I have psoriasis
By pahak627
@pahak627 (5347)
Philippines
October 19, 2021 3:58pm CST
I don't know if it is right for me to share my illness. However it is more a skin disorder than an illness. But just the same they are similar in some ways. It is chronic and hereditary which I got from my paternal side. Although it is not contagious I found that people stare at me whenever I have a flare-up. When I was still in the period of adjustment because of this, I feel so much discrimination, I don't know if I am using the right term. I have no choice this is my fate. I have to be like this for the rest of my life. When I was younger, I did not mind the stares of people but time came that I thought I can not endure their stares anymore. I was really stressed and the more stress I was the more flare-ups I also got.
Then I came across an online organization for psoriasis patients in our country and I was assigned an online coach who made my psoriatic journey easier. It was free of charge. My communication with my coach stopped before the pandemic however maybe 2 weeks ago I saw her post on FB and made a comment. Then she called and we had a video chat for awhile. Then we were reconnected and I told her that I also want to be a coach like her and she said that I have to make myself ready for this that I will willingly share my psoriatic experience to somebody. By the way, she is also a psoriatic patient like me. She managed hers better than me.
I still feel discriminated and intimidated sometimes. Are there mylotters who are like me? Hope none. It's not easy for us who have this disorder.
4 people like this
3 responses
@rakski (156303)
• Philippines
20 Oct 21
My family has a long-line history of bronchial and skin asthma. I have eczema (not present always), dyshidrosis in my hands every now and then. My kids have it too.
It is not easy to deal with and the treatment is expensive and also there is no permanent cure for this. you just really have to prevent and manage it. Though people might think it easy, it is not. And do not stress yourself on what they think because they do not know what you are going through.
@pahak627 (5347)
• Philippines
20 Oct 21
I also have bronchial asthma. It seems that respiratory illness goes with skin illnesses too. I have bronchial asthma, allergic rhenitis and psoriasis while my eldest son has allergic rhenitis and eczema. Rhenitis is red here, I don't really know its spelling. And yes stress can trigger our illnesses.
1 person likes this
@pahak627 (5347)
• Philippines
20 Oct 21
@rakski Yes that is what I can hear from the doctors that I went. I was even accused by a dermatologist that I was doctor shopping because I went to another doctor because of my health insurance. I was only a dependent of my son so whenever they transfer their insurance I have to transfer to another doctor when the same is not an accredited doctor of the new insurance co that my son's work has. The previous doctor was not accredited to the new health insurance that I got.
1 person likes this
@RebeccasFarm (91299)
• United States
19 Oct 21
It is so good to help others especially when you know the condition.
This is so nice you also will coach others.
I am familiar with the condition, psoriasis, as when I did hairdressing, some clients would come with that.
It is hard to keep calm and not stress.
I am sorry to know that you have it.
@pahak627 (5347)
• Philippines
19 Oct 21
It's okay and thanks for this. Well, I have only one hairdresser after several hairdressers. I finally found her since my previous hairdressers seem to be scared or their actions seem to intimidate me. But this one , I feel that she really cares for me.
1 person likes this
@RebeccasFarm (91299)
• United States
19 Oct 21
@pahak627 Yes indeed, hairdressers need to be educated about it, there is nothing to be scared of. I am so glad you have one now that is okay for you.
@kaylachan (84742)
• Daytona Beach, Florida
20 Oct 21
I am disabled, and can speak openly about it. But, yes... I still get discriminiated against. stared at, and often treated differently (sometimes by my own husband) but I never let it get me down.
@pahak627 (5347)
• Philippines
20 Oct 21
Yes there were lots of adjustments that I had made because of discrimination. But now, I guess people in our neighborhood are used to my condition that they treated me as if my illness does not exist. I can also say that time heals. You are fortunate you said that you feel being treated differently even by your husband. I also experienced that not only sometimes but always.
