Have you been asked to leave with your autistic child?  |
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This past month we have hit an all time high of being asked to leave different places. I could understand. If I wasn't the mother I would have wanted the child gone too. LOL
We were in the hospital, Emergency Room section, when my son decided to lay down. That was okay for a while, but he didn't stay quiet very long. After about five minutes of fighting with him, they asked me to leave. That isn't the first time we were asked to leave a public building.
I have been asked to leave libraries that have CHILDREN'S sections. That, I must admit I do get a little peeved at. They allow handicap people in the library as long as they don't have a handicap that will cause them to be loud. I can see that to a point, but honestly if he is in the child section, they should cut him a little slack.
I want to climb underground sometimes. I know I am doing a good job keeping him quiet because he stays quiet for a little before going into a display. As a parent of an autistic child, it is hard to conform to the "norm". LOL
We have been asked to leave Social Security offices too. Have you been asked to leave anywhere?
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1. scheng1 (1702) | 3 months ago | haha, I have been asked to leave the hospital too. Once we managed to sneak into the Intensive Care Unit, and the nurses wanted to kick us out oh. Another time the visiting hour about to end, and the nurses also wanted to kick us out oh. We were making a lot of noises. Once in the national library, my stupid handphone started to ring oh, the librarian looked very fierce and wanted to kick me out too.
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mommaj (1085) | 3 months ago | LOL. You certainly know how to make a person feel better. With me, it's almost a guarantee someone will ask us to leave.
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scheng1 (1702) | 3 months ago | haha, as long as nobody asks you to leave the toilet, you can survive anywhere! So far that hasn't happened to me! I think toilet is more important than library or whatever office, after all, that is such an urgent matter you have to do in the toilet! I think you should write more about autistic children, or start a blog to provide support for parents with autistic child.
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mommaj (1085) | 3 months ago | LOL. Scheng, you better not have jinxed me for going to the toilet! I will be a little upset with you. LOL. I guess we should be okay there.
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2. msfrancisco9369 (2136) | 3 months ago | I have the same experience with you and it happened inside the church. My eldest son who is also autistic was quiet uncomfortable being with so many people. He moaning and flapping. One of the Parish Pastoral Council members rudely approached us and asked us to leave because she said we are disturbing church goers. Inasmuch as we want to understand her we felt bad about what happened. She might not be aware about autism but there is a nice way to approach family with special kids. From then on we look for another church that is "special kids" friendly.
I am just happy to share with you that in our country one of the advocacy of the autism society is to conduct trainings on autism in department stores. We experienced how sensitive the staff and crew in dealing with my son. They are so friendly and provided the necessary assistance as needed.
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mommaj (1085) | 3 months ago | That's nice to know. I wish they had training in the public places. LOL The workers say they need to have it quiet. Guess what, wouldn't we all like to have peace and quiet sometimes. LOL I haven't checked into the autism society yet, but I really want to.
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msfrancisco9369 (2136) | 3 months ago | Yes the Austism society of the Philippines is really doing campaigns and strongly advocating for support for our special kids. We also have discount ID for special kids in movies, restaurants and fares. I hope this will be replicated in other areas so that we will have a strong support group for our kids creating a positive and caring environment for them!
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msfrancisco9369 (2136) | 3 months ago | As loyal and loving providers for our kids we really need a BREAK...A PEACEFUL/QUIET RETREAT to recharge and regain our strength and sanity hehehehe!
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mommaj (1085) | 3 months ago | Ahhhh. If only that were possible. LOL
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msfrancisco9369 (2136) | 3 months ago | You deserve a break friend. I hope you will find time to do it. Power hug for you for being a great mom!
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Canellita (3309) | 3 months ago | I am just getting caught up with discussions so I am late to this one and I can not believe you were treated in such a way in a church of all places. That is just appalling.
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msfrancisco9369 (2136) | 3 months ago | Hi Ms. C, You're right. So ironic. A place where you're supposed to feel the love and acceptance as a reflection of God's love from the people involved in there, but they're just so insensitive to make us feel bad and rejected.
We're fine now with our new church. My kids are comfortable and we are able to finish the mass with them behaving so well. God is good!
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mommaj (1085) | 1 month ago | I can't believe that happened either. I am glad that the new church is better. I think a lot of people do not go to church with their children because of this attitude. If a child doesn't go to church when he or she is young, chances are good she or he isn't going to go to church as an adult. You have to form a habit at an early age.
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msfrancisco9369 (2136) | 4 weeks ago | yes we have a good and supportive church now. i am proud of kids for being able to finish the mass behaving so well. that's a great achievement for all of us. after hearing mass they will ask for a treat-- and of course we always give in to it as their reward. we go home happy and blessed!
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3. suzzy3 (4010) | 3 months ago | My good friend has an autistic son and she suffers the same discrimination,she gets people move away from him,stare at him.She has a disabled badge for the car and quite often someone will say "What's up with him then " he is also epilectic. I feel that the hospital asking him to leave is disgusting you complain about that and as for the social security asking you to leave and the library.Write a letter to all of these places,try to find a local paper that will write your story up,find others with autistic children and start something to show people how difficult things are for you anyway,I always say spend a day in my friends shoes and see how you feel.My friends son is not silly he understands what these ignorant people are saying and it really hurts his confidence.Which is already battered,most of these fits are brought on by nerves and ansxiety.Take care.
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mommaj (1085) | 3 months ago | I cried reading your response because the ones that are getting hurt from the stares and comments are the children. I hope my son never understands if he is going to be able to control himself. I don't want him to have to deal with that. I think there is a point when all children realize they are different and that effects them. Hopefully, it makes all the children a little stronger, but it sure does break a mother's heart.
