PCOS-- Polycystic Ovarian Syndrome??? Do you have it or know someone with it?

PCOS ribbon - In honor of those who have PCOS- Polycystic Ovarian Syndrome
United States
April 24, 2007 8:34pm CST
It's a horrible syndrome to have. I am 29 and was diagnosed a year ago in November. I have never been able to get pregnant and was married to my ex for 5 years and now my new husband of 2 years. I have always wanted kids since I was little. WE would love to adopt but they make adoption so difficult with all of the fees involved. They say they have a problem with all these unwanted kids, yet they make adoption impossible.:( Anyways, was wondering if anyone else has this problem and if you do, were you able to have kids? I have a lot of weight to lose and I am actually working on that now. I get the bad acne as well and it sucks. They told me I don't have a bad case, just a mild case of it. WEll they didn't say that word for word but said that they have seen worse cases. Do you know of any success stories with children for those who suffer from PCOS or are you childless like me because of it?
1 person likes this
9 responses
• Malaysia
25 Apr 07
what kind of syndrome is that? is it that every women diagnosed with that disease can't have children? erm.. it must be a horrible syndrome i guess.. having children is actually a success for the women..1 thing that really differentiate between men and women is that women can give birth to baby.. and every baby is contributes to the population of human.. in another word, women contributed alot to human populations.. it must be hard for you to accept it right? but.. don't worry.. you're not the only one i think... adoption could be a solution.. but i do understand that the agency is making things difficult.. i don't know why....erm.. do you want to try some medicine recommended by some researchers? i have this medicine .. and they claim it works in curing some kind of ovary cancer and i have friends that actually cured from such tumor in her ovary.. it seems her tumor shrink.... i don't know how far it's true.. but if you want info from it.. you can send a message to me :)
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• Philippines
26 Apr 07
PCOS is not a disease. It is a syndrome that affects women and may cause infertility. For more information, you may visit... http://www.pcosupport.org
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• United States
1 May 07
Not every woman who has this syndrome cant have children. I have PCOS and I have a son. Every womans body is different, as is the way to treat PCOS. Never give up hope. You just need to find the right combination of things that will work for you!
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@ctv101103 (859)
• Philippines
25 Apr 07
here's a cyber hug from me to you *hug* don't worry too much about your pcos. i also have it. i was diagnosed around 8-9 yrs ago, long before i even got married. the 1st ob-gyne i went to told me to have kids right away so that my pcos can be treated. but i was just 20 yrs old then and eventhough i have a boyfriend, i felt i wasn't ready to get married and have kids. i went for a 2nd, a 3rd and even a 4th opinion. all of them gave the same results/diagnosis. i asked if there was some treatment for it and i was told that i had to take birth control pills to prevent the cysts from accumulating and growing. they didn't recommend an operation since the pills can control its growth. right then, i knew i was going to have a difficult time conceiving. i got married in 2003. my husband and i (knowing that we'll have a difficult time conceiving) wanted to have a baby right away so we sought the help of my ob-gyne. i underwent some tests and work-ups. i followed everything that my ob-gyne asked me to do. it was so frustrating when every missed period i had resulted to a negative pregnancy test result. we almost gave up. then we decided to let go and let God. i stopped taking my fertility medicines. i willed my self to relax and to not pressure myself. then 3 days after we celebrated our 1st wedding anniversary, i was pregnant! we were really very happy and excited. now we have a 2 yr old daughter. so don't worry. i know of some people and friends who also have pcos and had kids. goodluck and keep the faith! :)
1 person likes this
• United States
25 Apr 07
Thank you so much. I appreciate this and you gave me hope. Congrats on your 2 year old. I need to work on losing weight. Did you have this problem with the PCOS?
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• Philippines
25 Apr 07
yes, i did have the same weight problem, among other hormonal imbalance problems. as a matter of fact, i still have it. lol! like you, i'm working on losing some weight since we'd like to try for a second baby soon. goodluck to both of us! if you need someone to talk to regarding pcos, there are a lot of support groups and forums found in the net. and of course, you can always send me a message. take care!
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@crazynurse (7482)
• United States
25 Apr 07
{{{{cyber hugs}}}}} My neighbor claims to have PCOS and has recently given birth to her FIFTH child!! I have to wonder if she truly has it or not. She does describe the symptoms and stuff perfectly. My daughter's friend (age 17) was recently diagnosed with PCOS. She has always been quite plump and when they started her on Glucaphage, she really did drop quite a few pounds. My neighbor states that is the medication that she takes as well. (when not pregnant) Do you have the blood sugar problems? Are you taking Glucophage?
