Haven't been on in a while...
By Stacey
@xstitcher (39034)
Petaluma, California
November 26, 2017 8:30am CST
The last couple of days have been crazy and busy and tiring.
Mom recently stopped eating, and her speech isn't very coherent -- though the latter has been true for a while.
Hospice took over Mom's care, and there have been people in and out a lot. Yesterday a social worker was here and saw how tired I was. She called an in-home care giver, who has stayed overnight. I have an assessment with another in home care giver today who is less expensive than the one the social worker called. I also need to cancel the one that has come a couple of times, as they are, while not as expensive as the caregiver that's here, still more expensive than the one that has been coming. I made a phone call a bit ago--I hope it was to the right agency. The name seemed right. I haven't been able to find their papers, so I tried looking them up on line.
One of Mom's friends is coming by today, and possibly another. The one has been coming by most every day, but right now I'm feeling I need some space, so the next time she asks to come over I'm going to decline.
So, that's what's been going on with me. I hope that you all have a great day/evening/etc. in your part of myLot land !
9 people like this
9 responses
@thislittlepennyearns (68246)
• Defuniak Springs, Florida
26 Nov 17
I have been dreading a post like this from you. I am so sorry. 
1 person likes this
. I really wish I hadn't had to post it. @thislittlepennyearns (68246)
• Defuniak Springs, Florida
26 Nov 17
@xstitcher if there's anything I can do is send me a message.
1 person likes this
@xstitcher (39034)
• Petaluma, California
27 Nov 17
@thislittlepennyearns Thank you so much.
2 people like this
@ElusiveButterfly (45941)
• United States
26 Nov 17
Is the Hospice a non-profit or for profit group?
1 person likes this
@ElusiveButterfly (45941)
• United States
27 Nov 17
@xstitcher I know a few people that have to pay for private care. I hope you can find one that suits your needs.
1 person likes this
@xstitcher (39034)
• Petaluma, California
27 Nov 17
@ElusiveButterfly Hospice is not like private care -- and unfortunately I found out that the in home care giver the social worker got was way too expensive ! 
1 person likes this
@xstitcher (39034)
• Petaluma, California
26 Nov 17
Non profit to the best of my knowledge
1 person likes this
@lovinangelsinstead21 (36847)
• Pamplona, Spain
26 Nov 17
Looking after my Mom there was never enough space for me to have as I was living in her house on a temporary amount of time.
I found space though because I really needed but the Social Workers except for one were not very helpful at all and I did nost of the care myself and nearly wore myself into the ground.
Can know how it feels too.
Get as much rest and space as you can.
Its exhausting to say the least.
1 person likes this
@xstitcher (39034)
• Petaluma, California
27 Nov 17
So sorry you had that experience, @lovingangelsintead . 
I am thankful that the majority of people around me have been so helpful. I know what you mean though about wearing yourself into the ground. I am so grateful that the social worker saw that that was what was happening with me.
I am thankful that the majority of people around me have been so helpful. I know what you mean though about wearing yourself into the ground. I am so grateful that the social worker saw that that was what was happening with me.1 person likes this
@lovinangelsinstead21 (36847)
• Pamplona, Spain
29 Nov 17
@xstitcher
If you don´t fight to look after yourself first as you have to in the end for as much as you want everything to be right and in order.
That Nurse like the one you have saved my day as I was excluded by one of my Brothers for the fact that I did not live in England and the Doctor refused to work with me on any level at all which I thought was totally daft.
@tammys85 (31416)
• Baltimore, Maryland
3 Dec 17
@xstitcher You're welcome. I hope you're all okay.
1 person likes this
@peachpurple (13961)
• Malaysia
26 Nov 17
oh so sorry for your mom, hope that the doctor could help her out
1 person likes this
@xstitcher (39034)
• Petaluma, California
26 Nov 17
Well, thank you, @peachpurple , but there's really nothing else anyone can do except try to keep Mom comfortable.
1 person likes this
@peachpurple (13961)
• Malaysia
26 Nov 17
@xstitcher I feel sorry for your mom, prayers for her
1 person likes this
@xstitcher (39034)
• Petaluma, California
26 Nov 17
Thank you, @Alian123 . I keep thinking how "All things work together for good to them that love God."
1 person likes this
@LovingMyBabies (85923)
• Valdosta, Georgia
26 Nov 17
@xstitcher I understand that.
1 person likes this
@xstitcher (39034)
• Petaluma, California
26 Nov 17
@LovingMyBabies Thank you, Jennifer. Right now I just want Mom to be out of pain.
1 person likes this
@Courtlynn (67089)
• United States
26 Nov 17
Sorry you arent getting enough space .. and your mom wasnt eating.
1 person likes this
@Happy2BeMe (99353)
• Canada
26 Nov 17
I am so sorry to read this. I am glad that she ia getting good care. Sometimes it just gets to be too much. You need your rest, yoi dont want be getting sick. I know all of this is very difficult for you.
1 person likes this
