What a weekend!
By Leca
@lecanis (16647)
Murfreesboro, Tennessee
March 3, 2008 4:58pm CST
I spent the weekend at the hospital with my son, after yet more seizures. He just fell over in the middle of playing Saturday afternoon. My hubby and I had both been sick, but Dustin didn't have any symptoms before the seizure... though he spiked a fever afterwards and is now coughing and stuffy and all that lovely stuff.
So we spent the weekend in the ICU, and just got home this morning. He had another large seizure after the first one, and smaller ones after that, and he's had a fever since Saturday evening. The first doctor we saw didn't want to send him home with a fever, but when his regular pediatrician came in to see him this morning, she was comfortable doing so because she knows his history better.
So that was my weekend. I feel pretty exhausted, and I missed my own doctor's appointment this morning because I was still in ICU with Dusty, but I have another appointment scheduled already and I seem to be doing a bit better anyway. Just burnt out.
15 people like this
32 responses
@Hatley (163781)
• Garden Grove, California
4 Mar 08
You did have some big things going down on your weekend.It must be so scary when your son has those seizures. I can see whereyou would feel burned out. Having your child in the hospital for anything can be worrisome but much more so with seizuresI hope he is much better now.
@lecanis (16647)
• Murfreesboro, Tennessee
5 Mar 08
*nods* It is very scary. I'm hoping we don't have to deal with seizures too much longer... they say he could grow out of them, but that could be years from now. We're hoping we keep them controlled, though. He's still feeling really crummy right now... with fever and stuffiness and cough and all that. We're keeping him medicated for the fever, and hopefully he won't have any more seizures right away at least.
@Darkwing (21583)
•
4 Mar 08
Ohhhh, Lecanis, my friend. I'm so very sorry to hear what a tough weekend you've had, especially as you and your hubby were not feeling good either.
I hope they can get things calmed down for Dustin pretty soon, because you're neglecting your own health in caring for him and you will be exhausted. This, in turn, will only make your health worse, and you need strength to cope with what life's throwing at you at the moment.
You're in my prayers, my friend, and I will be sending energies to you in the hope that you yourself, can find the strength to cope with all this. Brightest Blessings, in love an in light. x
@Darkwing (21583)
•
6 Mar 08
Yes, I can understand that family closeby would help a great deal. I can't understand why you can't get assistance here... perhaps a nurse for a few hours each day, so that you and your hubby could get some quality sleep, or a break every now and again. It must be difficult for you with your own problems.
I'm still working on the other thing, for what it's worth and will let you know as soon as I have something positive, my friend. It won't solve all your problems but may give you a little peace of mind. I'm still sending energies for you all to find strength and for little Dusty to come out of his seizures, so that he can enjoy a normal, and happy childhood. I know how much you treasure his little life.
Brightest Blessings, in love and in light, always. x
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
6 Mar 08
It's frustrating not being able to get any help, but because we do have jobs, even though we make practically nothing, the system doesn't seem to help at all. It's sad how if we quit our jobs and sat around doing nothing we could live off welfare, but since we're actually trying we can't get any help. Stupid American system. And since we can't get any state aid, we definitely can't afford a nurse or even a babysitter.
Thanks so much, Darkwing. Just drop me an email when you know something! *hugs*
@lecanis (16647)
• Murfreesboro, Tennessee
5 Mar 08
Yes, Darkwing, it's a bit of a problem, with everyone being sick at once and having to take care of Dusty first like that. It's one of those times when I wish I had family I could count on to help out, but since I don't, we soldier on.
Thank you so much for all your prayers and energy.
1 person likes this
@skinnychick (6905)
• United States
5 Mar 08
I know it has been a couple of days but I hope your better my dear friend. I hope Dusty is as well. I know you have probably said this a million times but I wish someone would find out what the heck is going on with him. Kids don't have seizures for no reason and someone needs to get to the bottom of it. Have a great day hun.
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
5 Mar 08
We're all still feeling pretty rough here, skinnychick, but he hasn't had any more seizures at least.
I agree, someone needs to get to the bottom of it! I'm so frustrated with the doctors right now because I'm having to push to even get anything done... everyone just wants to wait and see if he grows out of them. If they weren't life-threatening, it'd be different, but since I have yet to see him start breathing again on his own after one, I'm still convinced they're life-threatening. There's no way I'm going to sit back and just wait!
@skinnychick (6905)
• United States
6 Mar 08
Hang in there my dear!! I'll check around here for some options- I know a few medical people let me grab some advice it might take me a few days but I will get back to you. You don't live all that far from here maybe we can get you some help out there even..
