An Inspiring, Lovely Story Of A Disabled Girl Of 10

@pyewacket (43903)
United States
May 14, 2008 7:41pm CST
Let's face it, and be honest, sometimes when we see a severely disabled person we tend to feel sorry for them, thinking what a wasted life. I'm talking about the disabled who may be and will be confined to wheelchairs for the rest of their lives, can't in the normal sense communicate, and for all intensive purposed seem to be "vegetables" and not really "living" I came across this story that truly amazed me, inspired me, and has forever changed the way I view very, very severely disabled people, particularly those with medical conditions like Celebral Palsy. It's the story about Jemma Leech who is a mere ten years old. She can never walk, as she has Celebral Palsy and is confined to a wheelchair and will be for the rest of her life. She can't talk either, not the way you or I can. She can however, communicate via the wonderful technology of computers, and up until now could only write her thoughts out with a pointer type stick...but my! The words she can write are incredible. She has actually won writing awards and contests, and even wrote a piece at 8 years old called An Autobiography --Like to share excerpts from it...but PLEASE read the entire thing...it's wonderful...and this from an 8 year old! {quote} Autobiography by Jemma Leech, age 8 I am Jemma and I am immortal! Music is my life and my life is music. My heartbeat is written on a stave, with crescendos and diminuendos, tacit bars and heart-stopping glissandos. But my breath is the libretto, with such glorious poetry and anarchic rhyme that I can't make sense of it at all. My seminal moment came in the guise of a very talented pair of artists Carlo Rizzi and John Caird whose production of Verdi's Don Carlos brought my life to a resounding halt last September. It was like my very existence had been awaiting that meeting and that opera. In one afternoon they had shown me the meaning of life! All the musical forces came together to create an awesome experience just for me. Music transports me to the court of King Philip, an alley in Verona or the farthest reaches of the universe before returning me to Victorian London, wartime France or my homeland today. Even in the dark of the night my music shines bright and fills the room with light and radiance. No sound is heard but music is blaring from my mind into the void. Daytime can be tiresome with its noisy light disrupting my mind's symphonic pleasures. If I were in St David's Hall I couldn't hear more beautiful music....... Language is my paint and my keyboard is my brush. With them I paint pictures of life's more interesting times and scenic views of the future. But what is my future? Many people can't imagine how there could be a brain in this body. They see a broken child like a broken toy, simpler to dispose of than use for the few things it can still do. Some people are happy to be nice to the body assuming that a baby's mind must lie within. Few people suspect a city of people lies inside my fractured casing, with artists, musicians, politicians, teachers, priests and spacemen all vying with each other for airtime on Jemma FM. How can you, they say in hushed tones, read, write and think like normal people do? Surely that mother of yours is just making it up and should stop telling fibs. Well, d'you know? I do have a brain and I do have a mind — and the imagination of Dahl, the poetry of Keats, the drama of Shakespeare, the music of Verdi and the passion of them all in one. My body may be broken, but my operas are premiering and my films are winning Oscars every night. Well, in my mind they are anyway! Carlo and John could see past the wheelchair; they could see into my spirit and gave me permission to try whatever I wanted to, however much people derided my attempts. I cannot promise to change the world, but perhaps my music and my poetry will. Someday...." http://www.chron.com/disp/story.mpl/side/5658214.html Her other writings are also amazing..I mean here I am, not disabled physically like Jemma is, and hell even I couldn't write like that at age 8 The wonderful news too, is that a Swedish company who heard of her story, has donated a $15,000 custom made computer, which will allow Jemma Leech to write on the computer just by sheer eye movements, rather than using a pointer. There are video clips showing this remarkable girl, and can listen to her mother read some of her poetry...please watch...they are amazing and inspiring http://abcnews.go.com/WN/PersonOfWeek/story?id=4591478&page=1 http://abcnews.go.com/search?searchtext=jemma%20leech&type I just had to share this story with you...we hear of so many negative things going on in the world, and it's heartwarming to hear something so endearing and faith-filled as this for a change. How do you view very severely disabled people? Does it make you wonder if there is a "life" there...and look at Stephen Hawkings...another very severely disabled person, but who is probably one of the greatest geniuses of our times
5 people like this
8 responses
@Breath (1297)
• United States
15 May 08
An amazing story...Language is my paint and my keyboard is my brush...That line held so much beauty for me...So much life in that sweet artist soul..
