What have you tried to help you cope with your fibro??

United States
August 7, 2008 7:14pm CST
What medications (Lyrica, Neurontin, Mobic, Ultram, etc.) or nontraditional things (acupuncture, yoga, exercise, herbal supplements, etc.) have you tried for your fibro? What worked? What didn't? I haven't had any luck with the medications that I have tried so far, and I am trying to find other options. (I did not list all that I have tried, and I have not tried all that I have listed.) I want to have a list of optons to discuss with my doc at my next appointment. Thanks!
2 people like this
5 responses
@bam001 (941)
• United States
8 Sep 08
From a conventional medical stantpoint, I use Lyrica, Effexor XR, Ultram, Xanax, and Singulair daily. I use Lunesta as needed for sleep. I also take a monthly B-12 shot (would love to have them weekly, but supposedly monthly is the max). Nonconventional: monthly chiropractic visit, daily: multivitamin with iron, acetyl-l-carnitine, alpha lipoic acid, CoQ-10, magnesium, Then when I have an extra $60, I get a 1 hour massage. An occasionaly jacuzzi bath is wonderful too. Plus, I take 2 to 3 hot baths/showers daily just to loosen up. Hope this helps!
• United States
8 Sep 08
All comments help. I write down all info and go over it with my docs. With 2 kids in college and 2 kids in public school, I'm not sure if there is such a thing as extra money here. Every time I sell one of my crochet creations, my husband uses the money for us to eat out. At least we get to eat out occasionally, lol!
@ali136 (199)
• United States
18 Aug 08
I recently started a discussion on this same topic, not realizing there was already one here. I am on tramadol and mobic. I normally take tylenol arthritis, as well, but have been out for a few weeks. I go to the gym three times a week, and do other exercises at home as well. My pain does not seem to flucuate much. I am in pain everyday. The mobic just takes the edge off, and the tramadol only helps for an hour or so. Exercise hurts when I do it and the day after, but the rest of the day following exercise is normally tolerable. I am a waitress, so my job keeps me moving, but also keeps me hurting. Baths and heat help, but only very shortly. As soon as the bath is over, or the heat is taken away, the pain is back. I was told swimming does help, but I don't have a pool near me.
• United States
19 Aug 08
I don't tolerate heat well, and I am allergic to the cold. (Yes, it was diagnosed. I get hives over much of my body, and my lips and tongue swell.) I don't swim, but instead walk or exercise in the pool. (My 7yo likes to go with me, so I have to keep my eyes on him.) Sometimes I get in the hot tub for a few minutes afterwards, but I end up looking like I have been boiled. With the discomfort of the heat, I've never noticed any pain relief.
• United States
12 Aug 08
I cannot tolerate many prescription meds so I deal with the pain & use plain old extra strength Tylenol. I guess my fibro is pretty moderate but I have bad days. My new doc sent me to physical therapy where I performed lots of neck & shoulder exercises. They also applied heat & some sort of slight stimulation (electrical?). This really did help but I haven't kept up with the exercises. I had pretty bad headaches for a while & had two sessions of acupuncture which helped quite a bit. Now my headaches are tolerable & they don't last as long. I highly recommend acupuncture - just make sure the acupuncturist is licensed. Yoga is also great - I think there are yoga DVD's out there just for people with fibro. Good luck & hang in there!
• United States
12 Aug 08
Thanks for your input. It does help me to hear about what has and hasn't worked for others.
• United States
8 Aug 08
I have the Overly Acidic version of Fibromyalgia. Test Saliva pH and keep it as close to 7.4 as possible. No acidy foods. Neutralize any water or tea, etc that I drink. I also have the Serotonin Cluster of Symptoms so I take a small amount of Paxil at night. Wear eye mask and ear plugs to block out all light and sound for sleep. Although I have Extremely Severe Fibromyalgia, this method keeps me pain free, sleeping great, strong, flexible, no brain fog and happy. Has for over 8 years. There are 4 different versions of FMS. Treatment for each is a little different. www.FibroFix.com is all free. Tells how to do this with over the counter or prescription meds and the essential tricks and tips to make it all work. Annie
• United States
8 Aug 08
I will look into it, thanks.
• United States
28 Nov 08
We are using Guaifenesin (expectorant), Phenylephrine (decongestant), an SSRI at night, and alkali to keep pH up. Also wear eye mask and ear plugs to sleep. Even though I have the most extreme form of FMS, I don't hurt, can think clearly, have strength and energy and can sleep well. Everyone says it's impossible, but almost anyone can do this. It's important to know which version of FMS you have. 90% of us have the Overly Acidic Version. It's so important for all Fibros to test saliva pH. Most also have the Serotonin Cluster of Symptoms (depression, anxiety/panic, obsessive/compulsive, and procrastination. That's what the SSRI is for. When you know what you are dealing with, you can beat it. Anne at FibroFix