Hashimoto's disease

United States
December 23, 2006 1:42pm CST
I'm suffering from Hashimoto's disease. It's been difficult to deal with the exhaustion, and the forgetfullness and of course the fact that my endocrinologist feels that my numbers on the blood tests are not bad enought to treat yet, despite the severe symptoms that I have! Is there anyone else out there that has this, I'm looking for some support and to hear about your experiences with the disease.
2 people like this
6 responses
@linda345 (2661)
• Canada
24 Dec 06
I also have this disease. I have had it for over 20 years now. I have been medicated all this time. The amount has flucated depending on my weight and pregancys. It is common for thryoid problems to run in the family. My Mom has it, my brother had thryoid cancer and my grandmother had it. You should research it on the net because when my sister in law was first diagnosed they did not medicated her but she found herbs that would help with the thryoid function. I hope you find some relieve soon because I can tell when my pills need to be changed. Sometimes you can convince the doctor to put you on a low dose of the meds to see if it will make a difference. Also, have any other test been run to make sure you are not suffering from anyother autoimmune disorder. I was diagnosed with sjogrens a few years back it causes joint pain and makes you tired.
• United States
25 Dec 06
I've been tested for every other autoimmune disorder out there, especially because of my family history. My mother has Hashimoto's also and my sister had cancer of the thyroid. I'm getting some relief with acupuncture. The herbs he gave me made my stomach soooooo upset!
@mansha (6298)
• India
24 Dec 06
My brother has been diagnosed with this disease but he has no other symptomps except underactive thyroid gland. Are you trying hormone replacement therapy. I am not sure about the treatment though. my brother is taking some medicines on regular basis although. With this one I am not sure what occurs first. Is it the dsame disease we are talking about. We have diabetes too running inour family so I don't know if its the same disease or hypothyroid is different.
• United States
25 Dec 06
Hashimoto's is different then the underactive thyroid although you can have underactive thyroid and Hashimoto's at the same time. Hashimoto's disease is where the immune system attacks the thyroid. Unfortunatly I don't tolerate hormones well, they make me ill. I would rather not have to take medicine for the rest of my life anyway, I don't like the long term side effects of medications, plus I just am a bad pill taker!
24 Dec 06
debbi, I feel wanna cry to read about your illness. I'm sorry, I always feel sad when looking at others feeling sad of being ill. I sincerely wanna cheer you up! Please be strong, ok? Do not lose hope... I do hope you will find some medicine then can cure your illness or may be look up for those herbal or fruits extract or health tonic if these can help. Please move on! Be strong! Coz I read about a morroccan lady who suffered from cancer at final stage..... and cured. Please SMILE :D
• United States
24 Dec 06
I'm only sad because I'm not able to do as much as I want to with my children. My daughter is old enough to understand but my son is to young. I haven't lost hope, I know it will be ok. I saw the information posted, but unfornatly convential doctors will not even help me. I've turned to acupuncture and it's started to help. I'm glad you have been cured from your cancer! Way to go. I was wondering if anyone else has had experience like mine.
1 person likes this
@supremegod (1018)
• India
23 Dec 06
goitre - goitre
Hashimoto's thyroiditis or chronic lymphocytic thyroiditis is an autoimmune disease where the body's own antibodies fight the cells of the thyroid. Also known as Hashimoto's disease, it is named after the Japanese physician, Hakaru Hashimoto (1881–1934) of the medical school at Kyushu University, who first described the symptoms in 1912 in a German publication[1]. This disorder is believed to be the most common cause of primary hypothyroidism in North America. It is more prevalent in women than in men (8:1), and its incidence increases with age. A family history of thyroid disorders is common, with the HLADR5 gene most strongly implicated conferring a relative risk of 3 in the UK. The genes implicated vary in different ethnic groups and the incidence is increased in patients with chromosomal disorders, including Turner's, Down, and Klinefelter's syndromes. In many cases, Hashimoto's thyroiditis usually results in hypothyroidism, although in its acute phase, it can cause a transient thyrotoxic state. Physiologically, antibodies to thyroid peroxidase and/or thyroglobulin cause gradual destruction of follicles in the thyroid gland. Accordingly, the disease can be detected clinically by looking for these antibodies in the blood. It is also characterised by invasion of the thyroid tissue by leukocytes, chiefly T-lymphocytes. Treatment is with daily thyroxine, with the sodium salt of thyroxine liothyronine given when the need to raise levels of circulating thyroxine is urgent. Symptoms of Hashimoto's thyroiditis include symptoms of hypothyroidism and a goitre. In European countries an atrophic form of autoimmune thyroiditis (Ord's thyroiditis) is more common than Hashimoto's thyroiditis.[edit] References
• United States
24 Dec 06
Although this is ok information that you have provided here, I've read more info on Hoshimoto's then I care to talk about. I appreciate you response but what I'm looking for is someone who has the disease and can share treatments and symptoms with me. I know what and how it's caused and how it works, believe me I live it everyday.
• Indonesia
24 Dec 06
i have never heard it. it' s something a new news for me. thank you for the information.
@babykay (2131)
• Ireland
24 Dec 06
hi I have Hashimoto's thyroiditis also! I can sympathize enormously with you. I had ammenhorea or lack of periods for many years, dreadful weight gain, constant tiredness. I am sure you are more than familiar with all or some of these symptoms. However, I also have PCOS which can cause the above symptoms. When my doctor couldn't understand why my PCOS was not responding to treatment it was me the patient who suggested the test for thyroid function!! My thc was high and t3 or t4 was low. I was told I was "borderline" probably something similar to yourself? But what made my doctor decide to treat me was the level of thyroid antibodies in my blood, they were many thousands, about 2000% over the normal,yes thats thousands not hundreds. Then I felt much, much better! I am on 100mg elthyroxine per day, I was on more but my level has been reduced as i was on too much according to bloodtests... I hope this in some way helps you and/or provides you with some hope. You need to be treated if you are feeling the symptoms as much as you say. Basically we are all different and an adequate level of t3/t4 for one person is not the same as that for another! If your endocrinologist won't treat you, go to one who will.
• United States
25 Dec 06
My t3 and t4 levels are normal, those went back to normal when I changed my diet after being told I had hypothyroidism. Now I was told I have Hashimoto's. I'll suggest to my family doctor to test the antibodies in my blood. I think some of these doctors forget that we are individuals and our bodies do not react the same, nor is one level of t3 or t4 in one persons body the same as in anothers! We are just numbers on paper now. I've sought out acupuncture as treatment and I'm getting some relief. The acupuncturist says he can cure the Hoshimoto's! I'm just beginning to feel worn down emotionally right now, but thanks for your support.