My disabled child

sometimes, Maximax, people is social services just don't 'get it'. We do not live in a perfect world. If we did then you would be able to purchase a larger house and also employ help so that you could get some time to yourself too. I noticed the posting for an electric chair for the stairs and this is really a good idea. We can only do what we can do with what we have. You sound like an excellent Mommy - don't let these peole get you down. Recession will affect all countries and this is not the time to even think about selling your house or getting into debt to purchase a larger house. God Bless you and your family.

Having a disabled family member of any age does indeed change the life of the whole family. If you cannot afford to move (as so many of us can't) I would look into what options you have of making your home easier. She might have said you won't be able to adapt it, but there are always ways around things. You can purchase a chair lift for the stairs (I think for around $200-$300 US - alot less than a house!) If there isn't enough space to maneuver downstairs, you may be able to work things out (like shortening counters, moving furntiure etc) Good luck!

I am sorry to hear that. I am not sure whether spina bifida can be cured,I hope so. Having a child is easy, but bringing up a child is very difficult. I can understand that it will be harder to take care of a disabled child. Especially he is so little now. There are many things that he can't understand yet. Is it possible for you to move to another house which locates in the first floor. So they you and your child will be easier to move around.

My heart goes out to you because I do know what it does to your life when a child is disabled; whether it is a physical or mental disability, it does affect you. Your whole life seems centered around doing what is needed for them and the amount of worry you do is more than most parents have to endure. When my daughter was diagnosed with autism, along with other disabilities it changed how I saw my future. You give up thoughts and hopes you had, but I learned you can hold onto the hopes because you never know how much can change. My son had a classmate with spina bifida and I know they had a ramp for the wheel chair, but where we live the bedrooms and bath are upstairs. I know the times my son stayed overnight everyone slept in the livingroom. I don't know if the mother carried him up for his baths or not. Or if she bathed him another way. Either way, he was always well cared for. Over time you learn little things that help to deal with situations.

I am sorry you are having such a struggle adapting to changes. If you sold your current house though wouldn't you be able to afford a new house. If not you could carry him upstairs and bring the wheelchair up. Use a gate at the stairs to prevent an accident.

Accept my sympathy! It's not that I am sorry for you and your son. Its just, I know how hard it is for you to see that your son in his very young age would be suffering such disability. I know its harder for moms. Life would be hard for you I know....but think of how would it be harder for your child to face life when he grow up. I saw some family who has disabled child. only the love of the child keeps them going and it is also the love of the parents that keeps the child make through. all I can say is... may the peace of the Lord be with you and your child.

My home would not be suitable for a wheelchair user. It's not even possible to get a wheelchair through the door. Although you can't afford to move make sure you get all the help available to people in your position, there are grants available for you to adapt your house for your childs needs. Life changes a lot with a disabled child, a friend of mine has 2 autistic children and her life has been very hard.

If your bathroom and bedrooms are upstairs you could install a chair lift that would bring both wheelchair and your child up and down the stairs. There could be a problem if the stairwell is not wide enough to accomodate the lift. Your daily routine will change once you have a disabled child. But, once you adjust it will seem normal. Our home would be suitable for a wheelchair. We would have to get adaptive equipment for the bathroom and remove the carpet and install floor covering that would be best for a wheelchair. We would also need to install a ramp to lead to the house.

It is first of all very sad and I sympathesize with you . I guess life really changes with a disabled kid. there are so much sacrifices that the parents have to make.

I don't know much about spina bifida, but I'm sure when the time comes you will make the best decision for you and your son. You're an amazing person max. You've achieved more in your life than many do in their entire lifetime, and to do this with your child makes it all more amazing. I'm sure, when the time comes, you will make the best possible decision for you both. Good luck maximax.

If your baby has wheelchair and your place was too small for him you probably need to move into a larger house. That was very difficult to him move freely. Must need him for more convenient place. I know that life still the same, and if there is changing it was too small just a little adjustment rather. At first the hardness you feel, but if you have adjusted upon the situation it's getting better and it will turn into normal. Just look only into positive side of life.

hi maximax this is so sad to hear! i think your situation is really difficult. managing a disabled child is traumatic by itself. the mere fact that you have to take care of your child differently from the usual child caring process. i am single and never had a child but i imagine your situation it is really difficult. don't worry. just keep in mind that the Lord is giving you problems He knows that you can bear. be happy