Well, I guess this counts as a major meltdown!
By gardengrrl
@gardengrrl (1445)
United States
July 10, 2007 5:05pm CST
Lastest on a-SIL: visited surgeon today, stitches out, STILL NO PATHOLOGY REPORT!
OK, I was a good and supportive person, all of a-SIL's sisters wanted to go with her, so I didn't, just because it felt like it would be too many people quizzing the doc and something important might be missed. NEVER AGAIN! Doc justifies wait for pathology report because they sent it to the Mayo Clinic. That's all very nice and impressive, but I am quite sure the sample didn't go straight from the operating room to Minnesota, it stopped in some local lab first, so WTF? He's saying he thinks it's a grade 3 or 4 glioma - what the hell is he basing that on? When he discharged her last week, he didn't know what type of tumor it was, so what changed?
GRRRRRRRRRRRRRRRRRRRRR!
I'm heading up to their house now, so we can talk about a new battle plan. I am officially convinced that there is no clinician here in sh1tty little Delaware good enough for this battle. A stage 3 or 4 glioma is about as bad as the news can be - NO MORE MS. NICE GUY!
All prayers, meditations, incantations and other positive expressions of any faith are very welcome - and desperately needed. We will leave no stone unturned in the quest to save my warm, wonderful a-SIL. Her mother was diagnosed with brain cancer at the exact same age, she had lung cancer w/metastses and died 18 months later. A-SIL is kinda freaked out by this factoid, so we gotta get moving to show her how we're going to write a different ending to her mother's daughter's story.
Thanks for caring, hug your loved ones, see ya later!
2 people like this
1 response
@mummymo (23706)
•
10 Jul 07
OMG Honey - this has just took my een hoping and praying that the news breath from me! I have been hoping and praying to hear good news from you today! I am so sorry that the results were not in and that the dr has given such a bad outlook on things! I know how much you love and care about your beautiful a SIL and I want you to give her all my love and best wishes and let her know that she is in the hearts and prayers of myself and my family! I guess the Dr is just covering himself and doesn't want to take the chance that the results they got were wrong - he probably wants them triple checked as it is such a serious illness! I know that it must be extremely frustrating not to mention nerve-wracking! What happens next? When is her next appointment and do they expect to know the plan of action then? I am here sweetheart - vent on me if it will help - you can always lean on me too! Keep up the positive thinking and I will too - along with the prayers! Hugs xxx
2 people like this
@gardengrrl (1445)
• United States
11 Jul 07
Hi, mummymo!
The surgeon is going to consult with an oncologist to draft a treatment protocol, and the oncologist's office will call us. Not sure when that will happen, but we will be on the phone to the dr tomorrow morning, tomorrow afternoon, and basically every couple of hours until they have something concrete to tell us.
We're also going to look into her second opinion options, we'd like her to go to Johns Hopkins or maybe Sloan-Kettering for treatment. We need to hit this sucker with our very best shot, pronto!
This just can't be the way it ends for her, I won't accept it! SIL and bro are both happier than they've ever been before in their lives. They're going to have as much time as we can rip from Satan's belly for them, and we'll fight until we know its time to stop.
Many thanks for your thoughts and prayers, as well as those of my other friends who are following this. You guys are exactly the right thing to help me stay upbeat and strong, and I am so grateful to have you in my corner!
Big hugs, much love!


