Keratoconus. How may are we here?

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Greetings Myloters, Let me start by telling my experience about Keratoconus. On 2005 my eye doctor told that I have Keratoconus on both eyes so I had to wear hard contact lenses. I couldn't get used to the contact lenses so after a period of time I quit wearing them. In the last 2-3 years my eyes condition got a little worse so I had to have an crosslinking treatment on my left eye. Last October I had a crosslinking treatment on my left eye. Now I'm up for the next one when I have to. So tell me how many Myloters have Keratoconus here? What's your story? Don't you think that there are still not much information about Keratoconus?