1 person likes this
• United States
1 May 07
Thanks Crazy :) They are going to do blood work but they put me on Glipizide generic for Glucotrol xl. I guess it's like the Glucophage thing. It's to help me lose weight and so far , its working :)
• Philippines
26 Apr 07
My sister was diagnosed with the same thing last year. She's been married to his husband for 5 years now and unfortunately, still childless as of now. We never thought that that could be the reason why they can't have a child. She had that examination in London and the doctor said that it's not the reason why she's not conceiving a baby. Maybe that's true because her sister in law was also diagnosed with that years ago and now has 2 kids already. Maybe you would like to consider having a second opinion from another doctor.
• United States
1 May 07
Well I have had 2 obgyn's tell me this. I know my biggest problem right now is the weight. Once I can get that off, I will be focusing more on getting pregant. I am on the right track now
@wachit14 (3595)
• United States
25 Apr 07
I'd like to address two issues regarding fertility and adoption. It is certainly not impossible for you to get pregnant. You may have to receive infertility treatment, but, as you say, since you do not have a bad case, you may respond very well to treatment and have no problems. You should definitely talk to your doctor about a referral to an infertility treatment program. If you have medical insurance, you are more than likely covered for it as well. As far as adoption goes, it is never impossible to adopt. I have two children who are adopted and I did not let anything stand in my way. The reason why certain adoptions are so expensive is because most couples want an infant and this causes the waiting lists to be so long, but you are only legally expected to pay the legal fees as well as the medical fees, but many pregnant women can apply for assistance to help pay their medical expenses. Overall, either way you have a very good chance of being a mother someday. Just don't give up hope. Good luck.
• United States
1 May 07
Thanks for responding Wachit. Thanks for sharing. We are one of the couples that would want an infant. IF I could take 2 and have 1 as an infant and one older, I would be so for it. We are thinking about fostering to start with next year when we get a house. I'm working on the PCOS right now by losing weight.
@angel575 (66)
• United States
25 Apr 07
I am 28 and have been diagnosed at 21. I had given birth to my daughter in 2005 and was never told that I would not have kids. Adopting was an option and they doo have meds to treat the PCOS but they are mostly progestins which would make it difficult to conceive a child. The weight gain "sucks" thats the downside of having PCOS beacuse with me, my adrenals produce so much insulin that I may have to take Glucophage again. I now have a cyst on my ovary and I am treating it without surgery this time since I have had laser surgery 5 times already. I really want to have another baby right now, but I know that it will be very difficult. Just be patient and talk to your doctor about trying to get pregnant and I'm pretty sure they would help you out.
1 person likes this
• United States
1 May 07
Thanks for sharing. Yeah, doctor just put me on Glipizide to help me lose weight and I get blood work in a few weeks. She said it was like Glucophage.
@dlkuku (1935)
• United States
25 Apr 07
I have a friend who has PCOS, and it has been hard on her. She gained well over 100 pounds for one thing. She did manage to get pregnant after they told her she wouldn't. But she miscarried. She is still hoping.
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• United States
1 May 07
Yeah, I gained over 100, have lost 32 of it. I am so sorry she had a miscarriage. That has got to be tough. Thanks for responding
@gabesmom (1246)
• United States
25 Apr 07
I have a cousin who had the same condition. The affected ovary was surgically removed when she was in her mid-twenties. She didn't get married until she was 35. She didn't think she would ever have children. But she had a boy just before turning 38 years old. Her pregnancy was quite difficult but she had a normal term delivery. Her son is now 4. She was able to conceive another baby, but this time the baby was born eight weeks premature. It was so tiny at birth and had to stay in the Neonatal Intensive Care Unit for a month. He's doing well and just celebrated his first birthday a couple of weeks ago. So, hang in there. You may still have a child of your own. Sometimes, it happens when you least expect it. I wish you all the best.
• United States
1 May 07
That is great that she has a child. I am also happy to hear the baby is doing better. Thanks for sharing the story. I am gonna do my best!
• United States
25 Apr 07
My best friend has it and she found out when she was 19, so she caught it in the early stage and she was put on a diabetic diet. She has lost all of the weight and will be able to have children luckily. If she wouldnt have caught it as soon and hadnt lost the weight then children would have not been an option for her. My heart goes out to you!
• United States
1 May 07
That is great to hear. I am losing weight now and hopefully this will help me. Thanks for shariing