@byfaithonly (10698)
• United States
4 Mar 08
Oh dear I am so sorry to hear about this and pray your son will be ok. I feel guilty now whinning because I've had 2 grandkids for 3 nights and their driving me crazy - am guessing you would be thankful to have Dustin home driving you crazy.
@lecanis (16647)
• Murfreesboro, Tennessee
4 Mar 08
Heh, it's funny how you think about those things sometimes. What one person is whining about, another would love to have. It seems to always be the way of things.
You're right, I'm happy to have him home now. He's not quite up to the level of driving us crazy he normally does, but I'm looking forward to him being his normal rambunctious self again.
@byfaithonly (10698)
• United States
4 Mar 08
You are very right "One man's trash is another man's treasure" is another of my favorites - and often we don't appreciate what we have until it's gone.
I've very glad he's home and doing better - I had grandkids again all day all week plus last night and probably tonight. Last night however they were both in bed and asleep before 8:15 - Grandma was exhausted and asleep by 10 but so happy they slept and I got a little break.
1 person likes this
@arkaf61 (10881)
• Canada
5 Mar 08
I'm so sorry to hear this lecanis , how is he doing now?
That really had to be a most stressful weekend, but I hope things are a bit better now.
Seizures are something extremely scary and when in children even more.
Are they close to find a reason for the seizures? Could it be that they are brought up by the fever? I say this because my husband's sister had seizures every time she was sick with fever.
The thing is that after she grew up she never had them anymore.
A big hug to all of you and a special one to your son.
@lecanis (16647)
• Murfreesboro, Tennessee
5 Mar 08
He's still sick, but no more seizures yet.
The doctors thought they were because of fever at first because he tends to have the seizure right before showing symptoms of an illness, but there hasn't always been fever or an illness when he had the seizure. So we're not sure, and the doctors say seizures from a fever wouldn't be as severe as some of the ones he has had.
@charms88 (7538)
• Philippines
4 Mar 08
You are something, you know that Lecanis. I mean, here you are, posting like you just went through a normal weekend. I would be out of my mind if I were in your situation.
I wonder what's causing Dustin's seizures. Was he born with it? Or was it something, a food or dust, that's causing this seizure? What did his pediatrician said?
You should need more rest. I'm hats off to you for the way you handle everything.
@lecanis (16647)
• Murfreesboro, Tennessee
4 Mar 08
Posting on here and going about my daily life are part of how I keep my cool, I think. I'm trying not to go out of my mind, because Dusty needs me.
We don't know what's causing his seizures yet, and that's the really scary part, charms. In this case it was probably caused by the virus we're starting to see symptoms of in him now, but they haven't all been accompanied by illness or fever, so they aren't just febrile seizures. *sighs* We just don't know, since all his tests so far have come back normal. I'm asking about the allergy possibilities next week when he sees his doctor.
@anniepa (27955)
• United States
4 Mar 08
I can imagine you're totally burnt out! Gee, I sure hope you find out what's causing Dusty to have these seizures soon and that they can do something to stop them or control them at least. My heart goes out to you more than you could ever know, Hon, I'd be a total basket case if I were going through what you are. My grandson, who is now 13 and hasn't had a problem for many years now, had mild seizures when he was very small. But they were nothing compared to what you're little guy is going through, I don't think! Todd would hold his breath, then he'd turn blue and pass out and start jerking a bit some of the time but not always. We still have no clue what was causing it and all his tests came back normal. I've been thinking about you lots and praying for you. I sure hope this is resolved soon.
Annie
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
5 Mar 08
I sure hope they can find out what's going on. It's frustrating because we want to know, but the doctors seem more interested in a "wait-and-see" approach, so we're having to push to get anything done.
Oh, I'm so glad your grandson isn't having problems anymore. Seizures are such a scary thing!
@scammerwear (1433)
• Singapore
4 Mar 08
*BIG HUG* Hang it there gal, sounds like you're having it rough, but know that you have friends who care and support you.
If you like, I can dusty off my tarot decks and make a few inquiries. I'm not all that accurate mind you (70~80% accuracy) but it might draw a new perspective on the situation (Goddess willing).
