Fragile X syndrome and living with a developmentally delayed child

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My son was recently diagnosed with Fragile X syndrome. It is a broad range disorder that can go from very mild to severe mental retardation. I would love to hear from other families that deal with these issues each day. I am so new to this it seems overwhelming. I worry that I don't have the patience to teach him things. And he makes this very annoying noise almost all day every day. I love him more than living, but I just worry that this will be too much for me to handle. I am not a religious person, so the "God won't give you more than you can handle" argument won't work. Some symptoms of fragile x include autistic behavior, trouble feeding as a newborn, a large head, developmental delays (my 16 month neither walks or talks). As a matter of fact, something like 40 percent of fragile x adults still live with their parents at age 30. No matter what issues your child has I would realy love to hear about how you deal with them and how you cope. It's not the here and now that worries me; it is the future and not knowing the extent of his illness. Please tell someone, everyone you know about fragile x. Aproximately 1 in 200 women are carriers, yet no obstetricians test for it. The leading genetic cause of mental retardation yet no one tests for it. I find that a bit odd.