Multiple sclerosis?
By jasmine0728
@jasmine0728 (677)
United States
June 9, 2008 3:13am CST
Has anyone here experienced the symptoms of multiple sclerosis with no diagnosis? If you have then you will know what I have been going through.The symptoms always get worse in the heat and lucky me we are in the middle of a heat wave.I can't get a damn thing done,and I am glad that at least today wasn't a work day.I can't walk far on any day but in the heat it is so much worse.My left side goes into what feels like it is asleep but it doesn't wake up.Sometimes the nerve signal from the bottom of my foot don't make it to my brain and the whole floor comes out from under me.
I have seen many doctors and had many tests,I get told well all the symptoms are there you probably have multiple sclerosis but they don't come right out and diagnose it.There fore no medication that could help.They say that in order for a diagnosis the MRI has to come back with lesions onmy brain,I am happy to say it comes back clear.But if not Multiple sclerosis then what is it?Doctors don't seem to know.
Does anyone have any thoughts?
Jas
3 responses
@fluffnflowers (1594)
• United States
9 Jun 08
I'm currently struggling on getting a diagnosis on my condition, so I feel your pain. 
MS has been suggested up and down, along with a handful of other conditions, but I don't have any clinically recordable signs of any of them, like lesions on the brain, just a bunch of symptoms that can be connected a million different ways.
I don't quite understand a doctor's reluctance to provide a definite diagnosis, but I went through two years of treatment that ended up making me more ill and would just like for them to figure it out!
Not diagnosing it, for me, keeps me from securing insurance (I'm having to do COBRA now, which is crazy expensive), getting any of the disability 'benefits' like bus pickup (my condition(s) prevent me from driving), etc.
I'll be thinking of you and PM me if you'd like to chat. It's never a bad thing to have a fellow sicky to offer support. 
MS has been suggested up and down, along with a handful of other conditions, but I don't have any clinically recordable signs of any of them, like lesions on the brain, just a bunch of symptoms that can be connected a million different ways.
I don't quite understand a doctor's reluctance to provide a definite diagnosis, but I went through two years of treatment that ended up making me more ill and would just like for them to figure it out!
Not diagnosing it, for me, keeps me from securing insurance (I'm having to do COBRA now, which is crazy expensive), getting any of the disability 'benefits' like bus pickup (my condition(s) prevent me from driving), etc.
I'll be thinking of you and PM me if you'd like to chat. It's never a bad thing to have a fellow sicky to offer support. @jasmine0728 (677)
• United States
10 Jun 08
Oh I know just what you mean.Without a diagnosis o help at all from anywhere.I am a single mom just waiting for lights and gas to be shut off because I can only work so much.When this 1st happened I lost a job I had for 8 years.Since then I have bounced around.Without a diagnosis I don't know about your family but mine don't think I am technically sick,they think it is all psychological.I would like to know how it they think it is psychological when I feel like I have a wet suit on the left side of my body,and lose my balance,and get so damn sick in the heat.My friends are much more supportive,but they can't help financially my family could and won't.
Yes it is nice to have someone to chat with that understands.I do understand what you are going through this is a terrible thing,they say it can take years to diagnose,sometimes I wish they would diagnose me just so I can shove it up my families butt sideways.
@fluffnflowers (1594)
• United States
10 Jun 08
Luckily, I don't have to worry about having the power shut off (thank goodness for a very supportive SO), but I can't even begin to imagine how hard it is for you, as a single mom, having to worry about a child(ren) on top of everything.
I've done my rounds with the psychiatrists and psychologists, hoping it'd help, but that doesn't seem to be the case. The psychiatrists tell me to go to real doctors, and the psychologists just want me to spend all of my money on therapy. Another luckily, for me, is that my parents have been very supportive through all of this.
Somehow, years to diagnose anyone just doesn't seem acceptable, does it? I just keep hoping they'll be able to regrow all of my parts in a few years and replace what's broken. 
I've done my rounds with the psychiatrists and psychologists, hoping it'd help, but that doesn't seem to be the case. The psychiatrists tell me to go to real doctors, and the psychologists just want me to spend all of my money on therapy. Another luckily, for me, is that my parents have been very supportive through all of this.
Somehow, years to diagnose anyone just doesn't seem acceptable, does it? I just keep hoping they'll be able to regrow all of my parts in a few years and replace what's broken. 1 person likes this
@killove (86)
• United States
16 Nov 08
My heart goes out to you. My wife was diagnosed with Primary progressive MS. It wasn't until she started getting blurred vision. She got the spinal tap, MRI of whole body (2 hr MRI). There is a long list of Mis Diagnosis, I still look for alternitives to the shot. she's currently on Copaxone.
@prashu228 (37518)
• India
21 Dec 12
Hi
I heard of this sclerosis as i am from microbiology background. I have studied about this. But i hope you are alright now.
