If you could cure your disabled child, would you?

@irishidid (8687)
United States
February 6, 2016 9:37am CST
There was a documentary about a child who was going through surgery to remove a very large growth on his face. After the surgery was over and his mother saw him she was upset because he looked different. It was not the face of the child she had loved and cared for. Instead it was looking at a strange face. Some said she was selfish but I understood where she was coming from and why she mourned the loss. As the mother of an autistic child I have grown to love her as she is. It hasn't always been easy. There have been struggles and there still are, although she has progressed. I wonder how it would be if she woke up one morning with no disabilities. Would I recognize her? Would she lose her photographic memory? Would I like this new person? If I had a choice I would do what is best for her but I would still mourn the loss of the daughter I have loved.
2 people like this
4 responses
@yukimori (10192)
• United States
6 Feb 16
My brother-in-law has special needs, so I completely get the scenario. I agree that it would be completely different. If you haven't read Elizabeth Moon's The Speed of Dark, it's a great read and deals with exactly this situation. An autistic man chooses to undergo a treatment that "cures" him.
1 person likes this
@irishidid (8687)
• United States
6 Feb 16
I haven't read it but it sounds interesting, however, I had to lift an eyebrow at the chooses part. My daughter goes into meltdown mode when she has to make a choice! LOl
1 person likes this
@yukimori (10192)
• United States
6 Feb 16
@irishidid I think he was extremely high-functioning on the spectrum, but it's been several years since I sat down and read it. I just picked up the Kindle edition last month... need to get around to reading it again.
@AnneEJ (4917)
• Dollard-Des-Ormeaux, Quebec
6 Feb 16
I can understand how you feel. I have a grandson who is autistic and we love him the way he is. Thankfully, he has come a long way and we still pray that the Lord will continue to work on him. He is very smart in so many ways, and very lovable.
1 person likes this
@irishidid (8687)
• United States
6 Feb 16
I truly believe a person has to experience it to understand.
1 person likes this
@1hopefulman (45111)
• Canada
6 Feb 16
So your daughter is gifted with a photographic memory? I wish I had one.
@Shavkat (141906)
• Philippines
6 Feb 16
It is normal to feel unfamiliar for a new look of our loved ones. For the sake of good prognosis of a child, we still hope for them to develop their developmental milestone. I don't have this kind of scenario in the family. But I had helped a lot children with disability while having volunteerism before. It is a challenge but it is also rewarding if the child have some progress.
1 person likes this
@irishidid (8687)
• United States
6 Feb 16
I agree and I love how far my daughter has come over the years. She's still autistic and always will be but every step and improvement is welcome.