It's lonesome here!

@susieq223 (3742)
United States
May 22, 2007 6:50pm CST
I put my husband into the hospice care center today. They have a "respite" program whereby a family member can put their loved one in the center for a few days to get some rest from the responsibility of care-taking. I was crying when I left. I am tired and I need the rest, but it is so quiet here now! I know what this place will be like when he is truly gone and I don't like it already! I will let him stay there a few days, though, to try and rest. Unless I get too miserably lonesome that I'm not resting!
11 people like this
16 responses
@pyewacket (43903)
• United States
23 May 07
Since I was my mother's caregiver I know how demanding that can be and overwhelming too, as it seems one never has time to oneself and can be very draining..there's a saying ..who takes care of the caregiver? My mother refused to any kind of place though, and was quite vocal about it...sometimes I'd be in tears though, since my mom was rather difficult to deal with..She did pass away last summer, and to be honest the months following I was just too plain busy managing things to acknowledge her not being around anymore--the way she was the last year of life it was almos like living alone as she just wasn't "there"anymore mentally--but there are times now when I miss her--Mother's Day was hard for me, and the week before that would've been her 75th birthday ...I think it's right though for you to have that time for yourself though...It must seem strange though, I don't know how long you've had to take care of your husband..Years?? See this as a nice alone time for yourself..do the things you wanted to do and couldn't before...think of it as a mini-vacation for yourself...Just plain goof off if you want to...I think you deserve it! Hey you could spend more time here and try to catch up with me...LOL
4 people like this
@susieq223 (3742)
• United States
23 May 07
Are you kidding. You are so far ahead of me now I would have to post till my eyes bug out! Yes, I am going to goof off, sleep when I want, as much as I want and spend time here!
3 people like this
@susieq223 (3742)
• United States
23 May 07
I will. They will get lots of extra hugs from me tonight!
3 people like this
@pyewacket (43903)
• United States
23 May 07
And don't forget to talk to your kitties more..give them a hug for me!!
4 people like this
@RenaeT (681)
• United States
23 May 07
OH Susieq, I am so very sorry!! I am praying for you. Gosh, I'm sitting here feeling lonely because my husband is out of town without me. After reading your post, it really put things in perspective. I truly will be praying for you. Spend some time resting up. I will ask the Lord to refresh your spirit for when he gets back home.
@susieq223 (3742)
• United States
23 May 07
Thank you. I really need that!
2 people like this
@TerryZ (22076)
• United States
23 May 07
Sometimes we have do something we dont like. And you have to rest and keep up your strengh too. Im sure you will miss him and I will keep you both in my prayers. I would imagine its loney without him there but you can always come on here and talk with us. Take care and get some rest.
@susieq223 (3742)
• United States
24 May 07
I'm here! That's one of the things I really appreciate about this site. I'm never lonely here.
@raydene (9871)
• United States
23 May 07
SusieQ,I had not realized that your husband is ill.I'm so sorry to hear about it.I wish there was something I could do to help.What is his condition?Is there hope that he can be cured.Do you have other family and close friends near?I'm sending a bucket full of big hugs.xoxoxoxoI will remember you and your husband in my prayers. Hugs
3 people like this
@susieq223 (3742)
• United States
23 May 07
Thanks. My husband has COPD, or emphysema, which is a very slow killing disease for which there is no cure. The fact that I still have him is a miracle. He was "supposed" to die last year and almost did--but he keeps hanging in there! I consider myself very blessed to still have him and he is a real sweetie.
3 people like this
• United States
23 May 07
Oh honey my heart breakes for you. I am sorry your husband is so ill he needs hospice care, I bet that is hard. I am an disabled RN and have seen lots of very tired family members who do not know what to do when the person they have taken care of is in the hospital. My advise to you is: Take a nice bath, relax eat a nice dinner, play some music or watch TV or read and get to bed early. I understand you will probably wake up a lot because you are not use to sleeping through the night. How about calling a friend or going to a moving. I also do not want you to feel guilty for taking some "ME" time. You need it and I am sure your hubby understand that. I am a computer away if you need to email me. Good luck sugar and try to get some rest. Just not having the responsiblity of having to tend to him will be good for you. You have to prepare for what happens when he cannot ever come home. I am sorry to have to say this. I know it is hard to think about, but you will have to continue on. You have to think about a furture for yourself. I wish non of us had to go through with what you are going throug.
@susieq223 (3742)
• United States
23 May 07
Thank you. One of the things I will be doing is posting on this and other sites. I can relax and do this knowing I am not taking time away from him right now. Knowing that this is just for a few days, I didn't think I would miss having him here so much!
3 people like this
• United States
22 May 07
I can completely understand how you feel only not all the way I lost my grandfather last year and I still can't deal with the facts I am still hhurt but I want to wish you all the luck
4 people like this
@susieq223 (3742)
• United States
23 May 07
Thank you. It is hard to lose someone you love, isn't it? Thanks for your post.
@webeishere (36313)
• United States
23 May 07
Well you need to do what you need to do to keep your sanity hon. I am almost at that point. But I'm getting away tomorrow for a couple days rest. The quiet can be changed by you. Just relax and enjoy your time for now. Let God work his ways with you. HAPPY POSTINGS FROM GRANDPA BOB !!~
@susieq223 (3742)
• United States
23 May 07
Thanks Grandpa Bob.
