Update on my son
By Thoroughrob
@Thoroughrob (11742)
United States
October 17, 2009 5:26am CST
As most of you know, my son has Cerebral Palsy and is a wheelchair. He had scoliosis surgery, put rods in his back, in March and ended up with an infection. They had to do two more surgeries in April to clean the wound and take out his Baclofen pump, which he had to relieve muscle spasms and tightness in his legs
We went to the doctor yesterday, they did x-rays, and think that his back is fused up. They said that it is the fastest recovery they have seen. They are ready to take the rods out. They are going to do a Cat scan first and make sure it is all fused good before doing so. They are going to try to set it up the same day we go for Botox injections in his legs, which is something they are trying, to relieve the spasms and tightness in his legs.
I am so nervous. I am kind of excited. I am so ready to get him off of antibiotics. It has been a very long road. Please keep us in your prayers.
6 people like this
23 responses
@ANTIQUELADY (36440)
• United States
17 Oct 09
Prayer has been said for u & your son. I am so proud of the good news for him. I admire u very much for what u do for him. Of course any good mother would do the same & i know u are a good one but there is so many that are not & that is very sad to me. I hope the ct turns out well. Good luck to both of u. Thanks for the update. God bless.
@Hatley (163781)
• Garden Grove, California
17 Oct 09
hi thoroughrob hi you and your son are in my prayers from today right on. hope everything works out for him. It is so interesting
that Botox is being used in a variety of situations, I do so
hope it will relive your son's spasms and tightness in his legs
'as you two have been on a long road now to some recovery. I
will keep praying and maybe all other mylotters will join and
that will be most powerful. good luck.
1 person likes this
@chertsy (3798)
• United States
17 Oct 09
Bless your son's heart. Your son and your family are in my prayers. I pray that he won't have to take antibiotics or have any more surgeries anymore. I also pray that the botox injections works and your son won't have any more leg spasms.
I do pray that he gets to have a fun Halloween this year, and years to come.
1 person likes this
@Grandmaof2 (7579)
• Canada
17 Oct 09
Well yes absolutely you're in my prayers and it does sound nothing but positive at this point. For anyone with disabilities it's good to hear from others facing disabilities. I can at least walk short distances and this helps me keep focused and therefore I Thank You for the post for your son as well as for myself. My brother in law has Cerebral Palsy as well but a very mild case only crippling to his right hand. Blessings.
1 person likes this
@babyangie27 (5176)
• United States
17 Oct 09
That is great news! 
I will continue to pray for you and your family. They were going to do the injections in my daughters legs too but I had to reschedule it and they never got back to me. The C.P. office itself hasn't contacted me in a long time so I am unsure what to do about it all. Keep me posted!
I will continue to pray for you and your family. They were going to do the injections in my daughters legs too but I had to reschedule it and they never got back to me. The C.P. office itself hasn't contacted me in a long time so I am unsure what to do about it all. Keep me posted!@Thoroughrob (11742)
• United States
18 Oct 09
I do know it seems you have to keep on top of things. Call them, don't wait on them. I am hoping we really see a difference for him.
1 person likes this
@babyangie27 (5176)
• United States
18 Oct 09
I am hoping you see a difference as well my friend. Maybe after all this testing is done with my home I can get a hold of the docs again.
@tamarafireheart (15384)
•
17 Oct 09
Hi Thoroughrob,
Wow!! that is good news, but I am so sorry the things your son had to endure, yes I will keep him and you in my prayers, hugs. Bless.
Tamara
1 person likes this
@KrauseHome (36448)
• United States
17 Oct 09
This is GREAT NEWS my friend. See God is answering Prayers and Good things will continue to happen for you. I will be Praying and believing God in great results when he has these next tests as well. You have been an inspiration for all of us in how strong you have become thru all of this as well. ((HUGZ!!))
@Thoroughrob (11742)
• United States
18 Oct 09
Thanks so much! But I haven't felt like I was very strong, but you guys have helped to keep me from falling apart some days. Thanks
@Thoroughrob (11742)
• United States
17 Oct 09
It sounds like we are headed in the right direction, thanks for everything.
