Cancer found treatment foulup
September 20, 2011 6:30am CST
Back in about May I was at my family doctor's office and he ask if I was feeling ol, I said yes but think I am coming down with a cold, he said lets take an xray, I did, he found a spot on lower left lung and I assured him that it was a calcum deposit that had been there for years, well that didn't suit him he said lets take one more, that one started hell. He called me on a Saturday morning and said they found a spot on top of right lung that he believed was cancer and was sending me to a lung doc for him to look at it. I went and was told that yes it was cancer, best way to get rid of it since it was a one inch spot and no cancer anywhere else in my body according to the PET scan that I had taken was to remove the top lob of my right lung, cancer gone, no more problems. Well I went through the operation, they made a 9 inch cut from right next to my right breast to around up to my shoulder blade and cut off the top lob of my left lung. I came through the surgery good no problems, for the 4 out of 5 days I was in hospital, they raved about it being all gone, then the day that I was to go in the surgeon and the lung doctor came in said that they sent the PET scan to the cancer doctors to look at and they found these microscopic cancer cells in the middle of my right lung, so small it took a big microscope to find them but they was in the lymph nodes. Their suggestion was 4 rounds of chemo, one every 3 weeeks. Well why all of a sudden did they check the PET scan after the operation, not before, don't matter they going to have it their way, So I went for the first round of chemo the first of August. The treatment went well, but was told before I went that the medicine that i was being given, was so mild that if there was any side effects from it would not be till after the third treatment then they had medicine to take for it and then only one more treatment to go.The treatment was Wednesday, and although it took 4 hours, was no problem, come Friday I begun to feel like I was coming down with the flu, by Saturday I had diaharria, Sunday I had broken out with this red rash all over my body, my tounge was totally white and swollen, they said Trush mouth, I was given medicine for that, went to cancer doc on Monday and was told that he had never seen anything like this rash, and didn't know what it was other than it was an imflamitory rash,and to have these symptions he did not understand, but make sure I made the next treatment, as the week progressed I got so weak I couldn't do anything, then my stomach begun to burn, and felt like someone had their boot on it pressing, I went to Er on Wednesday, and when they called this cancer doctor he told them to give me nothing because he had told me on Monday all symptions from the chemo, first LIE, my daughter said he did not tell us that, Er sent me home, the burning in my stomach got so bad by friday night I went back to the ER, they ran tests and found I had colisis(not spelled right) any way the arteries around my colon was imflamed. I was transferred down town to the main hospital. When they ask for my cancer doctor name I said don't bring him in here, so they sent another person in, he is head of the cancer unit. He talked me into coming to his office, I gave him a list of questions i wanted answers to when I got there, he agreed to see why this was happening. When I got to his office he said that the dosage that I was given in first treatment was a huge dose, enough for 2 treatments or more, that the reason for the problems, he also talked me into going for another round although this firt batch was still in my system, it was playing havic on my diabetes, one little scratch on my leg was so imflamed and sore and my blood sugar was 388. And I felt horrible, I also have heart problems and had been on asprian for 10 years they said could not take anymore aspiran with the chemo, so my blood started to clot up, as the days pasted and it got closer to the time to take another treatment, the family doc called said in my office got to do something with the blood sugar, I cried for 2 days fought with my son till I bawled all night because all he seen was if I took the chemo, it might add 5 years to my life, he did not understand what it was doing to the rest of my body. A decision had to be made, I prayed and prayed what to do, the morning of the treatment, I said no more, time to step back take a break and me take control of my life again. I stopped taking the medicine they had given me for the colis as I had taken it (antibiatics) for two weeks, started taking my asprian again, immediately made me feel better as my blood was movin again. Started taking my regular medicine. As of today I feel so much better, when you would ask what the risk in these cells in the lymph nodes of ever doing anything, all you got was well one day, ONE DAY, they could develop into something, or maybe they will never do anything, now that is an answer, because they actually work on what they see from treatment from others, there is no way of knowing, but you should have at least one more, way I seen it if I was having two or even three, the first treatment should of taken care of it. when I seen my family doc at the store, I said no I did not go and no I am not going, my hair had started to fall out in handfuls which they said can not change what had already happen, I told him the only one I trusted now was god, I turned it over to god, either he wants me to live or he will take me. That is one thing that I know I can count on the rest if bs. I think I made the best decision in this. I think something should of been done to the woman that gave me the firt treatment, for not looking at the chart to see the doseage, might have since this last cancer doc the head of the unit said he had checked into what went on. Some times you have to step back and take contol of your life, doctors don't always know the best thing for you and I found it funny that it was ok to take the chemo, but had no reguards as to what it was doing to my diabetes and heart disease. Hopefully I made the right decision and I trust god that he give me the strength to make that decison. Please people if they are sending you for tests please go and get them, the cancer docs today will tell you I have no cancer in my body, if it had not been for my family doc digging and looking and testing I would of never knew it was there, and I felt great. I guess he saved my life.
• United States
20 Sep 11
It was non_small cell stage 1, and yes it is hard, trying to deal with each thing and the chemo taking a bigger toll on the diabetes, I said to the cancer doc, if this keeps going, with this spot on my leg and it gets worse I could lose my leg, his response was well some times you have to give up one for the other, well that pissed me off, to think as long as i was his ginny pig for the cancer treatment, (which I found out they get paid by the medicine they push) he could care less if I have my leg cut off. I was lucky that I have a family doctor that will dig till he finds what he is looking for they caught it as it was just beginning. Yes it was a lot, I couldn't sleep at night wonder what i was going to have to deal with next, wondering if I was going to die, that in it's self is a horrible thing to have to deal with, I have been told I had a lot of things in my life and have dealt with them fine, like the open heart surgery, and even the cutting off of part of my lung, if that is what it takes ok, but you will never sit in a doctors office and have a worse thing told to you, that you have cancer. It is nothing like having diabetes and heart disease, and they tell you, you and your whole families lives changes from that point on. Ty for your prayer i can sure use them.
• United States
9 Mar 12
UP date on my cancer, they have seem to get it all, and I have now begin to get my hair back, I was so happy when I looked into the mirror that day and saw that where it was bald in spots there was now hair growing, It was nearly all gone, while it is very short ( and I like it takes 2 minutes to wash and 2 minutes to dry) I will be glad when it is long again. I had CT Scan about month or month and a half ago, it came out clear. Everyone is right, I just turned it over to god and let him decide if I get to stay here or not. I want to stay now at least till Sept, I will be a great grand mother in August, and I can't wait. And I pray that god will give me the chance to see it arrive. Thank god for my doctor who cared enough to search till he got the answer he was looking for, I owe him my life. Please everyone take the test they ask you to take, early detection is what saves lives.