2 people like this
@pyewacket (43903)
• United States
15 May 08
Isn't that a beautiful line? I know you write beautiful poetry too, but yikes could you express yourself like that at age 8??? I sometimes have trouble expressing myself NOW at age 52..LOL
@Loen210 (1540)
• United States
15 May 08
Hi hun! Glad you found this beautiful piece of writing, but this girl who is living life to the fullest, it sounds! My symphony orchestra hosts and honors a medical needs place at each concert, helping them raise money. And Celebral Palsy was one of them. It is such an unforgivable illness, among others like Multiple Sclerosis, and ones that just take your body away from you, though keeps your mind intact. And I have to say I feel so much for those especially who have had good lives, and suddenly it hits them, and changes everything you love in life. This girl is a true musician. As I am a musician, I "hear" all of her words, and praise her for her beauty and love for it. Hugs to you!
1 person likes this
@pyewacket (43903)
• United States
16 May 08
Her words are so beautiful aren't they? It's a shame that celebral palsy exists at all, as it is believed it's triggered off by delivering the baby "wrong" at birth...I always remember my great-grandmother, a nurse telling me this. But despite it all, Jemma, this 10 year old girl does seem to be living her life to the fullest already
@Loen210 (1540)
• United States
16 May 08
How wonderful that you knew your GREAT GRANDMOTHER! I never knew or in fact, don't even know about my great grandparents.
1 person likes this
@Thoroughrob (11742)
• United States
15 May 08
Thank you for sharing that!! I have a son in a wheelchair and uses a communication device. It gives hope and amazement. They had an autistic boy on tv this morning, he can see like nothing you have ever heard. It is just amazing. We all have to remember they are all people too. They have feelings and can understand things. We need to treat them like they are one of us and help them find their own abilities.
1 person likes this
@MsTickle (25180)
• Australia
18 May 08
I believe our education is pathetic for the most part. I don't hesitate to say that we fear disabled people because we don't understand them, we don't understand their condition. We don't know any better. We've never been taught these things. We are not even taught to reach more than a fraction of our own potential...our teachers are not teachers at all. We all have skills and abilities we will never see. Some of us are better able to recognise and use the gifts we are born with, thank goodness. I think the education system will continue to fail. This is a refreshing story Pye, I love hearing about the wonders of the world and the people in it - thanks for showing us.
@pyewacket (43903)
• United States
19 May 08
I think that's really true for anything in regards how the education system is as far as anything goes. Maybe if children were taught the concepts behind different religions and cultures there would be a better understanding and respect for them as well, instead of prejudices. So yes, maybe what is also needed is to teach children to respect those that are disabled, that they too have a mind, lives and a soul just as we do
@blackbriar (9075)
• United States
15 May 08
I'm amazed at her writings, pye. At 8yrs old, I was lucky if I could spell some words correctly. Some of the words she used I had to look up in the dictionary cause I never even heard of them b4 now. When I see s severely disabled person, I see someone inspiring inside just screaming to get out at times. Other times, I see a soul so deep that it blows my mind. Just because their bodies failed them doesn't mean their mind did.
1 person likes this
@pyewacket (43903)
• United States
16 May 08
LOL--I know...my literary skills were quite wanting at age eight..Yes, I often wonder when I see a disabled person like this...what are they thinking? And do they have the same opportunities to express themselves as this Jemma has? She's lucky to have parents like she does that I guess deep inside realized and looked beyond the disability and gave Jemma her potentials
@faith210 (11224)
• Philippines
15 May 08
Hi pyewacket! I have worked with severely disabled people before and my heart ached for them..But this story of Jemma is very beautiful and inspiring to so many of us. She writes so beautifully and I admit I could not write as beautiful as that. Her language is beautiful as it has a heart. She is untainted and pure, i think she is luckier than most of us abled people because she has seen the beauty of life in its purest form. Take Care and Happy Mylotting! God Bless!
1 person likes this
@pyewacket (43903)
• United States
16 May 08
I know faith,...even I couldn't write as well as she can. It does make you wonder what disabled people ARE thinking and I bet many don't get the chance to express themselves the way this girl has been able to
@Lakota12 (42600)
• United States
16 May 08
What a wonderful story and only 8 wow at the words she has wrote I cant even with pen and paper which I have to use sometimes to get words spelt right. MOre power to her and all the rest that can achive so much that we can tell that they can!
@AmbiePam (121382)
• United States
15 May 08
It saddens me when I heard of people like this given up on, and sent to sanitariums. What a waste! I'm not talking about people who can't afford to care for their family, I'm talking about people who categorize them as useless. This girl is a shining example illustrating the worth of every single person. I'm glad someone has given her the chance to express herself more easily. Someone like this I can totally see teaching in a university one day. Why not? She certainly has the mind for it.
1 person likes this
@pyewacket (43903)
• United States
15 May 08
I read stories about the genius Stephen Hawkings...many people "gave up" on him being useless...he sure proved them wrong, didn't he? And he DOES teach at a university