Pain

United States
August 4, 2007 2:24pm CST
I have lived with pain for a long time (22 years). I have a chronic condition that causes me to have pain in different areas of my body, sometimes changing daily. Doctors (who are clueless about the condition) have told me, "It's all in your mind. It's psychological." That's extremely hard to hear when you know it's not psychological, but very real and sometimes quite difficult to live with. Do you have problems with pain? If so, are you willing to share a little bit about your experiences?
2 people like this
5 responses
@sunkissed (4331)
• United States
4 Aug 07
I can relate to what you are saying, although my chronic pain is much differant than yours, I too have been in cronic pain for over 24 years.I have alot of nerve root damage.Most of mine is in my lower back and in my leds & rear end.It hurts me very bad to even sit most of the time, my siatic nerves in both sides have been damaged.I can not stand long, and can not walk very far.I have pain 24/7.I have all kinds of medications, tens units, massagers,etc. there is no relief.And no cure. I am told I will have to live with it. Cronic pain is very devistating, it wll affect every area of your live, your person relationships,It will affect everyone that is near & dear to us!! and your mental state of mind..I always hate it when some doctors tell the patents "it is all in your mind"I believe they do this, because they are tired of trying to find out what the problem really is!! I wish you luck in dealing with your condition, and finding the cause of it!! My prayers are with you, My Friend!!
2 people like this
@mummymo (23707)
4 Aug 07
Can I be really nosy here sunkissed - do they know what caused the nerve root damage? I have very similar pain - I had a collapsed disc which they say has caused nerve damage as it took more than a year for the surgery to release the severe compression on my nerve and they don't know if this will heal! I seemed to start improving after surgery but a month later things got a lot worse and I am waiting for an mri! Sorry for intruding here and you don't have to answer me if you don't want to! xxx
• United States
5 Aug 07
I'm so sorry you have had to deal with such terrible pain. I pretty much have pain 24/7 too, and most of the time I can cope with it. However, if I get the flu or something minor like that (like I have right now), it seems to exacerbate everything else, and I end up in more pain, have more exhaustion, and I sometimes get depressed. Once I recognized the signs of depression it helped me some, in that I can just isolate myself and try to keep quiet. Otherwise, I become very negative, cross, and agitated. When I say I isolate myself, I don't mean I completely cut myself off from everyone. There are a few people that I know I can talk to (usually by phone) that understand, and they also pray for me, too. That helps me tremendously because I get my eyes off myself, and onto the LORD which is always a good thing :) I'll be praying for you, too, sunkissed. I agree with you 100% about the effects of chronic pain, as well as the reason doctors sound so calloused--it's basically because they don't understand what is causing the problem, and since they are "problem solvers" they really hate that. Some can be rather proud, and those doctors will just say the rude things, as you said, "they are tired of trying to find out what the problem really is." And I think many of them that say cruel things have never really had anything seriously wrong with them. Even if I understand it, I'm not very happy when they do that to me. My greatest sympathy and empathy is with you, as well as my prayers!
1 person likes this
@mummymo (23707)
4 Aug 07
Well honey I have been suffering with chronic back pain for over a year now- I had surgery a few months ago and seemed to be improving but about a month ago I had another problem and can now barely walk so at the moment I am waiting on an mri scan that will hopefully show the problem up and am staying positive that my situation will improve! Having said that it can be very difficult to live with pain and it can bring you down a lot! I try to escape into my mind when the pain gets really bad and just imagine it gone - not always achievable though! I am so sorry that your doctors have not helped you with your pain and really hope that you can find a doctor who understands your condition - I know how depressing it can be and I have only been suffering for just over a year - you must be strong to still keep it together after such a long time! xxx
1 person likes this
• United States
5 Aug 07
I'm sorry you have had such difficulty with pain for over a year. I will be praying that the MRI will show up what is going on inside. I actually am not a strong person (I'm weaker all the time, actually), and I don't always keep it together, either. To be honest, the only thing that has helped me is to just give my situation over to Jesus Christ, and leave it there at His feet. I was recently denied a heart CT scan by my insurance, and I tried hard to appeal the process; however, when I realized that it wasn't going to happen, I just committed it to the LORD. I know He is the only One Who truly heals people (doctors help, sometimes surgery helps, medications help or hinder), but ultimately the One who heals us, when we are healed, is the LORD God. So it is very comforting to me to read His Word that says things like, "I will never leave you nor forsake you" and "Before I was afflicted, I went astray. But now I have kept Your Word...It is good for me that I have been afflicted, so I might learn Your statutes" (Psalm 119:67, 71). Also, "For the moment, all discipline seems painful rather than pleasant, but later it yields the peaceable fruit of righteousness to those who have been trained by it" (Hebrews 12:11). So that's how I cope--by entrusting it all to the Only One Who can do anything about it! Thank you so much for your sympathy and kind words!
