Another year of worry....

@krysy1982 (1042)
United States
December 10, 2006 10:08pm CST
I took my 2yr old to the Shriners Hospital this past week hoping to get a diagnosis but we have to wait another year to get it. The bones in his leg seem to be curved and he drags his right foot when he walks. He has a lot of problems with falling. He has been a little slower with physical development. Any advice on how not to worry so much?
1 person likes this
5 responses
@brokentia (10395)
• United States
16 Dec 06
He is in good hands! My heart goes out to you. My son has been with the Shriner's and we hope that all is well now. But we will not know until he grows more. His leg my overgrow the other or not grow as much as the other. We now just have to wait it out. I am sending warm love and best wishes. He is in good hands. :) Hang in there sweetie!
@krysy1982 (1042)
• United States
17 Dec 06
theank you so much for the kind words
1 person likes this
@wahmoftwo (1298)
• United States
12 Dec 06
I would keep searching for a doctor that can help. The internet is a great tool for that. I'm so sorry that you are having this problem
@krysy1982 (1042)
• United States
14 Dec 06
thanks for the advice
1 person likes this
@kids91911 (4366)
• United States
12 Dec 06
Don't treat him any different. I have personal experience with health problems and kids. Take it day by day and don't miss anything.
@krysy1982 (1042)
• United States
12 Dec 06
thank you very much for the great advice
1 person likes this
• United States
11 Dec 06
That's crazy. I hate when they do that. You think they will tell you what you need to do to help your children and then they don't even know. Urgh. Have you tried getting him physical or occupational therapy. Most public school districts offer assistance (I know ours does). I would think if his foot is that bad they would have him in some sort of braces or something to try and help straighten his legs. But I don't know much about that stuff. I do know about being made to wait and worry. My 4 year old had blocked tear ducts and an umbilical hernia (obviously not was worrisome as what you are going through). They kept saying, "oh we'll see how she is doing at X age". First it was 6 months. Then they said they don't do anything until 9 months. At her 9 month appt. they said they usually wait until 12 months. By then I was frustrated. She had constant eye infections from the time she was 1 week old. I mean constant. Can you imagine having pink-eye every single day of your life? It was awful. And her hernia--it still hadn't repaired itself by the time she turned one but they still said, "oh, we'll wait and see." Mean while everytime she cried her belly button shot out. Finally at her 18 month appt., they decided to do something about her eyes and gave us a referral to an ophthalmologist. And, luckily, by then her hernia had finally started to repair itself. She had surgery on her eyes when she was 18 1/2 months old. I was worried about it but thankful they were finally doing something for her. By that age she hated having anyone near her eyes. She cried and threw a fit everytime I tried to clean them (which was several times a day). I was glad she never needed surgery on her hernia. We did find out she needed glasses during those visits and she got them just before she turned 19 months.
@krysy1982 (1042)
• United States
11 Dec 06
its driving me crazy not knowing what it is
1 person likes this
• United States
18 Dec 06
everything will be ok