My doctor's appointment on Monday August 13, 2007

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As some of you know I have an illness that may or may not be Meniere’s disease. I have dizzy spells I have fallen several times. I have body jerking that includes my head, arms and upper body sometimes it includes my legs. The jerking is annoying and I cannot control it. The jerking comes and goes, sometimes it is worse than others, today my speech was affected which meant I could not find words and when I could I could not get them out. I was having a lot of trouble pronouncing some words. There are times I am so dizzy that I have to walk with a walker even in the house. When I stand up I wobble back and fourth until I can get my balance. It is horrible to be this way, especially because no one can tell me what I have. I went to my neurologist today, she saw my body jerking for the fist time. I have been complaining about it for a year but she has not seen it. She wants me to go back to the University of San Francisco Medical Center to a movement disorder doctor. I was up there in February this year and they where suppose to be getting all my medical records which they did not, and I was suppose to be going back up there to consult the movement disorder person. I have been tested for MS and it was negative. My twin sister was diagnosis with MS this June; we have a lot of the same symptoms. She is off of work because of it. I am waiting for an appointment to UCSF that could be four to six months. The worst part of all of this is most all of my systems have gone away and then came back full force. Weeles wabble but they do not fall down, I wabble but I fall down.