@Debs_place (10520)
• United States
17 Oct 09
You and he have been to h3ll and back ....Will removing the rods allow him to move better. Will that help with the leg cramps?Or are they a result of the CP?
The poor baby, if he were mine I guess I would just hug him all of the time, life just isn't fair.
Please keep us informed....I feel so bad for you all.
@CatsandDogs (13963)
• United States
17 Oct 09
Bless your heart sweetie! You and your son have been through a lot, there's no doubt about that but it's coming to an end, this part of it anyway which is a great thing!! I wish I were closer to you for I'd so love to help out and give you a break that you need so badly. Keep your chin up and stay strong! He's going to get better soon! Hang in there!!
@Thoroughrob (11742)
• United States
18 Oct 09
It has been a long road, but the results should be what we are looking for, giving him a long productive life, and not a short painful one. I am just so nervous to do this again.
@paula27661 (15811)
• Australia
17 Oct 09
Thoroughrob, I am going to pray for you and your boy. I am pleased that things have gone well up to this point and my prayer is for his healing. You are in my thoughts and I hope all goes well. All the best to you and your family.
@olydove (1209)
• United States
18 Oct 09
Hi thoroughrob,
Wow it really sounds like you both have come a very long way. I know sometimes the road seems to have nothing but steep hills that we can never seem to reach the top, but as you have done just keep at it and as you can see you get closer and closer to the top where it's nothing but good from then on. It's truly awesome that he is having such a good recovery from his surgery and I pray when they do the CT that everything comes out as expected. I wish you both the very best of luck and my thoughts and prayers are with you.
God bless you both,
Oly
@dorannmwin (36392)
• United States
17 Oct 09
How awful that your son ended up with an infection after his surgery. I imagine that time with the following two surgeries was a very difficult time in your life and I know that at this point in time you are feeling the feelings of excitement and nervousness that you've expressed here. I will keep your family in my prayers as you look forward to the CAT scan and seeing that the fusion is complete before taking the rods out and I also pray for continued speedy recovery for your son.
@whiteheather39 (24403)
• United States
17 Oct 09
I did pray for your son last night and will continue to do so as I am a living example of the power of prayer.
@maximax8 (31053)
• United Kingdom
17 Oct 09
I am delighted that your son has made a fast recovery from the operations he had had. I hope that the doctors will be able to help relieve the spasms in his legs. I will keep him in my prayers. I know a little boy with cerebral palsy and he is in a wheelchair. He left my son's special needs playgroup and now goes to a school for disabled children.
My son is 28 months old. He has spina bifida and hydrocephalus. He is unable to walk. At the moment he crawls around and in the future he will get a wheelchair. He has a shunt fitted inside his head.
@Thoroughrob (11742)
• United States
17 Oct 09
My son is in public school. He is now 15 years old. We have been through it, but it is an experience I would never give up. If you need support or just want to talk, let me know. It does get overwhelming at times, but it is so rewarding as you see the changes they make.
@dorisday1971 (5657)
• Philippines
18 Oct 09
I'm praying for you and your son.
I hope everything will be alright. I know how difficult it is for your to see your see undegoing such medical procedures. I just pray that he will be alright.
My prayers for your family.
@dragon54u (31636)
• United States
18 Oct 09
I'm so glad to hear some good news about your son! I remember when you were so worried and nearly sick with it. God answered our prayers for a quick and full recovery! I'm very happy for you! 
I'm very happy for you! 
@wookieekyut (673)
• Philippines
17 Oct 09
I already said a prayer before I responded to your post. Hope your son gets well soon and fully recovers. God is good.
@millertime (1394)
• United States
17 Oct 09
We sure will Thoroughrob, and you be sure and tell your son all of your MyLot friends are thinking about him. Wishing you both all the best.
@Thoroughrob (11742)
• United States
17 Oct 09
Thanks so much! Everyone here has been so nice and supportive. It has been a very long rocky road, but we knew the outcome if we did not do it in the first place.
