Tall People May Have Marfan Syndrome

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Are you aware of a disease called Marfan Syndrome. I did not knew about the disease a month ago. But now, I am trying to promote awareness about this disease. Before 2012 ended, my colleague was brought to the hospital because of chest pains and difficulty in breathing. Doctors were on a holiday so the medical attention he got was a good source of oxygen supply from the breathing apparatus there. On January 2, it was discovered that his heart had a rupture. He was brought to Makati Medical Hospital here in the Philippines. After several tests, his doctor said that he needs to undergo a heart surgery. They need to replace the arteries that erupted in his heart. Though the operation cannot push through because he has pneumonia and his lungs needs to be clear during the operation to be able to survive it. He was also diagnosed with Marfan syndrome. A disease of the gene,it is hereditary but at rare times, a change in the gene structure can also cause it. A person who has Marfan syndrome are very tall. Their arms when stretched apart are longer that their actual height. They also have delicate veins. Persons with this kind of disease can live up to their 60's. But my colleague died last January 29 at the age of 30. It was a real shock for all of us. He did not knew about the disease he had. If he knew, he would not involve himself in contact sports and other physical activities as well. People who have Marfan Syndrome have weak hearts and lungs. Their veins are too thin, so any form of routine that may cause abuse to these veins is detrimental and sometimes fatal. He was an athlete, he always join in running activities, he goes to the gym and plays basketball. Things that he should not be doing if he only knew he had Marfan Syndrome. He stayed at the hospital for a month. He struggled but he never had the chance to undergo operation because of his weak lungs. He fought a brave fight. But in the end, God decided to end his pain. He died at thirty living her wife or two years and a one year old daughter. We cannot help but feel bad because no one knew about the disease. Things would have been different for him ad for others who has the same story e has.