Do you feel people think your faking?

yeah i have had that problem but its beginnning to lessen now that the news it coming out on fibro.. i always get that "your too young to be sickly" or "you look healthy" crap which drives me nuts!! every since i had to stop working its been annoying because people ask why im on disability (i have other things wrong with me too) and its like if you try to tell them simply they think you are faking because you didnt tell them everything and if you say too much then your faking because you are going over board (in their minds) to explain it.. and yeah its annoying when other people hurt something simple and sound like they are dying when we live with it or something more painful etc..

That's the problem with a health issue like fibromyalgia. The signs are not so apparent on the outside, yet they are very real to the person who suffers the effects. You should join a forum and have discussions with people who also suffer from the disease, that way you will find support: http://www.fibrohugs.org

yes, and i also get this said to me. I have a backache and i work or i'm depressed and i work. they don't consider my pain bad and offer no support. i am alone with this and i pray to God to help me daily. it is a lonely condition, with which i have joined several support groups online for. best to you. i understand believe me

My friend (and also her mother) has lupus and fibromyalgia. I don't think she's faking any of it... We are very close and I hate to have to see such a strong, beautiful woman go through such agony day in and day out. I couldn't imagine being in her shoes. If you have this condition, I don't feel sorry for you, because I don't think that's right, but I can definitely sympathize and tell you I'm sorry you have to endure such pain and other complications and my heart goes out to you.

I don't think there are many of us who do not go through that at some time or another. It is especially frustrating when your body changes from moment to moment. One minute I can hardly move, a few minutes later I can trot up the steps. Sometimes on my old job I would walk so stiffly to the copier (probably because I had been sitting for so long) then I'll loosen up a bit and be able to walk normally back to my desk. I know my family thinks I sometimes use it as an excuse but don't realize that stressful situations can cause an immediate flare or if I have a little fun today I will pay for it tomorrow. They don't realize just how much I want to not have this and to be normal all the time. I am not lazy, never have been. They should know that about me. Even the doctor's I have had lately tend to blow me off. The one doctor calls me hard head because I won't take Elavil. I have told him and several doctors over the years that Elavil makes me feel comatose and I can't wake up, let alone function on it. It does get truly frustrating sometimes.

I hate the term "Fibromyalgia". I call it a term because to doctors it means "I don't know what the heck is wrong with you, just that you got a lot of pain." BS! That's what I say. And when you try to get disability because you lose job after job, no one wants to hire you, the disability agents only gawk at your audacity for showing up in their office. You see, Fibromyalgia isn't a "True" medical condition (remember it's the doc's IDK WTF) so there's no money for the infirm with fibro. Damn idiot docs. I got fibro shortly after a car hit me breaking my neck. Since then it's like the nerves all over my body has terets. Sharp, shooting pains attack me, sometimes making me fall, but it usually lasts for seconds. But seconds later it hits elsewhere. Weird, I know. I only have prolonged pain lasting hours or days because I don't work out, and so when I do exercise or exhaust myself do I hurt extra bad the next day... though I'm sure everyone non-athletic is like that. Pain pills don't work anymore, and I WON'T take narcotics anymore either. I'm trying to learn how to accept and cope with the short bursts of pains and get a desk job to ease the exercise load. I would assume psychiatry would work too, but that's if your fibromyalgia is coupled with depression or PTSD. I hope that which ever path you choose you blog on it extensivly so others can learn from your mistakes and accomplishments.

my brother doesn't really believe - heck he even thinks my allergies are faked