

We need to write down the steps of what it is you want to do. I'm guessing step 1 is get the house tested for mold so..we need to contact as many people as we can to find out how to get that done.

I just found some info for the health department gonna pm you now in yahoo

Oly you are always a life saver and the best researcher I have ever seen. Sorry in the delay in responding but my anxiety is in high gear again today. I already spoke to you earlier are a few things and I plan to do a discussion shortly about it all.

I emailed the person who's email was visible with the second link you provided me. Maybe he can help me as long as he doesn't write me off as some crazy mom.
My trailer is a 1996 so I am unsure what brands or companies made the trailers in question regarding the Fema article. But I will keep my eyes open and try searching online or if you do let me know.
My mind is a mess and I am a mess it's like I can't focus even with my meds it is like I am trying to figure out the hardest puzzle in the world,and in way I guess I am.

If I had a car in which I could still transport her to school I may be able to stay with my sister. But since I can't do that and she has already missed so much school that is not an option. I don't know what else to do,but I started emailing people today since I do better with that then trying to call someone. I still have to track down an email to my county department though. I have to keep praying that someone out there will listen to me and not just pass me off as some nut.

That is really scary. I am so sorry to hear what happened. I too, have had to deal who kids have seizures and I know it can be a very fearful event. It may be the trailer your living in, and espeically the air conditiong. Maybe for your daughters sake, you should save money so you can move out Asap. That's what I would do.

I am trying to find a way out of this place as we speak. But because our credit is ruined due to being behind on the mortgage to begin with options are running thin.