And no, my middle name is not 'Cleo' and I do not have a 800 number :p
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
4 Mar 08
*big hug* :)
Yup, we're doing our best to hang in there. I am lucky to have so many sweet friends, definitely. :)
I would love for you a to dusty off your tarot decks and make some inquiries. I considered doing some reading myself, but I'm not able to be objective enough on this one I think, so it'd be great to have you do it for me. *hugs*
And I promise I will NEVER call you Cleo! *giggles*
1 person likes this
@scammerwear (1433)
• Singapore
5 Mar 08
I'll do it this weekend, *Sigh* its been a while and I'm very sure they have a lot to whack me on the head with... I really have to talk to them more often.
Thank you, Cleo is just so tacky you know, I look more like a... nvm *whistles*
1 person likes this
@carmelanirel (20942)
• United States
4 Mar 08
Oh wow, you did have a bad weekend.. I hope your son is better and that they find out about his seizures real soon..
@lecanis (16647)
• Murfreesboro, Tennessee
4 Mar 08
Thank you. :)
Learning about new friends is part of the fun of having friends. I'm sure there will be lots I'll learn about you, as well!
I'm glad I was able to stay with my son, as well. My husband stayed too, even though he had to miss work to do so. So our little boy got to have both his parents with him. I feel a little bad going to work today even though he's home now, but it's unavoidable at this point.
Thanks for all your kind words! :)
@Loen210 (1540)
• United States
4 Mar 08
Well, he's a lucky boy to have such great parents. When I was a child in the hospital, my whole family was so loving. I can't imagine life without them. My mother slept over every night I'd been in the hospital. When she coudln't, my father would sleep over. My mother always insisted on getting a portable bed to squish into the same medical room as me. :o)
1 person likes this
@Thoroughrob (11742)
• United States
4 Mar 08
I am so sorry that you are having such a time. I hope you feel comfortable having him home. I wish they would figure out the cause of his seizures. Hope you feel better soon, too. Take care of all of you and try to get some rest.
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
4 Mar 08
I think we're pretty comfortable having him home. He's definitely a lot happier, and we're keeping up with his medications and all that... he hasn't shown any signs of seizures since we got home yesterday, though he's quite ill still.
Thank you! :)
@subha12 (18441)
• India
4 Mar 08
Oh My God! I am really sad to hear all this. it seems bad time never ends. I am also undergoing similar kind of problem with dad's health. after his release from hospital, there was many tests and also it scared me about the outcomes. after 3 appointments with the doctor, I spent again scary weekend as he got swollen foot on weekends. again doctor and he has anemia. now he has prescribed another blood tests and its also killing me.
1 person likes this
@sudhajosyula50 (3808)
• India
4 Mar 08
Hi friend,
Its really terrible one.I feel sad.Sometimes things will happen like that,so we shd be careful friend.
I hope everything would be fine in near future.I wish u all the best by god grace u will
recover as soon as possible
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
4 Mar 08
It is really sad when children have to be sick, and I hope we find out why and are able to help him in some way soon. For right now, we're just being here for him and making sure he gets his medicines and everything.
Thanks for all your kindness. :)
@girlgonefishing (2174)
• United States
4 Mar 08
Wow lecanis. That WAS quite a weekend. I really just don't know how you do it. I think a lot of your illness just has to be caused by the stress that you endure on a daily basis. With what has happened to you in the past and what is happening with your son in the present, I'm surprised you are able to function at all. Hang in there girl. We are all concerned about you and care about you.
@xXxMikesWifeyxXx (3072)
• United States
4 Mar 08
O wow! sorry to hear:( Seizures are aome serious things.. im glad to hear that your son is doing better, besides being all stuffy and the fever, that should pass:) I bet all of that is scary.
Yes what a weekend...
@idaantipolo (472)
• Philippines
4 Mar 08
Sorry to hear that. I onced looked after my niece in a hopital and we stayed there for about 4 days, no matter how I try to put myself to sleep, I just couldn't. The room we got has a T.V. and cable and a refrigerator. Whenever I wake up in the middle of the night, I open the T.V. to try to look what's on but I could not concentrate, so just end up going down at the lobby to buy coffee and then back up to 10th floor and take a look at my niece again. After those exhausting 4 days stay at the hospital, I finally got the much needed sleep and I was able to sleep 10 straight hours.
Hope your son gets well soon.
@lecanis (16647)
• Murfreesboro, Tennessee
5 Mar 08
It can be very hard to get rest in the hospital. With all the stuff going on, and the sounds of the monitors, and just the atmosphere of the place. Ugh.
We're still not sleeping so great at home at the moment, because we have to keep a close eye on him and give him more medicine to keep his fever down all the time. I'm looking forward to a long uninterrupted sleep once he's feeling better.