1 person likes this
@mummymo (23707)
5 Aug 07
Asl honey - I thank you for those prayers! i know how effective the power of prayer can be - I had to have fertility treatment with my youngest daughter and it hadn't worked , members of my church prayed with and for me and well Niamh will be 6 in 10 days time! I do try to entrust my whole life to God but as a mere human it is not always that easy! I do hope that your prayers are answered - I will keep you in mine sweety! xxx
@abroji (3247)
• India
6 Aug 07
It is really painful to know that you are suffering some pain which is unidentifiable by physicians for 22 years. A very long time - 22 years! I am blesed that I have not been put to suffer with such pains. ASL19741978, you are an ardent believer, I konow you rely upon God very much. Continue with your prayers to our Lord Jesus and I am sure your pains will be cured. God bless you.
1 person likes this
• United States
7 Aug 07
Thank you for your kind comments. I do rely on the Lord Jesus Christ, and this far He has not seen fit to heal me of FMS, so that is okay with me! I only want to be healed if it is His will. :) Thanks again! God bless you, too!
@wotfpatty (2068)
• United States
5 Aug 07
I also live in pain every day. One day I woke up with a blinding headache. It lasted for days until I was sure I was having a brain aneurism like my mother had (My sister had one too but not until after my own pain was sort of diagnosed). The pain was blinding. I cried and I am a VERY tough person. I went to my doctor who did every test in the world and was clueless. Suddenly, the pain moved to my neck. More tests revealed that I have two bulging discs and a herniated one at the base of my neck. There is no cure but surgery was an option and there are no guarantees that I will get better and a good chance I will get worse. I won't have surgery so.......... I live every day with pain throbbing in my neck to my head and eyes. Everyday when I get up, it's there. Not always terrible but there. Lately it has gotten MUCH worse. I can't think straight. It's hard to work. I don't want to even move. I don't take medication but now and then will take a couple Aleve but they don't do anything. It's very difficult living in pain. It wears on you physically and mentally. My doctor said I shouldn't hurt this much at this stage. Well, I do. I try heat, stretching, relaxation, massage, anything I can think of. But it really never goes away. I don't mind as much when it is all in my neck but when it slams my head, it's scary for two reasons. Severe headaches stink and I need to be able to work and see. But, now that my sister also had a brain aneurism like my mother, I have an 85% chance of also having one. I never know when the pain hits if it is truly neck related or...not. I just pray it is my neck and, if it gets blinding, I will go to my doctor or the ER to be sure. I rarely do that because I have lived with this for three years now. All I can say is I sympathize with you and hope you find relief and, if you do, come back and tell me how you did it. I would love one week of just no pain. Normal everyday life without being distracted by pain. What a dream that would be, You are in my thoughts! Oh! By the way, I was told my pain was psychological as well at first. I also found that even if it WAS, it's still pain and it still hurts. If they had not found what it was, they were going to try antidepressants to see if that would help. Deep inside, I knew it wouldn't but I was willing at that point to do almost anything. Hang in there. There is a reason for your pain!
• United States
7 Aug 07
Thank you for your lengthy comment, and for sharing about your pain. I think that must be the worst--migraines! I used to have them when I first had FMS, but I don't get headaches as often now. It sure makes it rather serious when you have a family history of aneurysms. In my family it's cancer and heart failure. There is a high probability that I will get either one or both. However, I know that the LORD knows the exact number of my days, and I won't live one day longer or one day shorter than His will. That thought helps me cope with today. :) I like the song by Chris Rice called "Teach Us to Count the Days." It reminds me to make each day count because it could be my last. Thanks for sharing and for your kind sympathies. I will pray for you. :)
@Odlanor (141)
• Philippines
5 Aug 07
I think you should try to be more prayerful. There are lot things that can't be explained in this world. Offer all your pains to God.
1 person likes this
• United States
7 Aug 07
I think you're right. I do that often, but perhaps not enough. Your advice is well-taken! :)