1 person likes this
@lauriefnp (5111)
• United States
13 Jun 07
I'm so sorry to hear that you and your husband are going through this. It's horrible to lose a loved one, especially a spouse or life partner, but Hospice is a wonderful program. I work in a Hospice unit at the Veteran's Hospital, and I find the work to be so satisfying and rewarding. To be able to help a family member such as yourself is a good thing. You need to rest, take care of yourself, and recover a bit so that you can be there for your husband. Don't feel bad about taking advantage of the respite services. It is a fact that care-givers NEED respites, especially for a long illness. That's why they are offered as part of most hospice programs. My prayers will be with you & your husband.
1 person likes this
@susieq223 (3742)
• United States
16 Jun 07
It was good not to have to worry about getting meals, keeping him clean, etc. I did get some rest and was glad to get him back home. Thanks for your reply.
@AmbiePam (85676)
• United States
23 May 07
Oh, Hon. I'm so sorry. Knowing you have no reason to feel guilty doesn't make it one bit easier, does it? My grandmother could really use something like that program. My grandpa tires her out, but he doesn't want to go somewhere like that, and she won't make him. She feels too guilty. I don't know if her Medicare would even cover that. I'll pray for you and your husband and I do wish you a lot of peace to get you through this very difficult time.
@susieq223 (3742)
• United States
24 May 07
Thanks for your thoughts and prayers. I hope your grandmother finds a way to get herself a break, also.
1 person likes this
• United States
23 May 07
Oh wow. i have mixed feelings about this. i know my mother would love to get rid of me for a few days like that, but it would spiral me into such a severe depression. i couldn't handle that at all. DO you mind if i ask the nature of your husband's illness?
@susieq223 (3742)
• United States
23 May 07
He has advanced emphysema. He volunteered to go to the center. I didn't really want to put him in, but I know I need the break and he knows to. He is a real sweetheart. I hope he doesn't get depressed over it. If I think he is I'll bring him home right then!
2 people like this
• United States
23 May 07
Having to put someone like that in the care of someone else susieq is sometimes the best thing. It gets very tiresome at times and you just need to take a break from it. Not only is it a physical thing, but it's a very emotional and mental strain. I'm sure you did the right thing. They also have people who will come to your home to help you. I'm sure you know that.
@susieq223 (3742)
• United States
23 May 07
Yes, we do have people come to the home. Someone comes in three times a weesk to bathe him and a nurse comes once a week. Hospice here really provides a lot of good care and help.
1 person likes this
• China
23 May 07
You should not put your husband into the hosprice care center today,though you know what this place will be like when he is truly gone.I think share the happy time with your family member is a good thing.
1 person likes this
@AmbiePam (85676)
• United States
23 May 07
But you have to take care of yourself, or you won't be able to take care of him. No one knows what it is like to be in your shoes.
@susieq223 (3742)
• United States
23 May 07
Thank you for your post and your opinion. I will bring him home very soon. You are right that spending time with our family members is a good thing.
2 people like this
• Philippines
23 May 07
This problem will soon cease so try to be strong my friend! Take care and more power!
2 people like this
@susieq223 (3742)
• United States
23 May 07
Thank you for your response and good thoughts.
1 person likes this
@mizcash (685)
• Canada
23 May 07
My heart goes out to you my dear,I wish you lots of love and remember all the happy times that you've had in the past and the wonderful life that you've built. Take this time to make you stronger and prepare yourself for the future. God has given you this time with him and wants you to be ready when he goes, just love him until then. Be good and look after yourself.
@lexus54 (3572)
• Singapore
23 May 07
I am very new to this forum and do not know you personally, but I nevertheless share your pain of separation. To be away from someone you love is truly heartbreaking. I am sorry to learn that your husband is so ill. I hope God restores him and grant him healing, and that both you can be back again soon enough. You can be assured that hospices usually take good care of their patients, so your husband will be in good hands while you seek some deserved rest. We cannot help you physically, but as least spiritually and emotionally, we can share your burden and pray for your husband's well-being and health restoration, and yours too. Be thankful too for technology and sites like this, where we can exchange our thoughts and comfort for each others' concerns. Have a good rest. I will commit your husband in prayer.
@susieq223 (3742)
• United States
23 May 07
Welcome to myLot, Lexus. I hope you find it as enjoyable as I do. I am grateful for the technology that brings me many friends from all over the world to share good and bad times with. Thank you for your post and your prayers.
1 person likes this
@_hope_ (3902)
• Australia
23 May 07
Susieq it can be a difficult time butr rest asure he is being well taken care of . If you find it too quiet at home put a radio on or better still invite some one over just to share their company with . But remember you need to have a break and get some rest other wise you will be unable to give him the propper care he needs when he returns home . It`s only for a few days they will pass quickly . I can understand how you are feeling and the tears to me it just goes to show how much love you have for your husband . a saying that i remember from my grand father is " loneliness makes the heart grow fonder " and that age has no barriers it still applies weather you are newly weds or been married a lifetime .Your hubby will know you are doing it for his own good and that you love him so much that in putting him in respite care you are thinking of his welfare . I wish you well and that you get plenty of rest the time will pass by quickly .take good care of yourself and god bless you (( HUGS ))
1 person likes this
@susieq223 (3742)
• United States
24 May 07
Thank you for your reply and sharing your thoughts. He does know how much I need the rest! Thanks for the hugs!
@Sherry12 (2472)
• United States
23 May 07
I know that was hard for you to do. But, you do have to take care of yourself, so you can take care of him. You need to relax and rest and get back your strength. He is going to need you and you want to be able to continue taking care of him as long as you. Hospice has that program so that the family can rest and that is what you need to do. When the time comes, you're going to have lots of friends on here to keep you busy. You and your husband are in my prayers.
1 person likes this
@susieq223 (3742)
• United States
24 May 07
Thanks you for your reply and your prayers. They both mean a lot to me.