Treatment of people with autism and related 'conditions'
September 26, 2009 11:35pm CST
I think the thing that most annoys me in this entire world that we live in is that the people who generally are seen as the good people and the people who give a flip about their neighbors are so willing to state that a person with autism or one of the related 'conditions' is beyond help of any sort. it is completely ridiculous in most cases, since a good number of people with these 'conditions' do just fine, even if they require help to do some of their basic things. There's also the fact that there are people who will lump every kind of autistic 'condition' together and say they're all the same thing, and that there's no difference. This is apparently the position of the international organization Autism Speaks, or at least their founders. And the name itself is the most hypocritical of the entire thing! You might ask why I say that. Check their board of directors: not one of them has any form of autism. Asperger's Syndrome, which is what I have, is one of those 'conditions' which can act fairly normal and therefore could certainly be placed on the board. But there is no one with any kind of autism on that board. And as for the Wright family, especially Mrs. Suzanne Wright, hmph! Mrs. Suzanne Wright wrote a little blurb of sorts in the Parade Magazine, attached to an article on autism, in which she stated a hope that autism would be 'eradicated' 'within a generation'. This was the edition that came out the Sunday following Heath Ledger's death, if anyone wants to go look at the article and Mrs. Wright's blurb. After I read that article, I ended up speaking two or three times to psychology classes at the local university. Here I was at age 21-22 and without even an actual high school education, and I was giving a lecture to college students about knowledge that no one who doesn't have autism could give a person. From what I could tell, a number of those students had changed their minds about autism by the time I finished with my lectures. Another reason the name is hypocritical is that most of the autistic community doesn't see Autism Speaks as their voice. They are more likely to dentify with the Autism Rights Movement, which has a large number groups within it that are active in showing the public that those with autism are not to be carted off to sanitariums and the like, but respected as human beings just like anyone else with any other disability are. And that whole 'disability' part is a pain in the butt too, at least for anyone who has Asperger's. In general, people with Asperger's have a better chance of becoming contribuint members of society than any of the people who belittle them or abuse thier authority over them. Well, I'm done ranting for now. Discuss as you see fit, and I will answer if you ask me a particular question. Enjoy this ranting section.
• United States
27 Sep 09
Good rant and worth the read. I can't believe how many people follow this scam outfit especially when one is recorded planning the murder of her own child! No telling how many have that we aren't aware of. My daughter has never been on any funny diets, squeezed into a mind-altering box, rubbed with a fluffy whatever it is they do. She hasn't been poisoned to get rid toxic chemicals and metals-I'm still trying to figure that one out! I've never tried to cure her or even prayed for her to be cured. I've treated her like my other kids. Loving and tough when I had to be. What's worse is the celebrity behind autism speaks. Jenny McCarthy spewing about her son being cured. Uh, sorry he's not. Accept your children as they are! We don't ask for what we are given and none of us pray for a child with problems but you deal with what life gives you. If I woke up tomorrow and her autism was gone, I'd mourn my lost child.
• United States
27 Sep 09
To Irishidid, I definitely agree with you about all the things that have occurred when it comes to people trying to 'cure' autism. When I did my lectures at the university in my town, I made it very clear to every class that autism and the related conditions are no disease. When asked why I thought this, I likened it to something like cancer. While cancer can be genetic, it can also appear in someone whose family has no history of it. Whereas generally a family has at least one other person whom has autism or one of the related conditions. I have read countless accounts online about how one parent cares so deeply for their autistic child, but don't have custody of them for whatever reason, and in the end its the other parent who ends the life of their child. One such story was attached to the comments section of the Parade Magazine article on their website. The father told how he loved his teenage son with autism so much, but every time the court would rule in favor of the mother because of job status or some other occurrence. At the time, he was trying to make sure that his ex-wife paid for her crime. Apparently, she and her daughter claim that the autistic child tried to rape them and they knocked him out and tied him to his bed. After that, they were apparently so 'afraid' of the boy and his 'problems', that they set fire to the house, but claimed it wasn't on purpose. They claimed something occurred in the dryer which caused an explosion in the washroom. Here's one thing that they obviously haven't gotten through their thick skulls: if a person with autism is angry or something, they're not about to rape somebody. THey're more likely to strike them physically or, if they are large in stature, use that as an intimidation technique. There are so many cases in the news if you can find them about autistic children dying because instead of finding a way to help them through science and through supporting them, the parents have taken the children to their local priest or pastor and attempted to 'exorcise the demon within'. Load of crock, and completely desperate for normalcy, which as far as I'm concerned, is nothing to be proud about. As for Jenny McCarthy, I must go vomit. The woman is a complete #*#@* when it comes to people skills. While Jim Carrey is one of my favorite actors, I have to question his wisdom in marrying such a #*#@*. I also watched one of those 'The Doctors' episodes or whatever the shows called, which is one of those which she appeared on to talk about a cure. I am pretty sure my palms were bleeding by the time I had left the room. Now, I do know there are some forms of autism which do require some kind of extensive treatment. For people with something like Fragile X, or whichever condition it is that makes them non-responsive for the rest of their lives, than I do agree a cure may be needed. But not for those who can develop their mental abilities to the point they can function fairly normally. As far as I'm concerned, the Autism Rights Movement's approach to the U.N. to try and gain minority status is something which is applaudable. Now if only someone could expose Autism Speaks for what they really are, than perhaps the U.N. would be more agreeable to the Autism Rights Movement. One thing about the Autism Righs Movement that might be of interest is that one of their many under-groups has a program called Autreat, which is a retreat for autistic people. This program is much like any other retreat, but it also caters to the needs of people with autism. It doesn't have very many people who could be termed 'neuro-typicals' that attend, and those that do are normally family members who are completely supportive of their autistic relation.
• Shingle Springs, California
27 Sep 09
My son has autism. He's 9 and having difficulty right now with third grade. I may have Aspergers. At any rate I don't know anything about either of these organizations, but would definitely like to find out more about the Autism Rights Movement.