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suzzy3 (4010) | 3 months ago | Thank you for your understanding without the drugs he would be dead or arrested for assault for thumping someone.It is sad,but I do my best to support her and help her she is a lovely woman.All you can do is be there.
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4. Canellita (3309) | 3 months ago | OMG! I can not believe you were asked to leave the hospital ER! Ok, to an extent I kind of understand the library since it is supposed to be quiet and I know plenty of adults who have been shushed in libraries. (Don't get me started on my experience in Baton Rouge after Katrina...)
You know hon, there's a book in here. Everyone is busy thinking about the ruckus he creates but no one is thinking about the affect on his sister or you or your husband or the stress and strain that is sometimes a part of caring for an autistic child. I hope you are keeping a journal each day of the highs and lows.
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mommaj (1085) | 3 months ago | I really should start a book. I don't think anyone can imagine the effects this has on my daughter. She wants to go to a birthday party at a bowling alley. Only being six, I of course would want to accompany her. I don't know if it is expected or not, but I wouldn't be comfortable just leaving her. Of course, that means taking her brother. We can't go because I don't know how he will act. It is so horrible, especially for her! She doesn't get to be a kid and it isn't fair to her. Luckily, this time the birthday party is the same weekend as hers will be. So she can't really go anyway. What about next time though?
It's really stressful for me because sometimes I feel like I am raising the kids by myself. I don't know how single parents do it!
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Canellita (3309) | 3 months ago | It really is tough on her, especially at that age and it will make it difficult for her not to resent him at times. You need a support group for autistic parents. Maybe you can help each other with stuff like this so one can babysit while the other takes the non-autistic kid(s) someplace.
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mommaj (1085) | 1 month ago | I really wish I could find something like that. I feel my daughter is missing out on so much and there is nothing I can do about it. She gets around other people and she is totally obnoxious and not the sweet little girl I know. She talks about anything and everything and sometimes just inappropriately. UGH.
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Canellita (3309) | 1 month ago | Well, some of that is just being a little kid. She is still learning what is appropriate.
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mommaj (1085) | 1 month ago | What really gets me is she knows and she just doesn't express it. Today she took her pants off because she got something on them. Well, at the same time the doorbell rang. I told her she had to put pants on and she couldn't come to the door. What does she do? She came to the door without her pants and started talking to the person. We didn't know the woman from adam and she's holding a full blown conversation in her underwear. She drives me insane. I had a friend that did that until she was about ten. Half the time she didn't wear a shirt. I really hope my daughter doesn't do that. LOL
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Canellita (3309) | 4 weeks ago | You just have to apply reverse psychology. When the doorbell rang you should have told her the person at the door was going to be terribly embarrassed if she didn't have pants on and it might even make the person cry or think she was mean. Just don't be too dramatic or she will treat you like an idiot.
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mommaj (1085) | 4 weeks ago | LOL. That might have worked about the person at the door being embarrassed. She's just at that age where underwear and butts are funny. Can't wait for this stage to be over.
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Canellita (3309) | 4 weeks ago | I just have to laugh. I can't imagine what my life would be with a daughter in that stage when men think that kind of foolishness is funny no matter what age they are!
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| 5. beckysue12121 (25) | 1 month ago | We have never been asked to leave anywhere, but we do get dirty and odd looks. My son likes to copy obnoxious noises.....loudly. He also copies the other disabled kids he goes to school with. After a while you tend to ignore the weird looks, I think that aspect of things gets easier with time. And ain't it fun to stroll down the aisles of Walmart to the tune of the loudest (very accurate) weed wacker anybody has ever heard? You just gotta have a sense of humour about it, I guess.:P
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mommaj (1085) | 1 month ago | Oh, that is so funny and cute! Yes you have to have a sense of humor or you will go crazy. I've always had a decent sense of humor, now everything is funny or I would just sit in a corner and cry. Somehow, you just learn to cope. I take my kids to the library often so I asked one of the librarians about it. We got off topic and she was saying a parent actually got a shirt made up that says, I am autistic. I told her I thought that was a wonderful idea. Sometimes people need a warning of what your child might do. Besides, once they see the shirt I figure they will be too embarrassed or whatever to continue looking at your child. I told her I might make one up for me. LOL
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6. Foxxee (2636) | 4 weeks ago | Well, as a parent of an Autistic child myself... I must say that I have learned over the years what places work & don't work for my son.
I will not take him to the places that he might have a melt down & I do this out of respect for others.
We really can't blame the people for asking us to please leave when our child is screaming & wont stop.... I feel yes they should understand our situation, but lets face it, a lot of people just don't understand & may never understand.
A place like the hospital, well, I would think they would know better, but I guess not...
As for the library, I can't blame them... that is a place for silence, not for a child that is screaming & so on... I must say, if I was in that situation, I would leave on my own.
It's our job as parents to make these choices, we know whats best....
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mommaj (1085) | 4 weeks ago | Actually, I was trying to leave in both instances. The hospital I was trying to leave because obviously there are sick people there and they need their rest. A screaming child will not give anyone that. LOL As for the library I was on the way to the checkout desk. I didn't feel that he was so bad that they couldn't give me a couple minutes to check out. He was whinging in the library. Not really crying just fussy. If it's a place for a child than I think they should make certain concessions for a child being a child. I agree that their are people at the library trying to read or study. At the library I go to they actually have a separate place for the children. I have learned with any child, autistic or not, it is good to take them in public or they won't know what to do when they are in public. My son is actually very good about going out unless he is just tired.
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